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#464260 03/04/12 12:37 PM
Joined: Nov 2010
Posts: 135
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Ricky Offline OP
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Hi all,

Some of you may have read the article by Juliette Wills in today's Mail on Sunday's on her struggle with AS.

It was partly the inspiration for my new blog post. Comment and let us all know what negatives you have turned into positives.

Hope you enjoy.

http://endlesstrax.com/2012/03/04/silver-lining/


Ricky

"Where there is tea, there is hope" - Unknown

"If you are going through hell, keep going" - Winston Churchill
Joined: Nov 2011
Posts: 256
Third_Degree_AS_Kicker
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Third_Degree_AS_Kicker
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Excellent post!

I do try to be positive. I don't let people know the half of what I hurt. I actually come from a mind over matter family. That said, there are a couple of things which has been frustrating me lately.

My illness is in my head, this from some of my mind over matter family. Not everyone mind you, but a few who don't doubt that I have pain, just that I have accepted it from the universe. Also these people think I imagine the NSD relief from my imaginary As pain.

I do think a positive attitude is important, but thought I would share that sad, quirky part of my story.


Iritis first diagnosed in 1991, presently recurrent and steroid resistant.
Tested HLA B27 positive in 1996.
AS diagnosed October of 2011.

Putting most of my eggs in the NSD and exercise basket, using only TENS, massage, heat and ice, and NSAIDS (sparingly) for pain. Drops for iritis as flare necessitates. Looking back I feel I would have been diagnosed with AS years ago, if I had found a rheumy earlier than 2011.
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First_Degree_AS_Kicker
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Originally Posted By: Kancie
Excellent post!



My illness is in my head, this from some of my mind over matter family. Not everyone mind you, but a few who don't doubt that I have pain, just that I have accepted it from the universe. Also these people think I imagine the NSD relief from my imaginary As pain.


I completely understand. Yet...I'll take my imaginary relief from NSD...because I'm a much nicer person laugh


Where your mind goes your life follows
Joined: Jun 2010
Posts: 3,865
Royal_AS_kicker
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Fab blog. Fab article. Thanks! cheerleader


ANA+ RF+ Rh- HLAB27+
Dx JRA 1967, GAD 1997, AS 2009, HMs 2010, CPS 2013
pulmonary edema w/ NSAIDS 2009

Movin' it so I don't lose it!

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Black_Belt_AS_Kicker
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It frustrates me when I read about people suffering who never mention diet (they were never told?). As somebody has quoted before 'if food can kill you why then can't it heal you'.
There was an article in one of my sisters magazines about an ex pop singer who was suffering with AS, again no mention of diet. Well I've jumped in with both boots and emailed the author about the NSD diet. As a journalist she may all ready have looked into it and tried but had no success but you never know. Even if you dont want to trust to diet alone my theory is every bit helps. If you have something thats 'incurable' you want to do absolutely everything you can to keep it at bay.


NSD almost all the way
No dairy hard cheeses occasionally and homemade ghee
Still trying to work out what makes me tick and what makes me drop

'Chew your drinks and drink your foods'
'Let your knife & fork do the work of your teeth and let your teeth do the work of your stomach'
Mahatma Gandhi
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Posts: 21,346
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Very_Addicted_to_AS_Kickin
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and don't forget sense of humour smile

my favorite line of her article:

"on the beach, despite my scars, I wear a bikini. If anyone stares, I tell them that I was mauled by a bear." smile



sue

Spondyloarthropathy, HLAB27 negative
Humira (still methylprednisone for flares, just not as often. Aleve if needed, rarely.)
LDN/zanaflex/flector patches over SI/ice
vits C, D. probiotics. hyaluronic acid. CoQ, Mg, Ca, K.
chiro
walk, bike
no dairy (casein sensitivity), limited eggs, limited yeast (bread)
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Posts: 135
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Ricky Offline OP
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Originally Posted By: Sue22
and don't forget sense of humour smile

my favorite line of her article:

"on the beach, despite my scars, I wear a bikini. If anyone stares, I tell them that I was mauled by a bear." smile


Yeah that part made me laugh too. I'd probably do the same smile


Ricky

"Where there is tea, there is hope" - Unknown

"If you are going through hell, keep going" - Winston Churchill
Joined: Jan 2009
Posts: 4,501
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Supreme_AS_Kicker
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Definitely the sense of humor. If I couldn't find something to laugh at, to distract me (reading-music-movie-dinner out, ect), it would be a tough time.


DX: Psoriatic Arthritis, Osteoporosis, Psoriasis
Meds: MTX since Oct 2009, 15mg/week. Cimzia-restarted after 2 yrs away.
Epidural Steroid Injections x8; Lumbar Radiofreq Ablation x2
SIJ Steroid Injection x3; Bilateral Radiofreq Ablation SIJ x9

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