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Joined: Sep 2015
Posts: 305 Likes: 2
Fourth_Degree_AS_Kicker
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OP
Fourth_Degree_AS_Kicker
Joined: Sep 2015
Posts: 305 Likes: 2 |
Could this food supplement help us tolerate starch? https://www.healthpost.com.au/good-health-starch-carbo-blocker-starch-neutraliser-ghscb.htmlWould combining it with lactase allow me to enjoy a few pieces of pizza Does anyone have thoughts on this?
HLA-B27 neg, vague AS symptoms in 20s and early 30s
1993:fibromyalgia (age 25)
2013.07:Reverse blockage in a SCUBA accident
2013.08:Scratched by a sick cat
2013.09:Strange sore throat then meningitis
2014:Chronic inflammation at the base of the skull
2014 to early 2015:excess NSAID use developed complete axial inflammation, included psoriasis
NSD helped well and but was not perfect
2018.07: weak +'ve tests for borrelia, babesia, bartonella and mycoplasma pneumonia using Armin Lab, ANA=equivocal
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Joined: Sep 2001
Posts: 6,164 Likes: 13
AS Czar
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AS Czar
Joined: Sep 2001
Posts: 6,164 Likes: 13 |
Sorry, Robin_H:
I wish it were that easy! Not only with this preparation likely cause a flare, but it will not prevent the starches from being a substrate for our nemesis bacterium. In fact it could make matters even worse.
It is fun to experiment and dream...but I would not bet on this horse.
HEALTH,
John
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Joined: Sep 2015
Posts: 305 Likes: 2
Fourth_Degree_AS_Kicker
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OP
Fourth_Degree_AS_Kicker
Joined: Sep 2015
Posts: 305 Likes: 2 |
On a related note, I don't know if I mentioned this in any other thread, buy my experiment with resistant starch in glutenous rice failed. It did not create intense spikes in pain but it took the "cool" out of me.
HLA-B27 neg, vague AS symptoms in 20s and early 30s
1993:fibromyalgia (age 25)
2013.07:Reverse blockage in a SCUBA accident
2013.08:Scratched by a sick cat
2013.09:Strange sore throat then meningitis
2014:Chronic inflammation at the base of the skull
2014 to early 2015:excess NSAID use developed complete axial inflammation, included psoriasis
NSD helped well and but was not perfect
2018.07: weak +'ve tests for borrelia, babesia, bartonella and mycoplasma pneumonia using Armin Lab, ANA=equivocal
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Joined: Feb 2015
Posts: 1
Lurker
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Lurker
Joined: Feb 2015
Posts: 1 |
Arggg. I literally just found out about glutenous rice today. Was hoping for something filling that didn't cause problems. I'll still give it a shot, but if I even look at regular rice I get all sorts of trouble.
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Joined: Sep 2015
Posts: 305 Likes: 2
Fourth_Degree_AS_Kicker
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OP
Fourth_Degree_AS_Kicker
Joined: Sep 2015
Posts: 305 Likes: 2 |
If you live with a number of people you can try making glutenous rice pancakes on one day a week and share the pot with everyone so that you have no leftovers.
I am a bachelor that hates to waste and so I cooked a pot that probably provided more than just breakfast. I was enjoying them in large quantities all by themselves for three or four mornings in a row.
So perhaps a resistant starch can be enjoyed as a BIG TREAT once a week without overdoing it.
So good luck!
May the starch be with you!
HLA-B27 neg, vague AS symptoms in 20s and early 30s
1993:fibromyalgia (age 25)
2013.07:Reverse blockage in a SCUBA accident
2013.08:Scratched by a sick cat
2013.09:Strange sore throat then meningitis
2014:Chronic inflammation at the base of the skull
2014 to early 2015:excess NSAID use developed complete axial inflammation, included psoriasis
NSD helped well and but was not perfect
2018.07: weak +'ve tests for borrelia, babesia, bartonella and mycoplasma pneumonia using Armin Lab, ANA=equivocal
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Joined: Jan 2018
Posts: 13
New_Member
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New_Member
Joined: Jan 2018
Posts: 13 |
Robin - are you going to put five each way on this horse?
HLA B27 +ve. Localised pain in SI joints, lumbar and thoracic spine. No swelling. Eyes OK, peripheral joints OK. NSAID usage from 2005 to 2018, meloxicam.
Least favourite saying: No Pain No Gain.
2005 - Diagnosed after two years of debilitating SI pain, early 20's
2017 - Waitlist for rheumatologist in Ireland=14-months
2018 - Seeking alternatives
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Joined: Sep 2015
Posts: 305 Likes: 2
Fourth_Degree_AS_Kicker
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OP
Fourth_Degree_AS_Kicker
Joined: Sep 2015
Posts: 305 Likes: 2 |
I am going to try my suggestion myself by going out for just one bowl of hot and dry noodles as a morning breakfast on Saturday mornings only. The pain and inflammation flare wont have time to build the intensity as it would if I ate three bowls in the morning four days in a row. Cooking starchy meals at home provides too much opportunity to cheat -- I'm addicted to chocolate, coffee and nuts, and starch is just a cheap substitute.
HLA-B27 neg, vague AS symptoms in 20s and early 30s
1993:fibromyalgia (age 25)
2013.07:Reverse blockage in a SCUBA accident
2013.08:Scratched by a sick cat
2013.09:Strange sore throat then meningitis
2014:Chronic inflammation at the base of the skull
2014 to early 2015:excess NSAID use developed complete axial inflammation, included psoriasis
NSD helped well and but was not perfect
2018.07: weak +'ve tests for borrelia, babesia, bartonella and mycoplasma pneumonia using Armin Lab, ANA=equivocal
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