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Joined: Nov 2007
Posts: 6,269
Addicted_to_AS_Kickin
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OP
Addicted_to_AS_Kickin
Joined: Nov 2007
Posts: 6,269 |
Hi Orch, it may be that Sandy is taking something besides prednisone, her MS is further advanced than Pam's but I'd have to say that Sandy has been doing pretty good for the last 10 years or so, she was diagnosed in the late 1980s, she was sitting at her desk and went blind in one eye, totally without warning and she was rushed to Houston and until the late 90s, she had an awful time with it! I came across a study, if memory serves me right, it was done by Princeton, anyway some grad students got the names of 1,000 people who'd had Mononucleosis when they were young, all of them were in their teens when they had it and this was 20 years later, those were the parameters the students chose, anyway, they asked them hundreds of questions and the results showed that a very high percentage of them had developed MS within the 20 years since they'd had Mono, I just thought that might be of interest to you....tomorrow is the big day!! 
Age 7- Kidney Necrosis Age 11-Bursitis Age 14-Costo Age 17-Psoriasis Age 32-Thoracic Outlet Syndrome Age 33-Sacroilitis Age 35-Interstitial Cystitis Age 40-AS Age 44-Fibro Age 44-PsA Age 45-MS Age 46-Sjogrens Age 46-Raynauds Age 47-PF  
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Joined: Mar 2007
Posts: 386
Fifth_Degree_AS_Kicker
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Fifth_Degree_AS_Kicker
Joined: Mar 2007
Posts: 386 |
Good luck tomorrow! Do you have any idea yet how frequently you will take this drug?
Janet
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Joined: Sep 2001
Posts: 2,192
Major_AS_Kicker
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Major_AS_Kicker
Joined: Sep 2001
Posts: 2,192 |
The Mono connection is interesting I had mono when I was 10.
Steve Orchard, Running from AS & MS
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Joined: Nov 2007
Posts: 6,269
Addicted_to_AS_Kickin
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OP
Addicted_to_AS_Kickin
Joined: Nov 2007
Posts: 6,269 |
Hi Janet and thanks, no, I don't know how long I'll be taking it, I was so excited to get in on this one that I really didn't ask many questions...  ...but I'll find out tomorrow and I'll post everything I know, I'm so excited to get started.. 
Age 7- Kidney Necrosis Age 11-Bursitis Age 14-Costo Age 17-Psoriasis Age 32-Thoracic Outlet Syndrome Age 33-Sacroilitis Age 35-Interstitial Cystitis Age 40-AS Age 44-Fibro Age 44-PsA Age 45-MS Age 46-Sjogrens Age 46-Raynauds Age 47-PF
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Joined: Nov 2007
Posts: 6,269
Addicted_to_AS_Kickin
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OP
Addicted_to_AS_Kickin
Joined: Nov 2007
Posts: 6,269 |
Wow, Orch! I'm going to try to find that study, it's been awhile since I came across that, I don't even think the internet was around then!
Age 7- Kidney Necrosis Age 11-Bursitis Age 14-Costo Age 17-Psoriasis Age 32-Thoracic Outlet Syndrome Age 33-Sacroilitis Age 35-Interstitial Cystitis Age 40-AS Age 44-Fibro Age 44-PsA Age 45-MS Age 46-Sjogrens Age 46-Raynauds Age 47-PF
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Joined: Jul 2008
Posts: 79
Apprentice_AS_Kicker
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Apprentice_AS_Kicker
Joined: Jul 2008
Posts: 79 |
Good luck. I have been taking Enbrel for 3 months. But I started the NSD 3 weeks ago and have been able to do O.K. without it. I am working through my NSD which has been a LSD (low starch diet) on the week-ends. Anyways, I hope it works.
"This is the Day the Lord has made, let us rejoice and be glad in it."
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Joined: Nov 2007
Posts: 6,269
Addicted_to_AS_Kickin
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OP
Addicted_to_AS_Kickin
Joined: Nov 2007
Posts: 6,269 |
Thanks Jorg...I love Enbrel, it did a world of good for me when I was on it and the benefits from it lasted a year after I quit was off it! Good luck with your NSD and LSD...
Age 7- Kidney Necrosis Age 11-Bursitis Age 14-Costo Age 17-Psoriasis Age 32-Thoracic Outlet Syndrome Age 33-Sacroilitis Age 35-Interstitial Cystitis Age 40-AS Age 44-Fibro Age 44-PsA Age 45-MS Age 46-Sjogrens Age 46-Raynauds Age 47-PF
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Joined: Nov 2007
Posts: 6,269
Addicted_to_AS_Kickin
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OP
Addicted_to_AS_Kickin
Joined: Nov 2007
Posts: 6,269 |
Age 7- Kidney Necrosis Age 11-Bursitis Age 14-Costo Age 17-Psoriasis Age 32-Thoracic Outlet Syndrome Age 33-Sacroilitis Age 35-Interstitial Cystitis Age 40-AS Age 44-Fibro Age 44-PsA Age 45-MS Age 46-Sjogrens Age 46-Raynauds Age 47-PF
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Joined: Nov 2007
Posts: 6,269
Addicted_to_AS_Kickin
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OP
Addicted_to_AS_Kickin
Joined: Nov 2007
Posts: 6,269 |
Well, I'm off to see the wizard.... 
Age 7- Kidney Necrosis Age 11-Bursitis Age 14-Costo Age 17-Psoriasis Age 32-Thoracic Outlet Syndrome Age 33-Sacroilitis Age 35-Interstitial Cystitis Age 40-AS Age 44-Fibro Age 44-PsA Age 45-MS Age 46-Sjogrens Age 46-Raynauds Age 47-PF
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Joined: Sep 2001
Posts: 2,192
Major_AS_Kicker
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Major_AS_Kicker
Joined: Sep 2001
Posts: 2,192 |
Thanks for the information Michelle
Steve Orchard, Running from AS & MS
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