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Jan 16th, 2023
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If you want to use this QR code (Quick Response code) just save the image and paste it where you want. You can even print it and use it that way. Coffee cups, T-Shirts etc would all be good for the QR code.
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Joined: Jan 2012
Posts: 419
Black_Belt_AS_Kicker
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Black_Belt_AS_Kicker
Joined: Jan 2012
Posts: 419 |
Link to an article on today FMT on the BBC http://www.bbc.co.uk/news/magazine-27503660x
NSD almost all the way
No dairy hard cheeses occasionally and homemade ghee
Still trying to work out what makes me tick and what makes me drop
'Chew your drinks and drink your foods'
'Let your knife & fork do the work of your teeth and let your teeth do the work of your stomach'
Mahatma Gandhi
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Joined: Sep 2013
Posts: 104
Journeyman_AS_Kicker
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Journeyman_AS_Kicker
Joined: Sep 2013
Posts: 104 |
Parasitic worms of pigs could provide new treatments of human diseases New treatments for inflammatory bowel disease, rheumatoid arthritis, multiple sclerosis, diabetes and autism could be on the horizon, after a global University of Melbourne-lead study successfully mapped the genes of a parasitic worm in pigs http://www.eurekalert.org/pub_releases/2014-06/uom-pwo061214.php
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Joined: Sep 2013
Posts: 104
Journeyman_AS_Kicker
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Journeyman_AS_Kicker
Joined: Sep 2013
Posts: 104 |
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Joined: Jan 2012
Posts: 419
Black_Belt_AS_Kicker
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Black_Belt_AS_Kicker
Joined: Jan 2012
Posts: 419 |
A link to someone's blog about their visit to the Taymount clinic in the UK to heal her leaky gut. http://dysbiosis.tumblr.com/x
NSD almost all the way
No dairy hard cheeses occasionally and homemade ghee
Still trying to work out what makes me tick and what makes me drop
'Chew your drinks and drink your foods'
'Let your knife & fork do the work of your teeth and let your teeth do the work of your stomach'
Mahatma Gandhi
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Joined: Jan 2009
Posts: 313
Fourth_Degree_AS_Kicker
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Fourth_Degree_AS_Kicker
Joined: Jan 2009
Posts: 313 |
Just an update for everyone. Here is what I've undergone:
1) 5 day FMT treatment after 2 week antibiotics
2) Took prednisone during a flare, and it either messed up the gut flora, or as my rheumy guessed, it could have overfed a yeast culture that destroyed the good bacteria.
3) Went through a couple more FMT treatments and went home with new capsule form.
4) Symptoms did improve 50-60%. I was down to only one flare per month (2-3 days), and this always surrounded menstruation. If I didn't have a period, I'd probably have no flares at all.
5) I did another round of FMT capsules.
Results: I'm still flaring during periods, and my last x-rays definitely showed progression of AS. Not terrible, but enough to make my rheumatologist say, "Get back on biologics or try the new Otezla."
I'm trying to determine now what direction to go. I could keep suffering just once a month, but I'm worried about my spine. I really wish this had been the cure, but in my best guess, it would need continued treatment to really heal the gut and keep the good bacteria winning. I think for some reason, the good bacteria can't seem to thrive in my gut (despite a careful diet).
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Joined: Jan 2008
Posts: 21,346 Likes: 2
Very_Addicted_to_AS_Kickin
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Very_Addicted_to_AS_Kickin
Joined: Jan 2008
Posts: 21,346 Likes: 2 |
lindyap, sorry this hasn't been the treatment you were hoping it would be. 
sue
Spondyloarthropathy, HLAB27 negative
Humira (still methylprednisone for flares, just not as often. Aleve if needed, rarely.)
LDN/zanaflex/flector patches over SI/ice
vits C, D. probiotics. hyaluronic acid. CoQ, Mg, Ca, K.
chiro
walk, bike
no dairy (casein sensitivity), limited eggs, limited yeast (bread)
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Joined: Dec 2013
Posts: 169
First_Degree_AS_Kicker
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First_Degree_AS_Kicker
Joined: Dec 2013
Posts: 169 |
Has anybody ever made an attempt to clear SIBO, candida, biofilms before an FMT?
I'm attempting to rid myself of all of those problems over the next 6-9 months. I'm also taking abx(which causes candida) for 5 more months. My plan is to start with a "clean slate" and then do an FMT afterwards but would love to know if anybody else has done/heard anything similar?
re:Lindyap. Did your rheumy or anyone else explain why they chose to use antibiotics prior to treatment? All of the clinics I look into do the same but I can't make sense as to why. Can we not assume that the abx will make it tougher for the probx(fmt) to colonize? Maybe they want a "clean slate" as well? But what are they attacking with that abx? Do you know which kind of abx you used?
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Joined: Jul 2001
Posts: 3,334
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Joined: Jul 2001
Posts: 3,334 |
Fecal transplants just got easier to swallow. The procedure, in which the bacteria from a healthy gut are implanted into an unhealthy one, has gotten a lot of buzz over the past year. But the treatment generally requires a colonoscopy — a procedure that's both uncomfortable and expensive.
In a study published Saturday in the Journal of the American Medical Association, researchers report that the same success rate can be reached by processing the healthy excrement into capsules and administering the pills by mouth. But several companies are working on commercializing encapsulated fecal donations (or trying to create cocktails of bacteria that have the same effect on a patient's gut), and they're banking on wider uses eventually coming to light — and getting FDA approval. "The human microbiome is just an exploding area of science," Hohmann said, "and we're still figuring out what we might do with these communities of bacteria."
Other diseases of the gut like inflammatory bowel syndrome and Crohn's disease are next at bat. But theoretically, FMT could even be used to treat obesity.
Timo 
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Joined: Jan 2012
Posts: 419
Black_Belt_AS_Kicker
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Black_Belt_AS_Kicker
Joined: Jan 2012
Posts: 419 |
Hi,
I have read that if you have SIBO a 'pill' is not the way to go, bottom up is better as it doesn't make it as far the small intestine.
x
NSD almost all the way
No dairy hard cheeses occasionally and homemade ghee
Still trying to work out what makes me tick and what makes me drop
'Chew your drinks and drink your foods'
'Let your knife & fork do the work of your teeth and let your teeth do the work of your stomach'
Mahatma Gandhi
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