Hello Jeanne
Everything that happens in life changes you, including living with AS. You have to learn to accept and change your attitude (not always an easy task). And you have to learn to stop feeling guilty about things. Your husband could feel he has spoilt your life together in the same way that I feel I spoilt my son's life by passing on this gene.
He sounds depressed - a common side effect of chronic pain.
He has a lot to put up with - pain and frustration, depression and guilt.
I think it might help him cope with his feelings if he came here more often and read how others struggle. This site gives so much support. And when you read what people achieve it is so encouraging.
I hope he starts to feel a little better and that together you build a life that you both enjoy.
He is so lucky to have such a supportive and caring partner.
