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Joined: Nov 2008
Posts: 1,970
Captain_AS_Kicker
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OP
Captain_AS_Kicker
Joined: Nov 2008
Posts: 1,970 |
Hi Everyone!!! Been going up North with the family every Labor Day weekend for years now to see the Music Concert at "Dave's Barn" called Fishstock. It is always a good show with plenty of variety and talent. This was the first year in 3 years that I have been feeling well enough to attend. I only sat in my seat for about 40 minutes total, I was still able to see most of the show projected on the back of the old white barn. I was so happy not to miss out. I was able to get up early one morning to sit at the picnic table and watch the sun rise on the eastern shore. It was nice to be able to do that again. I did miss out on the family dominoes game and had to go to bed at 8:00. It really was nice to be able to enjoy so much more than I have in the past. I seem to really appreciate the simple things so much more. Little cooler weather here now...more pain than usual but overall trying to hold up. No more work end of October or sooner. Depends on the weather. I have enjoyed the sense of accomplishment but looking forward to less pain and going to the arthritis swimming class more. Hope everyone is doing as well as can be expected.
I can not defeat you but I will not let you win
Jeff
Degenrative disc disease 2005 AS 2008 HLA-B27- Fibromyalgia 2010 Disability 2012 Back to work part time 2013 Enbrel, Cymbalta,Oxycodone, blah blah blah blah
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Joined: Dec 2010
Posts: 456
Warrior_AS_Kicker
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Warrior_AS_Kicker
Joined: Dec 2010
Posts: 456 |
Hi Jeff- so sorry you had to miss out a little on a family event. Have you ever taken extra steroids for travel? I took extra Prednisone my last vacation and was glad I did so I could do a little more. It is ok too to take those rest breaks and enjoy the simple things. Glad you got to watch the beautiful sunset.
Hope your body adjusts soon to the cooler weather.
Shari
Meds -Hizentra, leflunomide, Prednisone
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Joined: Jan 2008
Posts: 21,346 Likes: 2
Very_Addicted_to_AS_Kickin
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Very_Addicted_to_AS_Kickin
Joined: Jan 2008
Posts: 21,346 Likes: 2 |
Hi Jeff, Sounds like you are having a good time
sue
Spondyloarthropathy, HLAB27 negative Humira (still methylprednisone for flares, just not as often. Aleve if needed, rarely.) LDN/zanaflex/flector patches over SI/ice vits C, D. probiotics. hyaluronic acid. CoQ, Mg, Ca, K. chiro walk, bike no dairy (casein sensitivity), limited eggs, limited yeast (bread)
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Joined: Oct 2008
Posts: 895
Master_AS_Kicker
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Master_AS_Kicker
Joined: Oct 2008
Posts: 895 |
It's good to hear that you had a good time. Yep, the simple things become more precious every year.
--Greg
AS symptoms started 1991. Official dx in 2006 with HLA-B27+, fused SIJ, bone spurs in back, extreme rib/hip pain, and other family with SpA. Started Enbrel in 2006 with good results, but stopped in 2010 due to nerve damage (MS) from it. Getting good results with no-starch diet since 2011.
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Joined: May 2002
Posts: 2,370
Colonel_AS_Kicker
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Colonel_AS_Kicker
Joined: May 2002
Posts: 2,370 |
Hi Jeff, Glad to hear you could attend this year and not miss out on everything.....I too appreciate the very simple things in life more Take care Jeff and I hope your pain eases up Sherri
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Joined: Nov 2002
Posts: 6,928 Likes: 3
Addicted_to_AS_Kickin
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Addicted_to_AS_Kickin
Joined: Nov 2002
Posts: 6,928 Likes: 3 |
((Jeff)) I am happy for you that you got to do what you did. Even a little bit of normalcy is an accomplishment.
It sounds like a wonderful place and time with your family. Now is for planning for next year. It helps me to look ahead and forward to things. That is why I like to plant flower bulbs every fall. It is the faith that they will rise out of the cold dark ground to a beautiful sunny sky making my day glorious.
Next year you will be out of this dark place of pain and fatigue and in the sunshine of your family reunion. I will pray with you for this. :o)
Blessings.
Possi ********************************************************* RUN WHEN YOU CAN, WALK IF YOU HAVE TO, CRAWL IF YOU MUST, JUST NEVER EVER GIVE UP! "A FRIEND HEARS THE SONG IN YOUR HEART AND SINGS IT TO YOU WHEN YOU CAN'T REMEMBER THE WORDS." "A FRIEND LOOKS THROUGH YOUR BROKEN FENCE TO ADMIRE YOUR FLOWERS."
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Joined: Nov 2008
Posts: 1,970
Captain_AS_Kicker
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OP
Captain_AS_Kicker
Joined: Nov 2008
Posts: 1,970 |
Hi Shari, Thanks, No worry about cooler weather today, it's 94 degrees right now...hiding in the house with the AC on and all the shades pulled. I do bring prednisone but didn't use them this time. Feeling well enough and hate not being able to sleep at night. Hope you are doing well also. Thanks for the support!!!
I can not defeat you but I will not let you win
Jeff
Degenrative disc disease 2005 AS 2008 HLA-B27- Fibromyalgia 2010 Disability 2012 Back to work part time 2013 Enbrel, Cymbalta,Oxycodone, blah blah blah blah
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Joined: Nov 2008
Posts: 1,970
Captain_AS_Kicker
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OP
Captain_AS_Kicker
Joined: Nov 2008
Posts: 1,970 |
Hi Sue Had a wonderful time. The weather was cool and little humidity. We also didn't walk around much and visit the little shops...that was ok. We also grilled out at the cabin..easy peasy. Actually felt rested instead of worn out this vacation. Thanks Sue. Hope you are doing well with Humira.
I can not defeat you but I will not let you win
Jeff
Degenrative disc disease 2005 AS 2008 HLA-B27- Fibromyalgia 2010 Disability 2012 Back to work part time 2013 Enbrel, Cymbalta,Oxycodone, blah blah blah blah
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Joined: Nov 2008
Posts: 1,970
Captain_AS_Kicker
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OP
Captain_AS_Kicker
Joined: Nov 2008
Posts: 1,970 |
Thanks Greg It was simple...easy. I have to remind myself that slowing down is not giving up. Hope you are doing well. Thanks again!!!
I can not defeat you but I will not let you win
Jeff
Degenrative disc disease 2005 AS 2008 HLA-B27- Fibromyalgia 2010 Disability 2012 Back to work part time 2013 Enbrel, Cymbalta,Oxycodone, blah blah blah blah
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Joined: Nov 2008
Posts: 1,970
Captain_AS_Kicker
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OP
Captain_AS_Kicker
Joined: Nov 2008
Posts: 1,970 |
Thank you Sherri, It is nice to see your smiling face here. How have you been? How are things since your surgeries? I hope things have improved for you. Having good friends here really helps
I can not defeat you but I will not let you win
Jeff
Degenrative disc disease 2005 AS 2008 HLA-B27- Fibromyalgia 2010 Disability 2012 Back to work part time 2013 Enbrel, Cymbalta,Oxycodone, blah blah blah blah
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