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Frederick
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Originally Posted By Duncan


The trouble in my case is - I'm trying all sorts if something works , how am I to know what.



One step at a time my friend one step at a time. I suppose that should be one new treatment at a time.

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Fred ? excuse being familiar - first let me say thank you very much - you are the very first person ever -EVER to reply to any post I have written. - Blessings on you.
I'm in a hurry and I really don't like my new bed partner. (A.S) whats good for you , may not be for me!
I'm going to gobble up those anti bio's (because I think the guys honest ) I'm going to continue with extreme Rife - (because I find its working) I'm going to try and ramp it up!- for everyone
Fred - I see it as a war pure and simple . I have engaged ! there are no half measures I can see. slow slow -quick guick -slow -- This [*bleep*] has been calling the tune for to long -- far to long
well I guess thats just IMHO - Thank you for a reply ! My kindest regards Duncan

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L33 Offline OP
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Hi Duncan and best of luck to you....

I too was desperate for a cure since I can hardly walk these days and I am only 34 years old! My AS started at the age of 13 in my SI joints but after steriod injections I never suffered again with my lower body.

And for many years my AS was dormant.

The last 5 years my AS was very active with my CRP staying in the high 40mg/l I have tried numerous things over the years researching and researching.

I was thinking of suicide since I was walking with a walking stick for a year and also working. I dont go anywhere socialising because of embarrasment of the way I walk.

I am a qualified electrical technician working as a Control systems technician for a fortune 500 company. Lucky I work on computer and dont have to go in the field.

My company was very understanding and is like family. Thats the only thing keeping me motivated since I am passionate about my job.

Update on pain levels:

My pain has gone down from 5 to 3 these days... I can now walk without my walking stick. I believe the antibiotic made a difference but I am not completely cured

21 years of AS is a tough cookie to crack...

Wishing you all the best and sucsess in your efforts...

Keep us posted on your progress...


HLA B27+
Have AS since the age of 13.
Diagnosed in 2005 at the age of 22

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Frederick
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Strange just how erratic this damn A.S. can be. I have also in the past had periods of virtual complete remission for several years only for the A.S. to return as bad as ever.

Don't let having to use a walking stick bother you L33. I have to use elbow crutches or even a wheelchair on occasions.

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L33 Offline OP
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Thanks for your words of encouragement Frederick All the best...


HLA B27+
Have AS since the age of 13.
Diagnosed in 2005 at the age of 22

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Hi L33:

Like Duncan said, "why 'final'?"

TB is treated from six to nine months. Some Lyme doctors treat their patient for more than two years before seeing results. Same with the patients at The Road Back Foundation.

Some Lyme doctors have discovered that "pulsing" seems to improve results -- three days on, three days off (something like that). You may only have reduced the population and need to continue, which would increase risk. The theory on pulsing is that when you remove the antibiotics the target bacteria come out of hiding places so that you can hit them again. If antibiotics are used without a break then the antibiotics will become ineffective if the target bacteria detects them and finds a place to hide or just changes their form to become persisters.

Some people with arthritis, Lyme, AS, etc., that benefit from antibiotic find that they have to stay on the antibiotic. In those cases the antibiotic might be acting more like an immune suppressant by dammaging the immune system among other things .

Also, I strongly believe that when using an antibiotic that a biofilm buster is essential. It can increase the power of the antibiotic up to 10,000 fold or allow the dose of antibiotics to be drastically reduced so it does less harm. Furthermore, if a person is taking antibiotics for the long term then a concern is that fungus/mould can become a problem so, no sugar, little starch and maybe some antifungual (lots of garlic???)

BTW: My bowel movement have returned to normal for a long time. It is such a pleasant sight that I always pause and admire it before sending it to sea.

May the Force be with you
Robin


HLA-B27 neg, vague AS symptoms in 20s and early 30s
1993:fibromyalgia (age 25)
2013.07:Reverse blockage in a SCUBA accident
2013.08:Scratched by a sick cat
2013.09:Strange sore throat then meningitis
2014:Chronic inflammation at the base of the skull
2014 to early 2015:excess NSAID use developed complete axial inflammation, included psoriasis
NSD helped well and but was not perfect
2018.07: weak +'ve tests for borrelia, babesia, bartonella and mycoplasma pneumonia using Armin Lab, ANA=equivocal
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Great L33 - I guess we all have that in common 'desperate for a cure' Communication is important , critical in fact . The trouble is we each think what we write is very important and others perhaps not so much .
L33 - I am 64 years old --- and back trouble kicked in when I was twenty and then on and off for ever and ever Amen.
There's a big difference , It was never diagnosed. In a very odd way I guess I simply assumed it was normal - everybody had a bad back now and again . (didn't they?)
Only now when my back is akin to a bent fire poker has the condition been diagnosed - so I've only just fully engaged with the condition and the research (and more research)you talk of. , Its not a sweet read is it?
It happens that I've spent a lot of my life in your country ,such a good time , kicking about in Hillbrow when it was a great place to be . (those days are long gone as you know) more like 'The killing fields now'
We have other things in common L33 I'm electrical based also. still words are such an inefficient communication -
To the fight L33 ! lets look , there is so much bollix its almost impossible to separate the wheat from the chaff. By accident I was taught to divine as a youngster, not as an oddity or something peculiar simply as something on a farm that had to be done - To sex chicken eggs. -- (Poor old Rooster wasn't required - his eggs got fried first) box 13 , not worth the energy of incubation.
As I move on L33 In giant leaps we get to a subject called 'Radionics' you and I are going into the mist here - so be it!
I have built some of the machines . I was not judged 'stable' enough to use them . To become a licensed practitioner takes (It seems) years . far far longer than to be a GP (for instance) here's an example of one of those 'schools'
http://www.radionic.co.uk/
so I was inclined to ridicule, It doesn't really make sense does it ? ridicule because I didn't understand ? Rife is something of the same - frequency based .
I'm told The cause of AS is unknown and so is the cure.
I'm busy and I didn't want to try and engage in the theory (if there even is one). Still Radionics seemed to do ,what they say it does I've seen it does , (once or twice anyway)there ends a chapter (for me a least)

So in a humble way - rather than quarrel lets - push on . As a fellow EE its becoming clear there is another electrical system running parallel to everything we know.
Its an electrical universe . IMHO that includes your body , pain . suffering Et-al - We all want the easy way out , Me too ! so I gobble the pills and hope all the horror might go away (But - its not happening for everyone is it ? So lets go up a gear or two)
L33 your a digital guy ! Just my opinion but - Its not a digital universe . There is no absolute , your pain could be different from mine . --- Its variable forget the digital stuff , it doesn't relate, I doubt you'll understand much of this guy I didn't until I watched this many times..


So I too read Gabriel Martins book just as you did. I too have the pills , I too will follow the regime , (Its easy isn't it ? Its an easy option) Will it work ? please allow me to quote Oliver Heaviside for you -

There is no absolute scale of size in the Universe, for it is boundless towards the great and also boundless towards the small.



And thus is pain . (perhaps experience also) I think Gabriel's honest - I'll follow his regime and like you -hope.
As Fred points out there can be periods of total remission . I've just had the pleasure of a lot of years followed by a vicious attack - (That would be me right now!)
I'm also actively engaged in Rife technology - In my simplistic view -- just quickly stop it with anti biotic then bosh the calcification with Rife frequencies --- Mmmm perhaps its not going to be quite that simple .Still worth a try - better than little Jack Horner sitting in the corner!
I'm also quickly learning that A.S and other flavours of reactive arthritis have many faces. It perhaps sounds odd but I would be a little upset to find a cure for myself whilst my neighbors continued to suffer. I managed some years ago to make an efficient energy device . It gave me no satisfaction being nice and warm in my house whilst knowing OAPs up and down the road were suffering hypothermia. - So I guess L33 its not just you thats 'desperate' we all are I think its just a question of degree.
I confess I don't feel very clever on Azithromycin - It seems to give you a bit of knock and I'm not looking forward to the - four pills all in one hit thats just coming up. (according to Gabriel's regime) Also as Robin points out there could well be variations on the theme - dose, sequence
Ah well onwards and upwards ! Kindest regards to all Duncan

Last edited by Duncan; 04/23/18 10:52 AM.
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Just as a PS to this - I emailed GM regarding his book , The reason ? I couldn't fully understand the treatment . It's easy to assume its 'one off' (he doesn't say) what if - he's just doing that for ever and ever Amen ? (again he doesn't say) The time factor he's talking - seven months - eight months makes me consider this is - long long term (again he doesn't say) thus far he hasn't replied to my email. I hope he does and can spare me/Us a few lines . any opinions ? -regards Duncan

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L33 Offline OP
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Hi Duncan it is a 'one off' treatment I e-mailed the author and he said he only did the protocol once according to the method in the book..... But he told me it took him months to heal fully from his AS symtoms...

Regards

Lee


HLA B27+
Have AS since the age of 13.
Diagnosed in 2005 at the age of 22

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Thanks for the info Lee thats cleared things up a bit - even though the impression from the chinese site indicates a long term affair.

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