banners
Kickas Main Page | Rights and Responsibilities | Donate to Kickas
Forum Statistics
Forums29
Topics43,791
Posts518,790
Members13,830
Most Online1,568
Jun 29th, 2016
Newest Members
Tanner, Marydoll, Rogeroyer, Michal, GreenCloud
13,830 Registered Users
KickAs Team
Administrator/owner:
John (Dragonslayer)
Administrator:
Melinda (mig)
WebAdmin:
Timo (Timo)
Administrator:
Brad (wolverinefan)

Moderators:
· Tim (Dotyisle)
· Chelsea (Kiwi)
· Megan (Megan)
· Wendy (WendyR)
· John (Cheerful)
· Chris (fyrfytr187)

QR Code
If you want to use this QR code (Quick Response code) just save the image and paste it where you want. You can even print it and use it that way. Coffee cups, T-Shirts etc would all be good for the QR code.

KickAS QR Code
Previous Thread
Next Thread
Print Thread
Joined: Dec 2020
Posts: 2
ath0119 Offline OP
New_Member
OP Offline
New_Member
Joined: Dec 2020
Posts: 2
Hello,

I’m new here. I did a search on this topic and didn’t find what I was looking for so I thought I’d give it a try.

I’ve had guttate psoriasis since I was 4 yo (I’m 52 now). Hospitalized 2x during childhood/adolescence. For most of my life it has covered 80% of my body. Summertime and Light therapy were the only things that really got me close to remission.

I had lower back pain on and off over the years but shrugged it off to running. Fast forward to 2017. Woke up one morning and could barely move. Took forever to get out of bed I was so stiff and sore. Soaked in epsom baths just to be able to get dressed. Went to GP who did blood work and diagnosed me with polymyalgia rheumatic based on high sed rate (90+) and CRP. Started me on prednisone. I was skeptical of dx so went to rhuemy who confirmed it. Prednisone helped some with pain but not all. After 1.5 years I was still feeling badly so went to the Mayo Clinic here in MN. After rhuemy saw me struggle getting off table he ordered MRI. Confirmed bilateral sacroilitis and dx AS. I’ve been on Humira for 2 years. Psoriasis completely gone for first time in my life. Pain in neck and back improved but still get pretty bad flares under stress. Just discovered NSD so going to try that.

Now for my question: has anyone here been diagnosed with psoriasis at such a young age and then gone on to develop AS? My rhuemy at Mayo said the inflammation in SI is chronic so it’s been around a while. No one has mentioned the HLA-B27 test, not even Mayo.

I would love to hear from anybody with some insight.

Thanks,
Angela

Joined: Nov 2001
Posts: 18,139
Likes: 4
Very_Addicted_to_AS_Kickin
Offline
Very_Addicted_to_AS_Kickin
Joined: Nov 2001
Posts: 18,139
Likes: 4
Hi Angela,

My husband has always had psoriasis, as long as he can remember. He was diagnosed with psoriatic arthritis (a close cousin of AS) in his 50s. He also lives with back pain, but it's hit his wrists very badly and they have fused. The result has been a wicked golf shot that goes perfectly straight down the fairway, but that's about the only benefit.

With bilateral sacroilitis, they may have felt that the HLA-B27 test was unnecessary. That's pretty classic AS.

The NSD may help. I went low/restricted starch until the last year or so. Then my husband became ill and I needed to simplify because I didn't have the energy not to. So, I started eating wheat again, mainly because it was one less aisle to go down at the grocer. Not smart, but now I've also been diagnosed with Crohn's disease (last June) and that's in treatment, so wheat isn't the issue it used to be. My biologic has recently been switched to adalimumab (Humira) and for the first time in ten years, my whole body has calmed, just this past week or two.

We do continue to flare, even on biologic meds. Make sure you are stretching and doing range of motion exercises, just to keep things moving.

There aren't many of us here, these days, from when I joined in 2001, but the information is good. And there are people here who know different things than I do. You're in good company.

Warm hugs,


Kat

A life lived in fear is a life half lived.
"Strictly Ballroom"

Joined: Sep 2001
Posts: 967
Superior_AS_Kicker
Offline
Superior_AS_Kicker
Joined: Sep 2001
Posts: 967
Most of my life I have had dry skin- with burning elbows with lumps and redness about six years ago I was DX with psoriasis by a dermatologist. She recomened CeraVe Moisturizing Lotion. After using the lotion for several months psoriasis on legs and elbows have disappeared and no lumps under skin can be found. I have now used this for six years. It worked for me.


Link Copied to Clipboard
Who's Online Now
0 members (), 39 guests, and 66 robots.
Key: Admin, Global Mod, Mod
Recent Posts
Uveitis
by Missalicia - 05/25/22 05:38 AM
New recipe website from Janneke
by DragonSlayer - 05/10/22 05:03 PM
Looking for help dealing with Heartburn
by Magician - 03/11/22 11:15 PM
Uveitis again and I miss you guys!
by Magician - 01/20/22 05:14 AM
Electromyography (EMG) test
by Magician - 10/01/21 04:03 AM
Where did all the AS kickers go? :)
by Didier - 05/17/19 01:06 PM
Low dose naltrexone, anyone try it?
by lulu12 - 07/10/13 09:45 PM
Popular Topics(Views)
3,172,505 hmmm
1,235,565 OMG!!!!
641,126 PARTY TIME!
Powered by UBB.threads™ PHP Forum Software 7.7.5
(Release build 20201027)
Responsive Width:

PHP: 5.5.38 Page Time: 0.017s Queries: 20 (0.005s) Memory: 3.1684 MB (Peak: 3.5321 MB) Data Comp: Zlib Server Time: 2022-05-28 05:13:29 UTC
Valid HTML 5 and Valid CSS