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Joined: Nov 2017
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Originally Posted By Mar2018
Oi MattR. Gostaria de fazer a dieta livre de amido restrita. Somente proteína, gordura e vegetais. Mas tenho tido problemas de constipação intestinal. Uma alternativa seria incluir frutas pois tem fibras. Mas tenho problemas com frutose. Como você lida com isso? Att Márcia.c.s.a


Translated: Hi MattR. I would like to make the starch-free diet restricted. Only protein, fat and vegetables. But I have had problems with bowel constipation. An alternative would be to include fruit as it has fibers. But I have problems with fructose. How do you deal with it? Att Márcia.c.s.a

Hi Marcia,
You may want to try porridge made from ground flaxseed meal. It's all fiber.

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Doc said Humira and other med options would no longer work and to try diet.i met with a nutrionalist who is an integrative medicine person and after a year of major blood tests, other tests and supplements as well as significant dietary changes I am pain free and drug free.

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WELCOME, JoniL:

CONGRATULATIONS, on finding the best treatment for AS--and especially sticking with it!

It is always gratifying to hear from people along their journey of making this disease into an inconvenience, instead of a career.

Continued great
HEALTH,
John

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Welcome JoniL!
I'm happy you've found success.
I have an update on my son's condition. He's been on NSD for about 2 months with a few slip ups and flares and moments of wondering if this would work. We finished our wheat harvest and during those three weeks all of us were eating basically what he eats on the NSD. Last week he finally got in to see a Functional Medicine Doctor which was a Godsend. She tweaked the diet only a little and had some recommendations and after only a week on the probiotics she recommended, he is virtually pain free. First time since we started this journey! He cancelled the followup appointments with the rheumatologist. That was the guy that pushed for drugs and weekly injections. I'm so glad we found this diet and this forum, something that wouldn't have been possible before the internet.

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I went on the no starch diet early on. I had known the exact moment I got AS and confirmed it within the year via MRI. I find great success with not having starch. I also have added to this something even more which is proven disease reduction through a minimum of 4.55 / fish oil daily instead of the usual 1-1.5

Unfortunately, I am out of time for writing my post. In the future, I have a pretty comprehensive diet strategy that has worked out flawlessly for the Ankylosing Spondylitis people I know and myself.


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NSAIDs really do make it worse. Have you considered pineapple enzymes which are a COX2 inhibitor? You can include this with each meal, one tablet and see if he feels like he can reduce his NSD.


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Originally Posted By tiredAS
NSAIDs really do make it worse.



NSAIDs. certainly don't work for everyone but they definitely work for me. In fact they work for most A.S. patients. It may take several attempts to find the one that works best for some patients. Just go to a rheumatology outpatient clinic and ask the A.S. patients there if they get any benefit from NSAIDs. I bet you the majority will tell you they do get relief from taking NSAIDs.

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I'm not saying NSAIDs don't work. I had help from NASAIDs for the month but at the cost of my bones feeling different, making cricky-boo sounds and my gut changing. I felt like I was very borderline with AS prior and taking them for that month threw me over the edge into full AS. I switched within a month to other options and balance.

I found my solutions to be effective. I keep to pineapple enzyme (COX-2 inhibitor) for each meal. I focus on meat, mostly fish, with a steak on a Friday night and high quantity good fats which mostly come from avocados for me, plus (minimum of 4.55 mg in fish oil each day like the Alaskan Inuit diet). I include onions, garlic and asparagus in every meal that I can include it. My solution was an extreme amount of broccoli when I get too hungry or need to eat out. There is something about the stems that completely help.

When I do eat a pizza or starch, I listen to my body better than most people and will notice a fever within the hour, plus other reactions that indicate to me that starch is playing a role. I don't bother with starch. I'll use coconut flour or almond flour when needed.

I had huge success with turmeric -- but -- I stopped because I had very high levels of copper in my blood from the product. Do you know of any products that don't contain copper? I have not been able to solve this aspect.


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Originally Posted By trying2help


these guys are 'Robin Hoods' unlike the NHS who are Hoods charging for medical cannabis £2,500 for 3 months supply I read last week in the Daily Mail,



The Daily Mail is the last newspaper in the world you should take any notice of. When people say "don't believe everything you read in the newspapers" what they should add to that is "especially the Daily Mail".

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Hello, sexyAS:

Instead of turmeric, EVOO constantly and borage seed oil (GLA) that should equal about 1g effective GLA per 100#s body weight is very effective and has enough anti-inflammatory properties to replace most NSAIDs.

Because You notice a problem with starches in only one hour, I think that SIBO must play a major role and credit elimination of this to my current tolerance level for starches.

HEALTH,
John

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