Now what? - 07/04/12 04:24 AM
I seem to be running out of treatment options. Does anyone have any suggestions?
I started treatment with Enbrel a few years back. It worked wonders on my pain. Sadly, it had no effect on the AS itself, which spread rapidly hidden under the pain relief of the Enbrel. Only because my specialist used me as a test subject for his students was it discovered that the AS now is present in the eyes, intestines and all major joints and possibly all minor joints too. Everywhere they checked the inflammation was now present. On my file it says AS poly arthritis global.
I was then put on Humira, which did have some effect on the AS but did nothing to help with the pain.
I have now been put back on Enbrel and topped with Methotrexate. The effect is marked on pain but seemingly had no effect on the AS.
Even with the improved pain relief from being back on Enbrel, I stil use 30mg Norspan, 2 x 20/10 Targin, 2 x 200 Celebrex daily and 5-10 or 20 mg Endone for spikes.
I am still doing my exercises and stretches.
What else is there out there that people had success with when it comes to a really aggressive AS? The annual x-ray ha showed what the specialist describes as "Explosive development" despite being on these normally good drugs.
I've tried the No Starch Diet which had no effect what so ever other than a welcome weightless.
Can the AS be uncontrollable?
Cheers
I started treatment with Enbrel a few years back. It worked wonders on my pain. Sadly, it had no effect on the AS itself, which spread rapidly hidden under the pain relief of the Enbrel. Only because my specialist used me as a test subject for his students was it discovered that the AS now is present in the eyes, intestines and all major joints and possibly all minor joints too. Everywhere they checked the inflammation was now present. On my file it says AS poly arthritis global.
I was then put on Humira, which did have some effect on the AS but did nothing to help with the pain.
I have now been put back on Enbrel and topped with Methotrexate. The effect is marked on pain but seemingly had no effect on the AS.
Even with the improved pain relief from being back on Enbrel, I stil use 30mg Norspan, 2 x 20/10 Targin, 2 x 200 Celebrex daily and 5-10 or 20 mg Endone for spikes.
I am still doing my exercises and stretches.
What else is there out there that people had success with when it comes to a really aggressive AS? The annual x-ray ha showed what the specialist describes as "Explosive development" despite being on these normally good drugs.
I've tried the No Starch Diet which had no effect what so ever other than a welcome weightless.
Can the AS be uncontrollable?
Cheers