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Joined: Sep 2001
Posts: 1,432
Silver_AS_Kicker
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OP
Silver_AS_Kicker
Joined: Sep 2001
Posts: 1,432 |
Thanks Lori,
That is GREAT news about Eric. How did you know that he would do ok without the med. Did the doc just decide to try him without the med? Did he go off slowly or "cold turkey"?
Betty (The Energizer Bunny)
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Joined: May 2002
Posts: 406
Black_Belt_AS_Kicker
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Black_Belt_AS_Kicker
Joined: May 2002
Posts: 406 |
Always great to hear wonderful news. Gives us all uplifting information. You go girl!!!
Allison
Allison 
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Joined: Apr 2002
Posts: 3,739
SENSational_AS_Kicker
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SENSational_AS_Kicker
Joined: Apr 2002
Posts: 3,739 |
Hi Betty
Good news indeed !!!!!
Are there side effects ?
I don't know anything about Enbrel - now I am ashamed because I should have asked Lori all about it.
If it is this good - I'm sure a lot of us will be asking questions at our next dr. visits.
Hope you continue to do well
Take Care
Maggie
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Joined: Sep 2001
Posts: 1,432
Silver_AS_Kicker
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OP
Silver_AS_Kicker
Joined: Sep 2001
Posts: 1,432 |
Thanks Allison and everyone. I too love to hear when something works for my AS friends. We will kick this one day at a time.
Betty (The Energizer Bunny)
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Joined: Sep 2001
Posts: 1,432
Silver_AS_Kicker
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OP
Silver_AS_Kicker
Joined: Sep 2001
Posts: 1,432 |
Enbrel is a DSAID instead of a NSAID
Side effects have been reported.
I have had only minimal problems. Still unsure if they were Enbrel related. None the less, I do not experience side effects at the present time.
It is hard to get insurance to pay and it is very expensive.
Enbrel has had a delay in production......it will not be available to new people until next year at the earliest.
Take care
Betty
Betty (The Energizer Bunny)
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Joined: Sep 2001
Posts: 6,391 Likes: 1
Addicted_to_AS_Kickin
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Addicted_to_AS_Kickin
Joined: Sep 2001
Posts: 6,391 Likes: 1 |
Hi Betty Erics Rhuemy decided to take him off the medicine. I was more than a little nervous, but it was worth it. Eric was on one half shot 2X a week. One shot total per week. He is a small child, and when he had the full dosage he would get ear infections, or a cold. So the doctor reduced the intake by half and he never had another problem. He just stopped cold turkey, and we have never looked back....... Some people here gave me reason to think before I put him on Enbrel, and that was a real good thing because it made me do even more research than I proberly would of, but as far as I am concerned......It was the best thing that I could of done to give him back his childhood. Good luck to you Lori  
"You will find as you look back upon your life that the moments when you have truly lived are the moments when you have done things in the spirit of love........."   
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Joined: Sep 2001
Posts: 1,432
Silver_AS_Kicker
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OP
Silver_AS_Kicker
Joined: Sep 2001
Posts: 1,432 |
That is great. I'm so happy for Eric. I hope this med can do the same for everyone.
Betty (The Energizer Bunny)
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Joined: Sep 2001
Posts: 1,432
Silver_AS_Kicker
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OP
Silver_AS_Kicker
Joined: Sep 2001
Posts: 1,432 |
Thanks Angie....
I wish everyone relief with AS. Looking forward to meeting you in Dallas.
Betty (The Energizer Bunny)
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Joined: Sep 2001
Posts: 167
First_Degree_AS_Kicker
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First_Degree_AS_Kicker
Joined: Sep 2001
Posts: 167 |
Betty that is just wonderful, I was on E for 2 years or more I felt so good I couldn't belive it. My liver enzymes elevated and the doc could not figure it out so I had to go off the E. I miss it I still have a box of 24 in the fridge and am tempted to take it and damn the liver I don't even know if that was the cause, and neither does the doc. As soon as my enzyms go back down I am going to hit the needle!!! LOL. I hope everything stays good for you. All the best. Peace. Rose
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Joined: May 2002
Posts: 314
Fourth_Degree_AS_Kicker
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Fourth_Degree_AS_Kicker
Joined: May 2002
Posts: 314 |
Betty,
You go girl. Anyone who is doing well and feeling good is great news. Keep your spirits up and continue forward. Good luck in the future.
Rickey
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