|
Forums33
Topics44,158
Posts519,738
Members13,957
| |
Most Online1,931
Jan 16th, 2023
|
|
Administrator/owner:
John (Dragonslayer)
Administrator:
Melinda (mig)
WebAdmin:
Timo (Timo)
Administrator:
Brad (wolverinefan)
Moderators:
· Tim (Dotyisle)
· Chelsea (Kiwi)
· Megan (Megan)
· Wendy (WendyR)
· John (Cheerful)
· Chris (fyrfytr187)
|
|
If you want to use this QR code (Quick Response code) just save the image and paste it where you want. You can even print it and use it that way. Coffee cups, T-Shirts etc would all be good for the QR code.
|
|
|
|
Joined: Oct 2012
Posts: 101
Journeyman_AS_Kicker
|
Journeyman_AS_Kicker
Joined: Oct 2012
Posts: 101 |
That's great, Sue! I started the biweekly injections in November, increased to weekly in February. It is amazing! I still have a lot of peripheral joint pain (hands, knee, feet) so we may still add MTX, but my back pain is nearly gone! I can hop out of bed with no problem! I hope it works for you!
Jamie, 40 AS / psoriasis Enbrel weekly injection Tramadol, Flexeril and Hydrocodone as needed 
|
|
|
|
|
Joined: Jan 2008
Posts: 21,346 Likes: 2
Very_Addicted_to_AS_Kickin
|
|
OP
Very_Addicted_to_AS_Kickin
Joined: Jan 2008
Posts: 21,346 Likes: 2 |
Yay to the humira helping you!
I've been on LDN since sept 2009; it has improved my enthesitis immensely! but still I flare and have SI and neck issues.
Maybe the humira for the spinal involvement and LDN for the peripheral (enthesitis).
My rheumy is allowing me to stay on the LDN. Later we'll see if we can wean off of it. He's also allowing me to keep my flector patches; again we'll see if I can wean from that; when I try to do without a patch, I can usually tell I need it within 6-12 hours, so that one will be easier to tell. The LDN will be harder to tell, as it just kind of keeps the enthesitis from getting too bad, helping the body heal it up.
Anyway, maybe you could ask your doctor about LDN?
sue
Spondyloarthropathy, HLAB27 negative
Humira (still methylprednisone for flares, just not as often. Aleve if needed, rarely.)
LDN/zanaflex/flector patches over SI/ice
vits C, D. probiotics. hyaluronic acid. CoQ, Mg, Ca, K.
chiro
walk, bike
no dairy (casein sensitivity), limited eggs, limited yeast (bread)
|
|
|
|
|
Joined: Jan 2008
Posts: 21,346 Likes: 2
Very_Addicted_to_AS_Kickin
|
|
OP
Very_Addicted_to_AS_Kickin
Joined: Jan 2008
Posts: 21,346 Likes: 2 |
Step one: No TB!
now to have insurance approve the request.....
sue
Spondyloarthropathy, HLAB27 negative
Humira (still methylprednisone for flares, just not as often. Aleve if needed, rarely.)
LDN/zanaflex/flector patches over SI/ice
vits C, D. probiotics. hyaluronic acid. CoQ, Mg, Ca, K.
chiro
walk, bike
no dairy (casein sensitivity), limited eggs, limited yeast (bread)
|
|
|
|
0 members (),
11
guests, and
806
robots. |
|
Key:
Admin,
Global Mod,
Mod
|
|
|
|
