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Joined: Nov 2016
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Jackson,

I started Humira a month ago and it is life changing. I feel like I did 10 years ago. As soon as my pain and inflamation went away I got back to doing yoga daily and have regained most of my mobility back. I has troubles turning my neck, bending reaching pretty much everythi g was getting harder and I was always in pain. I looked at where I was headed and it was a no brainer for me. I saw the choice of slowly being cripple in pain and a chance and being able to play with my son the way we used to.

I have not noticed any real side effects but holy tolido amigo, within a day I started feeling the pain and inflamation go. I am bounci g on the trampoline with my kid, running, doing yoga and feel greatful for this. I realize it may not last for ever but I am going to enjoy this as long as it does. I still maintain a fairly strict low starch diet and do yoga religiously as I plan to keep this mobility as long as I can.

Joined: Apr 2002
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Hi Jackson,

I do have tinnitus, however mine started before I started on Remicade. I have not heard of it being listed as a possible side effect of Remicade or Humira, but I suppose it is possible.

I was on Sulfasalazine for 15+ yrs which is said to have tinnitus as a side effects, so possibly that's the cause in my case, or perhaps it is simply age-related. crazy2 My Mom suffered from tinnitus too that was quite bad.

I'm not sure what to suggest but I would mention this to your Rheumatologist.


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Thanks Frederick! smile

Gosh, 55 yrs with AS is a long journey - so glad to hear that you've found some relief on Enbrel!


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Hi Kahuna,

It sounds like you are experiencing fantastic results on Humira - long may it continue!!

It was life-changing for me too, when I started Remicade and similarly, my pain rapidly started vanishing on day 4. I remember how shocking it seemed to not be in pain after all those years. It still amazes me!


mig
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About 20 years after I got AS, I developed involvement of my fingers and toes. As a physician, this horrified me. I need my hands!

My rheumy added sulfasalazine to my regimen. It took about 4 months to work but WOW did it work. I get a swollen joint maybe twice a year now and that responds to a steroid injection. No side-effects for me, either. It's a bit annoying having to take three horse pills twice a day, but worth it!

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