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Joined: Aug 2008
Posts: 373
Fifth_Degree_AS_Kicker
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Fifth_Degree_AS_Kicker
Joined: Aug 2008
Posts: 373 |
Wow. That's cool a pill. I hope you have great success on the new medication Michelle. Please keep us posted on how it's working for you!
Kim
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Joined: Apr 2002
Posts: 3,607
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Joined: Apr 2002
Posts: 3,607 |
Michelle, I'm so excited for you! I'll be checking in for your updates. Fingers crossed that this gets you out of your flare. Mind if I ask what indication this trial is for? Psoriasis?
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Joined: Jan 2007
Posts: 2,188
Major_AS_Kicker
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Major_AS_Kicker
Joined: Jan 2007
Posts: 2,188 |
Michelle. That's great. I'm so excited for you. Definitely keep us updated, as I know you will!  Hopefully this will get you out of your flare.
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Joined: Sep 2007
Posts: 2,074
Major_AS_Kicker
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Major_AS_Kicker
Joined: Sep 2007
Posts: 2,074 |
Michelle... How great!!! Do they give you the option of dropping out if you find you are in the placebo group, or if everything stops working? I was offered to go into a trial once, and turned it down because I was in a particularly nasty flare and didn't want to take the chance of getting a placebo. Keep up the fight.
Keep the Faith!
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Joined: Nov 2007
Posts: 6,269
Addicted_to_AS_Kickin
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OP
Addicted_to_AS_Kickin
Joined: Nov 2007
Posts: 6,269 |
Hi Drizz...I'm beginning in Phase 2 of the clinicals, Phase 1 was targeted at psoriasis and Phase 2 will be an increase in dosage and will target inflammatory diseases. I agree with you, I think it will work! 
Age 7- Kidney Necrosis Age 11-Bursitis Age 14-Costo Age 17-Psoriasis Age 32-Thoracic Outlet Syndrome Age 33-Sacroilitis Age 35-Interstitial Cystitis Age 40-AS Age 44-Fibro Age 44-PsA Age 45-MS Age 46-Sjogrens Age 46-Raynauds Age 47-PF  
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Joined: Nov 2007
Posts: 6,269
Addicted_to_AS_Kickin
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OP
Addicted_to_AS_Kickin
Joined: Nov 2007
Posts: 6,269 |
I will definitely keep yall posted Kim, I think this drug is going to have a huge impact on AS, to date, I'm the only participant that has AS.
Age 7- Kidney Necrosis Age 11-Bursitis Age 14-Costo Age 17-Psoriasis Age 32-Thoracic Outlet Syndrome Age 33-Sacroilitis Age 35-Interstitial Cystitis Age 40-AS Age 44-Fibro Age 44-PsA Age 45-MS Age 46-Sjogrens Age 46-Raynauds Age 47-PF
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Joined: Nov 2007
Posts: 6,269
Addicted_to_AS_Kickin
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OP
Addicted_to_AS_Kickin
Joined: Nov 2007
Posts: 6,269 |
Hi Megan, I will be in Phase 2 which targets inflammatory diseases, I'm the AS guinea pig but they had amazing results with Phase 1, which targeted psoriasis and I'm sure it will help mine, my psoriasis gets crazy when I'm going into a flare.
Age 7- Kidney Necrosis Age 11-Bursitis Age 14-Costo Age 17-Psoriasis Age 32-Thoracic Outlet Syndrome Age 33-Sacroilitis Age 35-Interstitial Cystitis Age 40-AS Age 44-Fibro Age 44-PsA Age 45-MS Age 46-Sjogrens Age 46-Raynauds Age 47-PF
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Joined: Nov 2007
Posts: 6,269
Addicted_to_AS_Kickin
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OP
Addicted_to_AS_Kickin
Joined: Nov 2007
Posts: 6,269 |
Oh, I will Sarah...
Age 7- Kidney Necrosis Age 11-Bursitis Age 14-Costo Age 17-Psoriasis Age 32-Thoracic Outlet Syndrome Age 33-Sacroilitis Age 35-Interstitial Cystitis Age 40-AS Age 44-Fibro Age 44-PsA Age 45-MS Age 46-Sjogrens Age 46-Raynauds Age 47-PF
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Joined: Nov 2007
Posts: 6,269
Addicted_to_AS_Kickin
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OP
Addicted_to_AS_Kickin
Joined: Nov 2007
Posts: 6,269 |
Hi Dean, I would complete the study even if I found out that I was getting the placebo, just so the study data would be reliable but I'm pretty sure that I'm going to get the real thing and I'll tell you why...the doctor told me that she was very happy to find someone who has AS to participate in her study.
Age 7- Kidney Necrosis Age 11-Bursitis Age 14-Costo Age 17-Psoriasis Age 32-Thoracic Outlet Syndrome Age 33-Sacroilitis Age 35-Interstitial Cystitis Age 40-AS Age 44-Fibro Age 44-PsA Age 45-MS Age 46-Sjogrens Age 46-Raynauds Age 47-PF
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Joined: Nov 2007
Posts: 6,269
Addicted_to_AS_Kickin
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OP
Addicted_to_AS_Kickin
Joined: Nov 2007
Posts: 6,269 |
Hey James, I'm glad to hear that you're feeling a little better today, I just got back from doing my labs and x-rays for the clinical trials....YEA!!!
Age 7- Kidney Necrosis Age 11-Bursitis Age 14-Costo Age 17-Psoriasis Age 32-Thoracic Outlet Syndrome Age 33-Sacroilitis Age 35-Interstitial Cystitis Age 40-AS Age 44-Fibro Age 44-PsA Age 45-MS Age 46-Sjogrens Age 46-Raynauds Age 47-PF
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