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Joined: Nov 2007
Posts: 6,269
Addicted_to_AS_Kickin
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OP
Addicted_to_AS_Kickin
Joined: Nov 2007
Posts: 6,269 |
You're so welcome Orch, I know there are more articles on the web but I was in a hurry this morning..so I posted the first decent one I came across. 
Age 7- Kidney Necrosis Age 11-Bursitis Age 14-Costo Age 17-Psoriasis Age 32-Thoracic Outlet Syndrome Age 33-Sacroilitis Age 35-Interstitial Cystitis Age 40-AS Age 44-Fibro Age 44-PsA Age 45-MS Age 46-Sjogrens Age 46-Raynauds Age 47-PF  
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Joined: Nov 2007
Posts: 6,269
Addicted_to_AS_Kickin
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OP
Addicted_to_AS_Kickin
Joined: Nov 2007
Posts: 6,269 |
Okay...I went to the start day of the clinical trials and guess what?! She told me that I can share every single detail with yall...I have all the info on the study, she gave me a big packet after I told her about yall and told me to knock myself out, it wouldn't compromise the study or break any rules!  I asked her a couple of questions that I know yall really wanted answered....Yes, this drug is expected to cost a fraction of all the other biologics, that is the main goal of the manufacturers, this will be the first drug of it's kind that this particular manufacturer will produce, all of their other drugs are cancer drugs(she used another term but you get the jist), also, all of the participants will recieve the drug!  We will be split into 4 groups...the first group will recieve 10 mg. the second group 20 mg., the third group 30 mg. and the fourth group placebo(but only for the first 3 weeks), after that EVERYBODY gets the drug!! She even drew us a flow chart!! And the study will last 9 months for most participants and up to 2 years for others! I've been dying to get to the computer to update yall but it's been a crazy day! I had a squirrel jump on my head this morning, literally, he was so hungry, he was panhandling...so now he lives in the house, I'm posting about it next, I got a couple of pictures ...he's just a baby, no bigger than my hand! Erica is sick and I've got the baby and it's been a crazy day! I haven't even had a chance to read the packet but I'll get to it later and I'll share info and scan pages and if anyone has any questions...feel free to let me know!
Last edited by Michelle70605; 10/01/08 03:24 PM.
Age 7- Kidney Necrosis Age 11-Bursitis Age 14-Costo Age 17-Psoriasis Age 32-Thoracic Outlet Syndrome Age 33-Sacroilitis Age 35-Interstitial Cystitis Age 40-AS Age 44-Fibro Age 44-PsA Age 45-MS Age 46-Sjogrens Age 46-Raynauds Age 47-PF
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Joined: Aug 2008
Posts: 570
Sergeant_AS_Kicker
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Sergeant_AS_Kicker
Joined: Aug 2008
Posts: 570 |
A squirrel!??!!?! Oh, I can't wait to see the post! 
In the depths of winter, I finally learned that there was in me an invincible summer. -Albert Camus
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Joined: Nov 2007
Posts: 6,269
Addicted_to_AS_Kickin
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OP
Addicted_to_AS_Kickin
Joined: Nov 2007
Posts: 6,269 |
Isn't he a doll!!
Age 7- Kidney Necrosis Age 11-Bursitis Age 14-Costo Age 17-Psoriasis Age 32-Thoracic Outlet Syndrome Age 33-Sacroilitis Age 35-Interstitial Cystitis Age 40-AS Age 44-Fibro Age 44-PsA Age 45-MS Age 46-Sjogrens Age 46-Raynauds Age 47-PF
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Joined: Jan 2007
Posts: 2,188
Major_AS_Kicker
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Major_AS_Kicker
Joined: Jan 2007
Posts: 2,188 |
That's awesome Michelle. Keep us updated on everything and I can't wait to see what this drug is about, so to speak.
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Joined: Nov 2007
Posts: 6,269
Addicted_to_AS_Kickin
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OP
Addicted_to_AS_Kickin
Joined: Nov 2007
Posts: 6,269 |
I absolutely, positively, will keep yall posted! I'm so excited!
Age 7- Kidney Necrosis Age 11-Bursitis Age 14-Costo Age 17-Psoriasis Age 32-Thoracic Outlet Syndrome Age 33-Sacroilitis Age 35-Interstitial Cystitis Age 40-AS Age 44-Fibro Age 44-PsA Age 45-MS Age 46-Sjogrens Age 46-Raynauds Age 47-PF
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Joined: Jan 2008
Posts: 21,346 Likes: 2
Very_Addicted_to_AS_Kickin
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Very_Addicted_to_AS_Kickin
Joined: Jan 2008
Posts: 21,346 Likes: 2 |
A squirrel on your head! now i've heard of everything!  that sounds like the seinfeld episode where a bird flew into Elaine's head; http://www.youtube.com/watch?v=wYMtielZN24and for the record, i'm not insinuating anything sue
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Joined: Nov 2007
Posts: 6,269
Addicted_to_AS_Kickin
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OP
Addicted_to_AS_Kickin
Joined: Nov 2007
Posts: 6,269 |
Too funny Sue! I posted pictures of the little stinker on "Rocky Rescue", he's really cute... I've been so busy the past few days that I pop in & out quickly throughout the day...but it seems like I haven't seen you posting as often as usual, are you feeling okay?
Age 7- Kidney Necrosis Age 11-Bursitis Age 14-Costo Age 17-Psoriasis Age 32-Thoracic Outlet Syndrome Age 33-Sacroilitis Age 35-Interstitial Cystitis Age 40-AS Age 44-Fibro Age 44-PsA Age 45-MS Age 46-Sjogrens Age 46-Raynauds Age 47-PF
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Joined: Jan 2008
Posts: 21,346 Likes: 2
Very_Addicted_to_AS_Kickin
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Very_Addicted_to_AS_Kickin
Joined: Jan 2008
Posts: 21,346 Likes: 2 |
hi michelle,
thanks for asking about me.
i'm OK, just busy at work.
sue
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Joined: Nov 2007
Posts: 6,269
Addicted_to_AS_Kickin
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OP
Addicted_to_AS_Kickin
Joined: Nov 2007
Posts: 6,269 |
Well it's good to hear that you're alright but sorry that you're having to work so hard.
Age 7- Kidney Necrosis Age 11-Bursitis Age 14-Costo Age 17-Psoriasis Age 32-Thoracic Outlet Syndrome Age 33-Sacroilitis Age 35-Interstitial Cystitis Age 40-AS Age 44-Fibro Age 44-PsA Age 45-MS Age 46-Sjogrens Age 46-Raynauds Age 47-PF
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