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#494498 09/08/13 09:09 PM
Joined: Nov 2008
Posts: 1,970
ilbcrzn Offline OP
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Posts: 1,970


Hi Everyone!!!

Been going up North with the family every Labor Day weekend for years now to see the Music Concert at "Dave's Barn" called Fishstock. It is always a good show with plenty of variety and talent.

This was the first year in 3 years that I have been feeling well enough to attend. I only sat in my seat for about 40 minutes total, I was still able to see most of the show projected on the back of the old white barn. I was so happy not to miss out.

I was able to get up early one morning to sit at the picnic table and watch the sun rise on the eastern shore. It was nice to be able to do that again.

I did miss out on the family dominoes game and had to go to bed at 8:00.

It really was nice to be able to enjoy so much more than I have in the past. I seem to really appreciate the simple things so much more.

Little cooler weather here now...more pain than usual but overall trying to hold up. No more work end of October or sooner. Depends on the weather. I have enjoyed the sense of accomplishment but looking forward to less pain and going to the arthritis swimming class more.

Hope everyone is doing as well as can be expected. smile


I can not defeat you but I will not let you win

Jeff

Degenrative disc disease 2005
AS 2008 HLA-B27-
Fibromyalgia 2010
Disability 2012
Back to work part time 2013
Enbrel, Cymbalta,Oxycodone, blah blah blah blah
ilbcrzn #494499 09/08/13 09:56 PM
Joined: Dec 2010
Posts: 456
W
Warrior_AS_Kicker
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Joined: Dec 2010
Posts: 456
Hi Jeff- so sorry you had to miss out a little on a family event. Have you ever taken extra steroids for travel? I took extra Prednisone my last vacation and was glad I did so I could do a little more. It is ok too to take those rest breaks and enjoy the simple things. Glad you got to watch the beautiful sunset.

Hope your body adjusts soon to the cooler weather.

Shari


Meds -Hizentra, leflunomide, Prednisone
ilbcrzn #494506 09/09/13 03:00 AM
Joined: Jan 2008
Posts: 21,346
Likes: 1
Very_Addicted_to_AS_Kickin
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Very_Addicted_to_AS_Kickin
Joined: Jan 2008
Posts: 21,346
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Hi Jeff,

Sounds like you are having a good time smile



sue

Spondyloarthropathy, HLAB27 negative
Humira (still methylprednisone for flares, just not as often. Aleve if needed, rarely.)
LDN/zanaflex/flector patches over SI/ice
vits C, D. probiotics. hyaluronic acid. CoQ, Mg, Ca, K.
chiro
walk, bike
no dairy (casein sensitivity), limited eggs, limited yeast (bread)
ilbcrzn #494527 09/09/13 02:17 PM
Joined: Oct 2008
Posts: 895
Master_AS_Kicker
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Master_AS_Kicker
Joined: Oct 2008
Posts: 895
It's good to hear that you had a good time. Yep, the simple things become more precious every year.

--Greg


AS symptoms started 1991. Official dx in 2006 with HLA-B27+, fused SIJ, bone spurs in back, extreme rib/hip pain, and other family with SpA. Started Enbrel in 2006 with good results, but stopped in 2010 due to nerve damage (MS) from it. Getting good results with no-starch diet since 2011.
ilbcrzn #494532 09/09/13 03:32 PM
Joined: May 2002
Posts: 2,370
Colonel_AS_Kicker
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Colonel_AS_Kicker
Joined: May 2002
Posts: 2,370
Hi Jeff,
Glad to hear you could attend this year and not miss out on everything.....I too appreciate the very simple things in life more smile
Take care Jeff and I hope your pain eases up smile

Sherri


ilbcrzn #494550 09/09/13 10:19 PM
Joined: Nov 2002
Posts: 6,925
Likes: 1
Addicted_to_AS_Kickin
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Addicted_to_AS_Kickin
Joined: Nov 2002
Posts: 6,925
Likes: 1
((Jeff)) I am happy for you that you got to do what you did.
Even a little bit of normalcy is an accomplishment.

It sounds like a wonderful place and time with your family.
Now is for planning for next year. It helps me to look ahead and forward to things. That is why I like to plant flower bulbs every fall. It is the faith that they will rise out of the cold dark ground to a beautiful sunny sky making my day glorious.

Next year you will be out of this dark place of pain and fatigue and in the sunshine of your family reunion. I will pray with you for this. :o)

Blessings.




Possi
*********************************************************

RUN WHEN YOU CAN,
WALK IF YOU HAVE TO,
CRAWL IF YOU MUST,
JUST NEVER EVER GIVE UP!



"A FRIEND HEARS THE SONG IN YOUR HEART AND SINGS IT TO YOU WHEN YOU CAN'T REMEMBER THE WORDS."

"A FRIEND LOOKS THROUGH YOUR BROKEN FENCE TO ADMIRE YOUR FLOWERS."

Winter #494612 09/10/13 06:53 PM
Joined: Nov 2008
Posts: 1,970
ilbcrzn Offline OP
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Joined: Nov 2008
Posts: 1,970
Hi Shari,

Thanks, No worry about cooler weather today, it's 94 degrees right now...hiding in the house with the AC on and all the shades pulled. I do bring prednisone but didn't use them this time. Feeling well enough and hate not being able to sleep at night. Hope you are doing well also. Thanks for the support!!! smile


I can not defeat you but I will not let you win

Jeff

Degenrative disc disease 2005
AS 2008 HLA-B27-
Fibromyalgia 2010
Disability 2012
Back to work part time 2013
Enbrel, Cymbalta,Oxycodone, blah blah blah blah
Sue22 #494613 09/10/13 06:59 PM
Joined: Nov 2008
Posts: 1,970
ilbcrzn Offline OP
Captain_AS_Kicker
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Captain_AS_Kicker
Joined: Nov 2008
Posts: 1,970
Hi Sue

Had a wonderful time. The weather was cool and little humidity. We also didn't walk around much and visit the little shops...that was ok. We also grilled out at the cabin..easy peasy. Actually felt rested instead of worn out this vacation. Thanks Sue. Hope you are doing well with Humira. grin


I can not defeat you but I will not let you win

Jeff

Degenrative disc disease 2005
AS 2008 HLA-B27-
Fibromyalgia 2010
Disability 2012
Back to work part time 2013
Enbrel, Cymbalta,Oxycodone, blah blah blah blah
gbash #494614 09/10/13 07:03 PM
Joined: Nov 2008
Posts: 1,970
ilbcrzn Offline OP
Captain_AS_Kicker
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Captain_AS_Kicker
Joined: Nov 2008
Posts: 1,970
Thanks Greg

It was simple...easy. I have to remind myself that slowing down is not giving up.

Hope you are doing well. Thanks again!!! smile


I can not defeat you but I will not let you win

Jeff

Degenrative disc disease 2005
AS 2008 HLA-B27-
Fibromyalgia 2010
Disability 2012
Back to work part time 2013
Enbrel, Cymbalta,Oxycodone, blah blah blah blah
sherri #494616 09/10/13 07:08 PM
Joined: Nov 2008
Posts: 1,970
ilbcrzn Offline OP
Captain_AS_Kicker
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Captain_AS_Kicker
Joined: Nov 2008
Posts: 1,970
Thank you Sherri,

It is nice to see your smiling face here. How have you been? How are things since your surgeries? I hope things have improved for you. Having good friends here really helps smile


I can not defeat you but I will not let you win

Jeff

Degenrative disc disease 2005
AS 2008 HLA-B27-
Fibromyalgia 2010
Disability 2012
Back to work part time 2013
Enbrel, Cymbalta,Oxycodone, blah blah blah blah
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