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Jan 16th, 2023
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Joined: Feb 2011
Posts: 1,968
Captain_AS_Kicker
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OP
Captain_AS_Kicker
Joined: Feb 2011
Posts: 1,968 |
Yes, we both feel like screaming our bloody heads off!
Michelle went back into the I.C.U. as her fever went back up past 104 because of the Pseudomonas is out of control. She said she feels like death warmed over.
I am on my way to the hospital too. Can't get over the pain, sleeplessness and depression. I won't have a cell phone or computer so family, pray for us and you will hear from us when we can make it back on. Love you guy,s
Pea
Diagnosed with A.S. 29 year's ago.
Diagnosed with Fibro 10 year's ago.
Remicade, Intrathecal Pain Pump 2013
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Joined: Nov 2001
Posts: 18,186 Likes: 7
Very_Addicted_to_AS_Kickin
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Very_Addicted_to_AS_Kickin
Joined: Nov 2001
Posts: 18,186 Likes: 7 |
White light and loving coming to you both!
Look after yourself, do what you need to do right now, we'll be here when you can get back to update us again.
Love and hugs,
Kat
A life lived in fear is a life half lived.
"Strictly Ballroom"
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Joined: Jan 2010
Posts: 2,105
Major_AS_Kicker
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Major_AS_Kicker
Joined: Jan 2010
Posts: 2,105 |
Vibes going out for both of you, and hope things turn the corner very soon.
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Joined: Nov 2003
Posts: 8,190
Very_Addicted_to_AS_Kickin
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Very_Addicted_to_AS_Kickin
Joined: Nov 2003
Posts: 8,190 |
Im so sorry! Have been keeping you both in our thoughts and prayers...I know some days has to feel hopeless but you both can do it even if minute by minute and we are all here to help!
Hugs!
Speak kindly, Live simply, Care deeply, Love generously, and BLAH, HA, HA, LOUDLY! every chance you get.
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Joined: Jul 2010
Posts: 1,191
Steel_AS_Kicker
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Steel_AS_Kicker
Joined: Jul 2010
Posts: 1,191 |
I will be praying for Michelle and Pea, keep us posted. Thanks for the updates.
Pea, Sorry to hear you are having a bad time, take care.
Diet change has improved my RA. I feel best eating raw veggies and some fruits and avoiding grains, sugars, nightshades, beans and dairy. Sed rate dropped from 65 to 19, but it took over a year. www.fatsickandnearlydead.com excess fat/oils = pain for me recipes for raw food on Youtube "raw food romance" and "healing josephine" Josephine is in remission from RA after two years by change diet/exercise
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Joined: Jan 2004
Posts: 9,848 Likes: 6
Very_Addicted_to_AS_Kickin
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Very_Addicted_to_AS_Kickin
Joined: Jan 2004
Posts: 9,848 Likes: 6 |
Pea - Praying for both Michelle and yourself. Pulling for you both - 
MollyC1i - Riding OutAS
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Joined: Feb 2011
Posts: 1,968
Captain_AS_Kicker
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OP
Captain_AS_Kicker
Joined: Feb 2011
Posts: 1,968 |
Thank you all so very much! Found out today that you have to be suicidal or homicidal to be admitted to the hospital for depression or panic now! I am neither but close to homicidal. I have had 3 psych evals now and they go through the whole 4 hour rigamarole of asking you all of this stuff and then they finally tell me today, you have to be suicidal or homicidal. I heard that recently but didn't want to believe it until I found it out for sure. I think I have followed down every thing I could possible do to help myself now. So I will be at home for now and trying to figure it out.
Michelle feels better now that she is back in the I.C.U. but darn it anyway, the girl wants her own bed. So I will fill you guys again...
Pea
Diagnosed with A.S. 29 year's ago.
Diagnosed with Fibro 10 year's ago.
Remicade, Intrathecal Pain Pump 2013
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Joined: Nov 2008
Posts: 1,970
Captain_AS_Kicker
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Captain_AS_Kicker
Joined: Nov 2008
Posts: 1,970 |
Thanks Pea for the updates on Michelle. Hope her fever goes down and stays there.Take care of yourself in the process. Hope you can get things figured out soon. Keeping you and Michelle in my thoughts and prayers. 
I can not defeat you but I will not let you win
Jeff
Degenrative disc disease 2005
AS 2008 HLA-B27-
Fibromyalgia 2010
Disability 2012
Back to work part time 2013
Enbrel, Cymbalta,Oxycodone, blah blah blah blah
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Joined: Dec 2010
Posts: 456
Warrior_AS_Kicker
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Warrior_AS_Kicker
Joined: Dec 2010
Posts: 456 |
So sorry Pea - hope you get your pain, depression and sleep improved. Please stay strong for us, we need you!! Just keep doing everything you can each day to be a healthier person. And just remember flares usually come in waves so it will improve.
And poor Michelle with her lingering infection. Glad to hear she is in better hands in the ICU. Hope she can kick it soon so she can go back to her normal room. Sending well wishes to you Pea and Michelle.
Shari
Meds -Hizentra, leflunomide, Prednisone
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Joined: Sep 2011
Posts: 174 Likes: 4
First_Degree_AS_Kicker
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First_Degree_AS_Kicker
Joined: Sep 2011
Posts: 174 Likes: 4 |
Where your mind goes your life follows
HLA-B27+
Dx'd 2011
manage with diet and supplements
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