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If you want to use this QR code (Quick Response code) just save the image and paste it where you want. You can even print it and use it that way. Coffee cups, T-Shirts etc would all be good for the QR code.
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Joined: Apr 2015
Posts: 107
Journeyman_AS_Kicker
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OP
Journeyman_AS_Kicker
Joined: Apr 2015
Posts: 107 |
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Joined: Sep 2015
Posts: 29 Likes: 1
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Joined: Sep 2015
Posts: 29 Likes: 1 |
Hi Miniowl and everyone-- I've been lurking on this forum for years, and finally signed up. I'm about to start LDN later this month, and I'm eager to follow your stories and share mine. Will stay tuned!
I have Reiter's Syndrome, an HLA-B27 disease similar to AS. Diagnosed 2008. I used Humira and methotrexate until 2012, when I was diagnosed with leiomyosarcoma and given a hysterectomy and a 26% chance of 5-year survival. Cancer-free ever since I stopped taking Humira and methotrexate; trying to trust medicine again. In a mobility scooter since 2013 with joint pain and disease-related stress fractures. Uveitis. Eyes and joints flare whenever I stray from a severely limited diet (NSD+).
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Joined: Apr 2015
Posts: 107
Journeyman_AS_Kicker
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Journeyman_AS_Kicker
Joined: Apr 2015
Posts: 107 |
Hi Ellie! I'm curious to know how you fare. When I was taking it I wasn't too stiff or achey, but I was still tired and not totally pain free. I may go back to it but I took a break from it because I've been trying so many things (diet, supplements, acupuncture) and I felt that I was doing too many things at once, making it impossible to tell what's helpful and what isn't.
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Joined: Sep 2015
Posts: 29 Likes: 1
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Joined: Sep 2015
Posts: 29 Likes: 1 |
After LDN made me feel terrible for weeks, I just feel like I turned a corner with it this week! Yay! Full report below: https://www.kickas.org/ubbthreads/ubbthreads.php?ubb=showflat&Number=513159#Post513159
I have Reiter's Syndrome, an HLA-B27 disease similar to AS. Diagnosed 2008. I used Humira and methotrexate until 2012, when I was diagnosed with leiomyosarcoma and given a hysterectomy and a 26% chance of 5-year survival. Cancer-free ever since I stopped taking Humira and methotrexate; trying to trust medicine again. In a mobility scooter since 2013 with joint pain and disease-related stress fractures. Uveitis. Eyes and joints flare whenever I stray from a severely limited diet (NSD+).
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