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#478959 10/25/12 02:08 PM
Joined: May 2012
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DoubleT Offline OP
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Hey all...... What is the group experience on elbow pain? Specifically bursitis?
Is this common with us?
I have a real good case of elbow bursitis ...... Painful, painful, painful !!!!!

Any shared experiences?

Also - I' m not depressed - I'm not down - it's not that ..... But do you guys think it's just partof the whole disease and fatigue thing that causes a drop in the whole physical (ahem!) side of life? seems kind of unexpected in us blokes? Aren't we supposed to be stereotypically 'primed'. .? Forgive the clumsy euphemisms.

Any shared stories would be comforting I guess.

W

DoubleT #478971 10/25/12 05:48 PM
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Very_Addicted_to_AS_Kickin
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Very_Addicted_to_AS_Kickin
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DoubleT - There's a forum for fellas. You might be more comfortable there? Ask a moderator to give you the 'fellas' link


MollyC1i - Riding OutAS
DoubleT #478974 10/25/12 06:00 PM
Joined: Jan 2010
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Major_AS_Kicker
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Enthesitis in the elbow has been a major problem for me this year, constantly aggravated by both using crutches to walk, and the amount of computer work that I have to do. But the good news is that it responds really well to any kind of anti-inflammatory treatment. I can't take NSAIDs orally any more, but was using 3x a day application of voltaren gel for a while, and now that I am taking a 3 month course of steroids (20 mg a day of prednisolone for two months, tapering after that) my elbow pain has completely disappeared. I did get a bit worried when the pain got sharper at one point that I was developing a bit of a tendon tear, but that doesn't seem to be the case.

I have heard warnings about steroid injections into the entheses (the point where tendons attach to bone, which is the typical AS inflammation site) - it can make the tendon far more prone to rupture, so best avoided.

I'd suggest just working with your rheumatologist on trying to get the best possible treatment going to really knock inflammation and slow down the whole disease process - whether thats NSAIDs, steroids or anti-tnfs.

cemc #479010 10/26/12 02:20 AM
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Very_Addicted_to_AS_Kickin
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good advice from cemc.

i'd like to add too that i've had more than one doctor confuse enthesitis for bursitis. one doctor was going to inject the bursitis until i was like "no, not there, but rather, here (about an inch away)" and he was like "oh, that's not the bursa, i don't know what to do then, you need a rheumatologist."

that was true but also, a lot PTs, orthos, etc can do for us when we develop tendon and ligament problems due to the enthesitis.

Could be bursitis, i'm not there, so i don't know. But like cdmc, i've had enthesitis at the elbows. I always do to some degree, but sometimes it has really flared.

For me, the thing that helps my enthesitis the most is the LDN (low dose naltrexone) and that is the symptom the LDN helps the most as well.



sue

Spondyloarthropathy, HLAB27 negative
Humira (still methylprednisone for flares, just not as often. Aleve if needed, rarely.)
LDN/zanaflex/flector patches over SI/ice
vits C, D. probiotics. hyaluronic acid. CoQ, Mg, Ca, K.
chiro
walk, bike
no dairy (casein sensitivity), limited eggs, limited yeast (bread)
DoubleT #479019 10/26/12 05:22 AM
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Posts: 1,046
Iron_AS_Kicker
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Fatigue is a common symptom when inflammation is high. If you can drop your inflammation significantly, will start feeling much more like your old self.

DoubleT #479021 10/26/12 09:54 AM
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Weird coincidence, today I was just thinking how annoying I now have a sore elbow on top of SI and back and shoulder pain! And then I see this new post!

But it's not that bad, but I was wondering (to myself) if it's a common joint to have pain in. It seems all major joints can/will be affected :'(

Cheers,
Emily


Diagnosed March 2012
First symptoms December 2011
31 years old
Determined to change my poison into medicine!
Runner, stamp collector, cat lover, cheese lover
KiwiEmily #479027 10/26/12 11:22 AM
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Very_Addicted_to_AS_Kickin
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Elbow pain, common? Fraid so! I get quite a bit of elbow pain. The L. has flared up recently - enthesisis. Have a problem turning inwards: aches like heck. The R. had a huge osteophyte removed from it 6 yrs ago. About 8 yrs ago had a cortisone injection in it, was left with a bent elbow; will not now straighten out properly (nerve damage, or???) and can't carry anything too heavy any longer in the R. hand.

Blasted bore.


MollyC1i - Riding OutAS

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