Yes, get a second opinion. The doctor probably is afraid that he made a mistake and is avoiding correcting the problem. Doctors are not invulnerable to fear of incompetence and they will try to bury it. It happens often and they protect each other -- it's an "old boys club." I think that I posted a story about how a surgeon left my mother's arm broken for a year and managed to hide it by manipulating radiology reports. I took her to see a second surgeon and the cat came out of the bag. The second surgeon called the first surgeon and warned him that he had an irate on its way; the fire in me removed all awareness of any illness I had. You should have seen how cooperative the first surgeon was (he must have seen "murder" in my eyes!!). He passed on control of the case to the best surgeon available and her arm was quickly repaired.

On the other hand maybe your surgeon made no mistake but your body is reacting and creating scar tissue that is irritating or choking blood vessels or nerves. Inflammation could even trap nerves and blood vessels. Careful of postoperative infection. Physiotherapy to free up trapped blood vessels or nerves could help.

I have not had surgery but I have a similar head pain problem that developed from major inflammation at the base of the skull and in the cervical vertebra from what I believe to have been the establishment of a chronic infection from a scuba diving accident that happened in August 2013; sea water got into my left inner ear. That weak infection only took an opportunity to penetrate connective tissues that was damaged 22 years earlier with a bad chiropractic manouver. All that combined with a job that deprived me of sleep for a full year after the scuba accident created huge pain and inflammation in the base of the skull. Because of the pain I took NSAIDs that disrupted my microbiome resulting in a dysfuntional immune system and so all Hell broke loose and my whole body became effected for four months with my first full blown AS symptoms! Furthermore, there probably was a set of old stealth infections from wood tick bites that I had been supressing for perhaps 25 years. When it rains it pours!!

The stress of surgury could be your prverbial "straw" that broke the camel's back, yet the surgery went perfect! Something in your whole history might just be taking the opportunity of too much stress on your system.

My head pain is unlike a classic "head ache" or migraine. If I fall asleep on my back I will wake up with pain in the nasal area, the left maxillary sinus, left cheek, jaw, eye orbital, temple, part of the upper skull and the occipital bone in the back of the head. After sitting up upon waking the pain would reduce within half a minute. It doesn't matter if I am awake or asleep. All that matters is that I am lying on my back. Of course if I am awake I do not let the pain build. However if I am asleep it will build and I can wake up wishing I was dead! Some people sleep with a tennis ball tied to their back so that they sleep on their side. I still have the problem but it isn't as intense as it used to be; perhaps because I have trained myself to sleep on my side.

In December an internal medicine doctor suggested that it is trigeminal neuralgia but that could not explain all the symptoms or the quality of the pain. He also suggested "cluster headaches." Wrong!! Doctors need at least an hour of time to listen and think about the whole history and ask questions. Fifteen minutes is not enough.

Something about the posture seems to be putting pressure on blood vessels or nerves in the neck. I dug into the Internet and found an explanation for my case called "false trigeminal neuralgia" in which nerve irritation in the cervical area gets referred up into the trigeminnal nerve creating the head pain.

It grew from chronic low-level inflammation in the spine and in the neck neck tissue. I have had MRIs of my entire spine however I have not had the time to translate it from Chinese. I did have an internist look at the radiology reports and she quickly asked me if I was having numb hands and arms. She was right. She had no time to explain the mechanism to me. I believe that it is stenosis through my whole spine from burning inflammation.

However more of my arms are involved now. All that started back in 2014, went away, then has slowly come back and gotten worse. Neurological symptoms have spread through my whole body and I have a strong feeling that it is stealth infection driven. They create inflammation.

I quit working 14 months ago and I have been poor at disciplining myself to stay physically active. I rapidly declined and that is when it spread from my spine and went into perifrial nerves. Since I believe that there are stealth infections in my body that are driving inflammation and symptoms of AS one hypothesis about how exercise slowed disease progression is as follows:

Running 5 km three times a week was a major benefit. In the age of the internet I imagine everyone knows that regular exercise boosts mitochondria populations. When mitochondria are stressed to produce ATP to carry energy the byproduct is hydrogen peroxide (H2O2). High concentrations of H2O2 in a cell triggers something called a reactive oxygen species cascade (ROS cascade) inside the cells. The combination of H2O2 and ROS is destructive to the cell structures but they are also destructive to pathogens that hide themselves inside body cells. Your body will repair itself from the oxidative damage from H2O2 and ROS but some of the pathogens will die! This is a good natural way to kill stealth infections that antibodies and macrophages can not get at when the microbe hides inside the cell. Also, stealth infection are able to modulate the immune system so that the immune system is unable to use antibodies to tag the cell for destruction that the microbe is hiding inside. Stealth infections are very difficult to detect and eliminate.

Lastly, there are many stealth infections that are associated with fibromyalgia/ME, MS, cancer, CFS, GWI, Lyme disease, Morgellons, etc. As time goes on more and more stealth infections are being found with diseases like the afore mentioned diseases and even some dementia, etc. It is important to get those stealth infections lowered even if they are not the cause. It seems that we can't get rid of them and the evidence is growing that antibiotics are not very effective; perhaps actually more harmful. The best thing to do is strengthen the immune system and not suppress it!

It is possible that stealth infections are innocuous until the opportunity for them to become pathogenic arises because of new colonizations that they synergize with or environmental toxin overload or system disturbance like antibiotic use.

Promote health so there is less need to combat disease.

I hope that this helps.


HLA-B27 neg, vague AS symptoms in 20s and early 30s
1993:fibromyalgia (age 25)
2013.07:Reverse blockage in a SCUBA accident
2013.08:Scratched by a sick cat
2013.09:Strange sore throat then meningitis
2014:Chronic inflammation at the base of the skull
2014 to early 2015:excess NSAID use developed complete axial inflammation, included psoriasis
NSD helped well and but was not perfect
2018.07: weak +'ve tests for borrelia, babesia, bartonella and mycoplasma pneumonia using Armin Lab, ANA=equivocal