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Joined: Jan 2012
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http://autoimmunesummit.com/

I would recommend registering and listening to the talks. You have a 24 hour window in which to listen to each days talks. I have listened to various summits along these lines and they have been very useful. There are some respected medical people speaking too who aren't just into treating the symptoms of an autoimmune disease. I have listened to some of the speakers several times and have learnt something different every time.

I would specifically make a point of listening to Dr Tom O'Bryan he explains things in way you can easily understand (gluten sensitivity based but still very relevant) his analogies are great, Alessio Fasano (gastroenterology), Aristo Vodjani (immunology), David Perlmutter (neurologist). I picked the last three for sceptics as some if not all of the last three have been involved in developing accurate testing and have medical/science background. Also Terry Wahls who overcame her Multiple Sclerosis

There are speakers on diet and nutrition and a whole host of other related things each with their own story to tell usually with the background of having an autoimmune disease themselves.

Yes a lot of them have their businesses in supplements, testing etc but aside from this it does no harm to listen I have learnt so much and a greater understanding of what is happening with my immune system and how I can do better.

There is the option to purchase them but I have never done so I just take notes also someone commented somewhere that you can save them onto your computer anyway. I haven't tried to do that but will do this time.

Ally x

Last edited by Grumpyally; 11/10/14 10:38 AM.

NSD almost all the way
No dairy hard cheeses occasionally and homemade ghee
Still trying to work out what makes me tick and what makes me drop

'Chew your drinks and drink your foods'
'Let your knife & fork do the work of your teeth and let your teeth do the work of your stomach'
Mahatma Gandhi
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Posts: 199
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Thanks for passing along the information. As you've mentioned above there are some well-known autoimmune specialists / speakers listed. I'm also looking forward to hearing what Dr. Hyman has to say.


My Autoimmune Blog - Ups & Downs with NSD & SCD, the NEED for Meat and STARCHES, and the Effects of Getting Off Enbrel (biologic) and Going on Humira: http://100percenthealth.us/
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I purchased them and have listened to half already along with reading a few of the PDF transcripts. They are great.

A lot of common themes: diet and food, leaky gut and gut flora, toxins, infections, stress, sleep.

Dr. Hyman's talk was interesting and what stood out to me is that 10 people can have the same exact disease but have 10 different triggers for it. That is why you have to tackle it from all fronts e.g. test the gut, test for toxins, change the diet, implement stress reduction, etc.


Pre-As (sacriolitis) dx 2013
Chronic iritis in right eye
HLA-B27 Negative
3g fish oil, vitamin D, multivitamin, bacillus coagulans, digestive enzymes, curcumin, l-glutamine, butyrate (Alex Shikhman gut-based protocol)
Ibuprofen as needed a few times a month
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Ally,

I watched some of the speakers and seemed quite good. What did you get out of it?


My Autoimmune Blog - Ups & Downs with NSD & SCD, the NEED for Meat and STARCHES, and the Effects of Getting Off Enbrel (biologic) and Going on Humira: http://100percenthealth.us/
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Hi,

Lots of things to think about I need to go through my notes again brain full!

What springs to mind: I was particularly interested in the parasite/infection angle and theory that all autoimmune disorders start with a virus or parasite. That would figure with an unpleasant food poisoning/bug episode that I can track back to before I had any symptoms. It made me wonder that my gut isn't healing because that issue hasn't been addressed. Unfortunately a slight red flag raised as the person talking imported and sold the products he recommended.

I also thought Michael Ash's (I think) bit about having stewed apples and cinnamon once a day for a week was interesting, sounded so simple. I need to listen to that again as I can't remember the details exactly but something about resetting your gut?

There was another thing I heard but may be not on this summit, one running concurrently about swallowing a capsule of frozen cod liver oil. This ensures it gets past your stomach and then suffocates parasites???

I wish there were reputable functional medicine practitioners, over here most are just nutritionists and seem to be concerned with weight loss and fitness when I try to look.

Ally


NSD almost all the way
No dairy hard cheeses occasionally and homemade ghee
Still trying to work out what makes me tick and what makes me drop

'Chew your drinks and drink your foods'
'Let your knife & fork do the work of your teeth and let your teeth do the work of your stomach'
Mahatma Gandhi
Joined: Jan 2012
Posts: 199
First_Degree_AS_Kicker
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Ally,

Interesting findings, but did you hear any of those from multiple speakers? Here's what I gained that seemed to be talked about by most of the group:

- Autoimmune gut repair - check your zinc, vitamin A, C & D, iron and magnesium levels. Use foods then supplements if you find yourself deficient in these.

- Beans & legumes lechtin are resilient and need heavy soaking / cooking to be considered safe to eat. After being on the diet for awhile, try adding in buckwheat, rice, and/or black beans to help compliment the diet (introducing starches, soluble fiber, and other nutrients your body may need). IMO low dosages after doing these work well within my diet but I'm still staying away from buckwheat.

- Glutathione is the "king" of antioxidants however typical supplementation is poorly absorbed. Taking an IV works but is expensive and they are developing new ways of absorbing (Dr. Myers is currently using a compound pharmacy to make a special blend that utilizes nanotechnology and is acetylated). Right now the best ways to get glutathione is foods, aerobic exercise, and stress reduction.

- Many talked about why everyone should be gluten-free. But some detailed that it is the prolamins within gluten, wheat germ, legumes (i.e. peanuts) and soy (soy lechtin) that are causing the issue. They "glue" cells together and sneak through the gut barrier.


My Autoimmune Blog - Ups & Downs with NSD & SCD, the NEED for Meat and STARCHES, and the Effects of Getting Off Enbrel (biologic) and Going on Humira: http://100percenthealth.us/
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I went through all the PDF transcripts and went to the end to see each of the 3-5 recommendations from all the talks. I may have missed a count here or there but these numbers are directionally right.

Diet x17
Microbiome/gut x8
Drink water
Sauna
Vitamin D x6
Pre and pro biotics x7
Gluthathione x2
Stress x8
Sleep x6
Exercise x4
Fish oil (or other anti inflammatory supplements) x4
Lab testing
Toxic chemicals x3
Infections x2


Pre-As (sacriolitis) dx 2013
Chronic iritis in right eye
HLA-B27 Negative
3g fish oil, vitamin D, multivitamin, bacillus coagulans, digestive enzymes, curcumin, l-glutamine, butyrate (Alex Shikhman gut-based protocol)
Ibuprofen as needed a few times a month
Joined: Jan 2012
Posts: 419
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Hi,

Yes I did hear it from several speakers two particularly spoke about infections/parasites and I felt it was interesting as I hadn't heard so much about that angle so far as preventing your gut from healing. It stuck with me because I feel it could be very relevant to me for several reasons. Mind you I was listening to two different summits so some could have been on one and some the other

The fermented foods and vitamins I have heard many times before including the benefits of glutathione.


NSD almost all the way
No dairy hard cheeses occasionally and homemade ghee
Still trying to work out what makes me tick and what makes me drop

'Chew your drinks and drink your foods'
'Let your knife & fork do the work of your teeth and let your teeth do the work of your stomach'
Mahatma Gandhi
Joined: Jan 2012
Posts: 199
First_Degree_AS_Kicker
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Joined: Jan 2012
Posts: 199
Here is their recap of all the Autoimmune Summit speakers:

1. Clean up your diet by removing toxic and inflammatory foods.
2. Eat a variety of organic whole foods.
3. Take care of your microbiome.
4. Reduce your stress.
5. Sleep.
6. Exercise (but don’t overdo it!).
7. Clean up your environment.
8. Be your own advocate.

As a whole I follow this protocol and it has helped me to only need one medication for now (Humira). While NSD cured others in this forum, I believe that following these rules can fix or reduce most of the issues for the rest of us.



Full article:

Autoimmune disease has become a modern day epidemic. If you aren’t one of the estimated 50 million Americans who suffer from at least one autoimmune disease, you likely know someone who is. Conventional medicine views diseases like rheumatoid arthritis, lupus, multiple sclerosis, and other debilitating conditions as chronic, and only manageable with strong, immunosuppressive medications that have their own long list of side effects. When I myself was diagnosed with an autoimmune thyroid disease called Graves’ disease while in medical school, I started down the conventional path–which was, in my case, harsh medications and the eventual ablation of my thyroid.

I knew there had to be a safer, more natural way to heal my malfunctioning immune system, and I made it my mission to not let conventional medicine fail anyone the way it had failed me. My search for answers launched me into the world of functional medicine and forever changed my view of autoimmune disease treatment. In my own clinical practice, I began to identify 5 key environmental factors that play a role in the development and treatment of autoimmune disease:

What I Learned chart




Again and again with my patients, I’ve seen dramatic improvement and even reversal of symptoms with attention to these five factors. I wanted to see if other experts agreed, so I set out to interview 39 doctors, researchers, and scientists about what we can each do now to halt today’s worldwide autoimmune epidemic.

Even if you aren’t able to see a functional medicine doctor, you can take steps today to protect your health and reverse autoimmunity. Here are the biggest tips that I heard over and over from the amazing experts who took part in the first Autoimmune Summit:

1. Clean up your diet by removing toxic and inflammatory foods.
Dr. Robert Rountree pointed out that autoimmune disease “develops in the context of an inflammatory diet.” All of the experts agreed that improving a patient’s diet was the first step they took, and many pointed to an elimination diet as the most useful tool for identifying foods that could be causing inflammation. During an elimination diet, you remove common inflammatory triggers from your diet for a period of about two weeks, and then add them back in, one at a time, while gauging your symptoms. If you feel better when you avoid one food, but your symptoms return when you add it back in, you continue to avoid that food. Dr. Alejandro Junger suggested you “start by eliminating the big toxic triggers: dairy, gluten, sugar, and alcohol.”

2. Eat a variety of organic whole foods.
Removing problem foods is only the first step; the next is to give your body the nutrients it needs to heal. “Variety is key,” explained Dr. Deanna Minich, who emphasized the importance of eating a “rainbow” of richly colored organic fruits and vegetables. “Commit to eating one new green thing every day,” suggested Dr. Susan Blum, echoing Brianne Williams when she said that “the body knows how to recover once you give it the right things.”

Another point brought up again and again was the importance of eating organic food. In his interview, Jeffrey Smith explained the dangerous potential of consuming GMO foods, and that you can avoid them by buying organic. “Eat organically,” said Nora Gedgaudas, explaining that pesticide residues and GMOs “can have an amplifying effect on virtually any form of autoimmunity.”

3. Take care of your microbiome.
Practically every expert agreed that the health of your gut is fundamentally important for the health of the rest of your body. They explained that one huge step you can take to prevent or reverse autoimmune disease is to care for your microbiome (the ecosystem of bacteria and other microorganisms, like yeast and parasites, that live in your gut). “Attention to the gut in general is where I start with anyone with autoimmune disorders,” Dr. Leo Galland explained. In agreement, Dr. David Perlmutter said that “you’ve got to focus on restoration of the gut bacteria–that’s job one, two, and three.” Take a daily probiotic, avoid antibiotics unless medically necessary, limit sugar, and eat fermented foods and other prebiotics that will promote the growth of good bacteria.

4. Reduce your stress.
One of the biggest lessons learned during The Autoimmune Summit was the overwhelming importance of stress reduction to combat autoimmunity. Several of the speakers, including Dr. David Haase, Donna Jackson Nakazawa, Dr. Katie Hendricks, and Dr. Sara Gottfried referenced and even demonstrated breathing techniques that have a profound effect on the progression of autoimmune disease.

“If I only had one tool the rest of my life to give all of my patients,” said Dr. Haase, “it would be paced breathing, and I’ve said that for 10 years because I’ve never seen something so simple, safe, effective, and cheap produce such massive results in people’s lives if consistently used.”

Universally, the experts agreed that your other efforts, such as cleaning up your diet and exercising, will be undermined if you have a high level of stress, although it’s rarely discussed in the same way. As Dr. Todd LePine phrased it, “It’s a really simple thing to do. It sounds like it’s not going to do anything, but deep breaths and just being grateful and present have a huge role in calming down the immune system.”

5. Sleep.
Getting enough sleep, what Robb Wolf called “an underestimated piece of autoimmunity,” was another topic that came up again and again as one of the first steps you can take in healing from autoimmunity. Sleep expert Dan Pardi dedicated his entire talk to this topic, ending with the advice that you “give yourself enough time in bed to get complete sleep and wake up naturally. Maintain smart light rhythms every day, evening, and night.”

6. Exercise (but don’t overdo it!).
Hand in hand with sleep and stress reduction, exercise was also emphasized as one big way to heal your body from autoimmune disease. Dr. Dan Kalish pointed out that exercise “is the hardest one for most people,” because exercise does cause inflammation. Dr. Frank Lipman and Dr. Jeff Bland both explained that some level of inflammation is needed to induce healing.

“There’s a certain level of positiveness about inflammation that induces the repair of tissues,” explained Dr. Bland. “If you completely sit quiet with no inflammation and you’re in casts, you put casts on all your joints, that’s the case where you’ll get the most joint degeneration. You need to keep moving.”

But how do you do that? “Gentle movement,” according to Dr. Lipman, “is very powerful. I think people don’t realize that exercise, especially when it’s hard exercise, is a major stress on the body…You can push, but then you need to pull back and let your body recover, and I think that’s really important.”

7. Clean up your environment.
When it comes to toxins, it isn’t all about your diet. All of the experts agreed that limiting your toxic exposure from every source was vastly important, especially cleaning products, cosmetics, and heavy metal sources like drinking water and dental fillings. Heather White, the executive director of the Environmental Working Group (EWG), provided practical tips and guides for reducing your exposure to toxins.

“Be very honest with yourself and very vigilant about the different possible chemicals that you have in your life,” suggested author Donna Jackson Nakazawa. “You might think it doesn’t matter what kind of cosmetics you wear or what kind of shampoo you use, or whether or not you’re spraying a particular type of toxic cleaner all over because it works really well and makes your furniture beautiful, but the facts are that it all adds up. Every little drop in your barrel adds up. The more you can take out, the better your life is going to be.”

8. Be your own advocate.
“I would say, first of all, in this whole arena, you need to be your own health advocate,” explained Dr. David Brady on what became one of the most talked about themes of the entire summit. “You need to get educated yourself, because if you’re waiting for your standard family physician, internist, or something, or rheumatologist to lead you down this path, it’s not going to happen.”

When I designed The Autoimmune Summit, the intention was to equip as many people as possible with the information they need to take their health and recovery into their own hands. Each expert gave examples of how we can all educate ourselves and make changes to end today’s autoimmune epidemic.

One way to do that, Heather White suggested, is to “become a label reader of everything you buy…You have to get in the game and make your voice heard, and it’s amazing what you can do when you speak up.”

As Dr. Datis Kharrazian eloquently summarized, you need to “rise up to the occasion, take control of your life, you can control your autoimmunity, you can control your lifestyle… Educate yourself. You need to be smarter than any doctor you’ll see. This is about your health, this is about your life, and no one knows you better than you.”


My Autoimmune Blog - Ups & Downs with NSD & SCD, the NEED for Meat and STARCHES, and the Effects of Getting Off Enbrel (biologic) and Going on Humira: http://100percenthealth.us/

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