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Joined: Jan 2012
Posts: 210
D
Didier Offline OP
Second_Degree_AS_Kicker
OP Offline
Second_Degree_AS_Kicker
D
Joined: Jan 2012
Posts: 210
When I was posting regularly in 2011-2012 this forum was quite active. Any ideas why the activity seems to have died down now? Is there a different place online where those afflicted with AS discuss topics?

Joined: Mar 2002
Posts: 9,522
Offline
Joined: Mar 2002
Posts: 9,522
Hello Didier,

Yes it is now slower... unsure of the reasons, but I also check in less often, but trying to come back more often.

This is a great place that changed my life and will be forever thankful for the support and knowledge gained here.

Keep on kicking!

Tim


AS may win some battles, but I will win the war.

KONK - Keep ON Kicking
Joined: Oct 2008
Posts: 758
Magical_AS_Kicker
Offline
Magical_AS_Kicker
Joined: Oct 2008
Posts: 758
There was a similar discussion recently on the decline in forum participation on the SAA forum - http://forums.spondylitis.org/ubbthreads.php?ubb=showflat&Number=282860#Post282860

One of the reasons is likely Facebook groups. There are two main AS Facebook groups, one with 27k members and the other 19k.

Joined: Jan 2019
Posts: 20
T
New_Member
Offline
New_Member
T
Joined: Jan 2019
Posts: 20
KickAS is unmatched in the depth of information and format. I have directed members of the facebook group here. This forum is much better for serious solution finding..

Joined: Jun 2010
Posts: 3,861
Royal_AS_kicker
Offline
Royal_AS_kicker
Joined: Jun 2010
Posts: 3,861
I've been less active for the past 3 years since I went back to school and was in a good remission. I'm still in school. Peace, Erica


ANA+ RF+ Rh- HLAB27+
Dx JRA 1967, GAD 1997, AS 2009, HMs 2010, CPS 2013
pulmonary edema w/ NSAIDS 2009

Movin' it so I don't lose it!

Joined: Jan 2017
Posts: 195
K
First_Degree_AS_Kicker
Offline
First_Degree_AS_Kicker
K
Joined: Jan 2017
Posts: 195
I dont think it helps that in the NSD forum new posters are often greeted by posts telling them the starch-free diet is just 'witchcraft and mumbo jumbo'.

This was the greeting I got, and it was a horrible welcome to what I had hoped would be an encouraging and supportive community. Those kinds of posts surely discourage new posters from sticking around. They also violate the forum's osting guidelines, but mods do nothing. I eventually get annoyed by the lack of action (any other forum would have banned such posters long ago) and leave the site for long periods to go fight this battle on my own.


Suspected USpA. HLA B27, xray, u/sound, blood tests all -ve. Ancient history of plantar fasciitis, SI joint pain, knee arthritis. Recent history of tendinitis, neck pain, debilitating finger pain and stiffness (especially mornings). No diagnosis, no meds.

2010 - stopped eating dairy
2012 - stopped eating wheat
2014 - stopped eating all grains
Jan 2017 - discovered NSD - 98% improvement in symptoms, continually amazed by my results, wish I'd found kickAS sooner
Joined: Mar 2002
Posts: 9,522
Offline
Joined: Mar 2002
Posts: 9,522
Hello Kelly,

Many, many years ago there was not a separate diet forum, that created a lot of heated exchanges regarding diet issue.

The diet forum was created to reduce those types of exchanges... it helped to reduce, but it cannot eliminate entirely.

Hopefully you have found the encouragement you need, I have been on the diet since 2002 with very good results and know many others with similar experiences. On the other hand, know several for whom the diet has not worked.

Hope everyone that comes to Kickas finds the solutions they need.

Regards,

Tim


AS may win some battles, but I will win the war.

KONK - Keep ON Kicking
Joined: Sep 2001
Posts: 3,412
L
Imperial_AS_Kicker
Offline
Imperial_AS_Kicker
L
Joined: Sep 2001
Posts: 3,412
I’m still here! Since late 90s. But I do check in less often now. However KA was and is a lifesaver for me!! And these forums have great info and discussions. Many of our old guard who were here every day have passed away, and I miss them.
Remember, you all rock, keep your hopes up and keep Kicking!!
Peace
Linc


Linc O'Brien
Joined: Sep 2001
Posts: 6,389
Addicted_to_AS_Kickin
Offline
Addicted_to_AS_Kickin
Joined: Sep 2001
Posts: 6,389
I pop in on occasion. It has been a few years though. I keep up with a lot of kickers on Facebook or in real life.

It has been almost 20 years since I found you guys. Place really was hopping back then. We had so much fun on here and the many, many gatherings that Eric and myself attended.


"You will find as you look back upon your life that the moments when you have truly lived are the moments when you have done things in the spirit of love........."



Joined: Sep 2001
Posts: 457
O
Warrior_AS_Kicker
Offline
Warrior_AS_Kicker
O
Joined: Sep 2001
Posts: 457
Still kicking, don't look in very often. Don't see many of the names from way back. JR

Last edited by Oldtimer; 06/12/19 12:19 AM.
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