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#501015 02/27/14 12:10 AM
Joined: Nov 2008
Posts: 1,970
ilbcrzn Offline OP
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Posts: 1,970
Hi Everyone!!! smile

Just got back from the eye doctor for a follow up. I can stop using the drops that keep my right eye permanently dilated and will have to continue on the prednislone drops for another month. My pharmacy ran out of the drops for the dilation but they called another pharmacy across town and I was able to pick them up there. A real pain driving in the sun with an eye dilated.

I was under the impression since I was HLA-B27 negative that I would not have eye problems. I don't know why I thought that. Did I read that somewhere or is it just something I thought up on my own...don't know.

Anyway smile

I am still working afternoons two days a week when I can. Luckily I have plug in heated booties to keep my feet from going numb from cold. They also help with the foot pain.

Can't wait till winter is over (are you sick of it?) Can't keep up with the excema. Have a topical ointment but new patches are cropping up almost daily.

Still going to the pool for arthritis classes but missed last week...too darn cold to want to go outside.

Stay warm and as pain free as possible everyone !!! smile


I can not defeat you but I will not let you win

Jeff

Degenrative disc disease 2005
AS 2008 HLA-B27-
Fibromyalgia 2010
Disability 2012
Back to work part time 2013
Enbrel, Cymbalta,Oxycodone, blah blah blah blah
ilbcrzn #501017 02/27/14 03:16 AM
Joined: Jan 2008
Posts: 21,346
Likes: 1
Very_Addicted_to_AS_Kickin
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Very_Addicted_to_AS_Kickin
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Sorry about the iritis.

I can't remember, is this the first time you've had it? Or if not, how long did you have joint, GI, skin symptoms before having iritis?

Since I've had GI symptoms most of my life, which came to head 20+ years ago and joint symptoms 15 years now, but never iritis, I've kind of assumed it won't be a symptoms for me.

Plus it doesn't seem to be a symptom that runs in my family.

Wonder if my assumptions are good assumptions to be making?



Speaking of your plug in heated booties, have you seen these?

http://www.thermacell.com/heated-insoles-foot-warmers

They looked interesting to me.


Yeh, pretty tired of winter. Last week was mild and a much needed reprieve. But its cold again this week.

Most of my skin is OK this winter; the Humira seems to be helping anything that was psoriasis. But its my feet that get really dry, flakey skin. I've found aloe to be more helpful than just about anything else. I usually mix the aloe (99% pure aloe gel) with either eucerin or coconut oil or shea butter. But aloe seems to be the secret for my feet.

Again, sorry to hear about the iritis. My eyes are really sensitive to light when I get migraines, but imagine that iritis must be orders of magnitude worse.



sue

Spondyloarthropathy, HLAB27 negative
Humira (still methylprednisone for flares, just not as often. Aleve if needed, rarely.)
LDN/zanaflex/flector patches over SI/ice
vits C, D. probiotics. hyaluronic acid. CoQ, Mg, Ca, K.
chiro
walk, bike
no dairy (casein sensitivity), limited eggs, limited yeast (bread)
ilbcrzn #501031 02/27/14 01:28 PM
Joined: Mar 2002
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Posts: 9,522
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Hello Jeff,

Hope the winter ends soon for you, my mother returns to Appleton next Tuesday... so we have been checking the weather up your way.

Hope the eye and excema get better.

Best to you,

Tim


AS may win some battles, but I will win the war.

KONK - Keep ON Kicking
Sue22 #501054 02/28/14 02:49 AM
Joined: Nov 2008
Posts: 1,970
ilbcrzn Offline OP
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Joined: Nov 2008
Posts: 1,970


Hi Sue,

Thanks for your post. It has been about 15 years since I started having joint problems. Have had GI problems about 30 years and skin problems about 3 years ago.

The rashes started on my upper arms and the backs of my legs. Now my whole back and patches almost every where else.

Thanks for the link Sue, have you or anyone else tried them? My plug ins work great, got them for Christmas and they are already duct taped together from use.

Hope you are doing well with Humira Sue, Take Care!!! smile


I can not defeat you but I will not let you win

Jeff

Degenrative disc disease 2005
AS 2008 HLA-B27-
Fibromyalgia 2010
Disability 2012
Back to work part time 2013
Enbrel, Cymbalta,Oxycodone, blah blah blah blah
Dotyisle #501055 02/28/14 02:57 AM
Joined: Nov 2008
Posts: 1,970
ilbcrzn Offline OP
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Posts: 1,970
Hi Tim

Too bad your mom can't stay by you a little longer. It will still be very cold on Tuesday when she returns.

Thanks again Tim smile


I can not defeat you but I will not let you win

Jeff

Degenrative disc disease 2005
AS 2008 HLA-B27-
Fibromyalgia 2010
Disability 2012
Back to work part time 2013
Enbrel, Cymbalta,Oxycodone, blah blah blah blah
ilbcrzn #501057 02/28/14 04:02 AM
Joined: Jan 2013
Posts: 144
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Journeyman_AS_Kicker
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Posts: 144
hi jeff driving at night with dilated eyes is pretty bad too. where did you buy electric booties? thats a great idea. are cold feet due to AS. mike


Dost thou love life? Then do not squander time for that's the stuff life is made of Benjamin Franklin
ilbcrzn #501060 02/28/14 01:45 PM
Joined: Nov 2001
Posts: 18,141
Likes: 5
Very_Addicted_to_AS_Kickin
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Very_Addicted_to_AS_Kickin
Joined: Nov 2001
Posts: 18,141
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Hi Jeff,

I am really sorry you have iritis. Man, that sucks. Do you use an eyepatch? Might make things a little easier while the pupil is dilated. Driving is interesting because you don't have depth perception, but better that than the sun causing pain. Also, try one while you're on the computer.

I hope it eases, soon. Taper off the predforte slowly, OK? Really slowly as you don't want to precipitate a rebound flare by coming off the steroids too quickly.

Love and warm hugs,


Kat

A life lived in fear is a life half lived.
"Strictly Ballroom"

ilbcrzn #501073 02/28/14 10:46 PM
Joined: Nov 2002
Posts: 6,925
Likes: 1
Addicted_to_AS_Kickin
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Addicted_to_AS_Kickin
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Jeff, I hope your eyes are better. I was in the middle of a long message to you after you posted and the phone rang. I have been thinking of you though.

Does the water bother your eyes? The pool I went to for so many years was all windows on the East side and the reflection on the water was really hard on my eyes. I wore my wrap-around sunglasses in the pool for years. I hope to get started back as soon as we get through this surgery thing. We have a new Aquatic Center here and I am anxious to check it out.

We are having a beautiful sunny day with about 70 degree weather and then tomorrow we have ice and snow moving in again and supposed to get down to 9 degrees. I am so ready for Spring this year. I felt like last summer didn't happen being in so much pain before surgery and then not being able to do much through the summer. I am looking forward to this one.

Plug-in booties sound pretty good. Staying warm really helps with pain.

I hope you have a good weekend and someone makes you a big cherry pie. hrtballon


Blessings.




Possi
*********************************************************

RUN WHEN YOU CAN,
WALK IF YOU HAVE TO,
CRAWL IF YOU MUST,
JUST NEVER EVER GIVE UP!



"A FRIEND HEARS THE SONG IN YOUR HEART AND SINGS IT TO YOU WHEN YOU CAN'T REMEMBER THE WORDS."

"A FRIEND LOOKS THROUGH YOUR BROKEN FENCE TO ADMIRE YOUR FLOWERS."

poconomike #501075 02/28/14 11:48 PM
Joined: Nov 2008
Posts: 1,970
ilbcrzn Offline OP
Captain_AS_Kicker
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Captain_AS_Kicker
Joined: Nov 2008
Posts: 1,970
Hi Mike

Are you still going to the pool? Had a sick daughter at home this week so I stayed home. the booties were a Christmas present. It was purchased online from Amazon. Others in the family get cold feet too. Must run in the family. The booties help with the AS and Fibro pain. Also, the booties are already duct taped together from heavy use.

Thanks Mike


I can not defeat you but I will not let you win

Jeff

Degenrative disc disease 2005
AS 2008 HLA-B27-
Fibromyalgia 2010
Disability 2012
Back to work part time 2013
Enbrel, Cymbalta,Oxycodone, blah blah blah blah
Inanna #501076 03/01/14 12:02 AM
Joined: Nov 2008
Posts: 1,970
ilbcrzn Offline OP
Captain_AS_Kicker
OP Offline
Captain_AS_Kicker
Joined: Nov 2008
Posts: 1,970
Kat

Thanks for the good advice. I am going to be tapering for a month. Right now 4 drops a day for a week, than 3 next week and down from there. We have been getting intense sun in the afternoons but still very cold. Thanks Again Kat. Wishing you all the best smile


I can not defeat you but I will not let you win

Jeff

Degenrative disc disease 2005
AS 2008 HLA-B27-
Fibromyalgia 2010
Disability 2012
Back to work part time 2013
Enbrel, Cymbalta,Oxycodone, blah blah blah blah
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