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#505624 08/04/14 01:16 AM
Joined: Apr 2009
Posts: 719
Likes: 2
M
Decorated_AS_Kicker
OP Offline
Decorated_AS_Kicker
M
Joined: Apr 2009
Posts: 719
Likes: 2
My mom has had issues for years. She was diagnosed last year with AS. Now my sister ( she loves me very much) has been told she has the famous HLA marker. She has been having increasing problems. She is taking the news head on. I did not sugar coat it, I figure she also has the Blackwell gene so she can take it She has been on here checking the site out. She said she joined the other day,not approved yet. So don't go easy on her she can take it.
ETTE.
Darrel.

Joined: Aug 2014
Posts: 9
R
New_Member
Offline
New_Member
R
Joined: Aug 2014
Posts: 9
Well you know we are almost twins. I just want to be like you! Besides I am your favorite sister!
Hi I am the Sarge's sister. Been burning up his phone with questions. He has lots of good things to say about this web site. I have found it very helpful.


Smiles
Bobbie
Joined: Oct 2008
Posts: 360
Fifth_Degree_AS_Kicker
Offline
Fifth_Degree_AS_Kicker
Joined: Oct 2008
Posts: 360
Definitely don't sugar coat it. It can be a merit badge for her. Or something. Even if she was blood thirsty there is nothing she can do about it!

Joined: Feb 2011
Posts: 1,968
Pea Offline
Captain_AS_Kicker
Offline
Captain_AS_Kicker
Joined: Feb 2011
Posts: 1,968
Welcome Rebelle69. You will find a great group of people here and a lot of great information. Sorry you have this too.


Pea
Diagnosed with A.S. 29 year's ago.
Diagnosed with Fibro 10 year's ago.
Remicade, Intrathecal Pain Pump 2013
Joined: Mar 2002
Posts: 5,189
Likes: 3
I
Titanium_AS_Kicker
Offline
Titanium_AS_Kicker
I
Joined: Mar 2002
Posts: 5,189
Likes: 3
Well I have always found the mule to be a great big softie.....unlike me..I am tuff..!


Hello Rebelle, bet you are a softie too...?

Joined: Jan 2008
Posts: 21,346
Likes: 1
Very_Addicted_to_AS_Kickin
Offline
Very_Addicted_to_AS_Kickin
Joined: Jan 2008
Posts: 21,346
Likes: 1
Welcome aboard! smile



sue

Spondyloarthropathy, HLAB27 negative
Humira (still methylprednisone for flares, just not as often. Aleve if needed, rarely.)
LDN/zanaflex/flector patches over SI/ice
vits C, D. probiotics. hyaluronic acid. CoQ, Mg, Ca, K.
chiro
walk, bike
no dairy (casein sensitivity), limited eggs, limited yeast (bread)
Joined: Mar 2012
Posts: 751
Magical_AS_Kicker
Offline
Magical_AS_Kicker
Joined: Mar 2012
Posts: 751
Welcome to the club!

Glad it sound like you are at least getting diagnosed in the early stages, as that can make such a huge difference in how much this disease will effect your life going forward. And that is so great that you already have such an awesome buddy and brother to help you get a handle on it all.

Wishing you a painless journey!!

x,
Andrea


I'm now a KICK AS (and Kick IBD) success story!! After going low starch Paleo to heal my gut, I can now eat nearly all starches, grains & foods without inflammation, flare-ups, or pain. I used a modified SCD diet approach (minus dairy! plus cacao ♥). Cheers to healing & thriving again! I blog at http://www.forestandfauna.com/about/
Joined: Sep 2001
Posts: 2,192
Major_AS_Kicker
Offline
Major_AS_Kicker
Joined: Sep 2001
Posts: 2,192
Sorry you are in this club, but welcome, and enjoy the starch free snacks.


Steve Orchard, Running from AS & MS
Joined: Jan 2009
Posts: 4,501
Likes: 1
Supreme_AS_Kicker
Offline
Supreme_AS_Kicker
Joined: Jan 2009
Posts: 4,501
Likes: 1
Welcome to one of the clubs you might not want to have to join. And knowing someone else who 'joined' is always a benefit. Being related to them is even better. wink Great that you will have a mentor on the journey.

I've got PsA, as does my hubby, though it's not usually spread in that manner. LOL. He's not a joiner, though.


DX: Psoriatic Arthritis, Osteoporosis, Psoriasis
Meds: MTX since Oct 2009, 15mg/week. Cimzia-restarted after 2 yrs away.
Epidural Steroid Injections x8; Lumbar Radiofreq Ablation x2
SIJ Steroid Injection x3; Bilateral Radiofreq Ablation SIJ x9
Joined: Nov 2001
Posts: 18,141
Likes: 5
Very_Addicted_to_AS_Kickin
Offline
Very_Addicted_to_AS_Kickin
Joined: Nov 2001
Posts: 18,141
Likes: 5
Hi Bobbie, and welcome to KA. smile

I'm glad you have our favorite mule on your side - better that, I think. Although, since you're his sister you can give him a good ole AS kickin' if he gives you grief. laugh

Warm hugs,


Kat

A life lived in fear is a life half lived.
"Strictly Ballroom"

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