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Joined: Nov 2011
Posts: 256
Third_Degree_AS_Kicker
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Third_Degree_AS_Kicker
Joined: Nov 2011
Posts: 256
Keeping Straight Through the Night

Some good info on sleeping, including support and positioning when you are unable to sleep on back or belly.


Iritis first diagnosed in 1991, presently recurrent and steroid resistant.
Tested HLA B27 positive in 1996.
AS diagnosed October of 2011.

Putting most of my eggs in the NSD and exercise basket, using only TENS, massage, heat and ice, and NSAIDS (sparingly) for pain. Drops for iritis as flare necessitates. Looking back I feel I would have been diagnosed with AS years ago, if I had found a rheumy earlier than 2011.
Joined: Nov 2011
Posts: 38
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Posts: 38
Dusty,
I am finally getting sleep.
PM night time, meds helped.

But the meds the neurologist gave are of course the best.
6-7 hours now. I do not feel rested, but the flu like symptoms are not as bad.

are you taking a night time med?

For horrendous nights I take either tramal or Endone/ OxyContin they sometimes take the edge off. For your down right annoying nights I will use 3 nuerofen.. It can help for a bit..
I try to keep painkillers to a minimum so my body isn't overloaded with meds all the time. The stronger painkillers can cause "cockroaches" to run around under my skin all night if I"m unlucky
The old adage sleep when your dead seems to be my motto at present smile

Joined: Feb 2010
Posts: 1,127
Steel_AS_Kicker
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Steel_AS_Kicker
Joined: Feb 2010
Posts: 1,127
I know this is not good but I just can't wear shoes. If anything I wear a pair of thongs (flip flops for the non aussies)lol
Not a good thing for the heels or arches but if I wear shoes withing 2 minutes my entire spine is screaming.

Big no no is spending thousands of dollars on a special mattress designed to help those with bad backs and never being uble to sleep on it. My advice if you are going to buy an expensive mattress give yourself plenty of time to do it. You realy need to spend at least an hour laying on each mattress in the store. I tried the one I bought for about 15mins and it felt great but after getting it home the first night I found it was no good.


Joined: Jan 2008
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Very_Addicted_to_AS_Kickin
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Very_Addicted_to_AS_Kickin
Joined: Jan 2008
Posts: 21,346
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i'm like you with the whole wearing shoes vs not wearing shoes, though for me its my feet that become inflamed, flaring up my PF. for me its the arch support, so i have a few "shoes" with no arch support. for years i tried to be good about arch support: orthotics, custom made orthotics, shoes that others swore by for arch support. but in the end, even my podiatrist agreed with me that i needed FLAT! the flat shoes with no cushioning can be hard on my feet if i'm on hard surfaces; the trick is for me to find flat shoes with some cushioning on the outside / bottom. or standing barefoot on a cushion (that's the best and what i do in the kitchen and in the lab) or walking on grass, in the dirt, anything soft.

as for the bed. i spent hours laying by myself on beds in stores for a few years. then finally found a bed i could lay on. but didn't think to try it with another person in the bed. when my husband lays as well, the bed tilts in toward the middle and makes my neck / face / upper back go into spasm. so separate beds. we said til we got something like an air bed with separate sides. but honestly, we both sleep better this way. hadn't realized how much we both woke one another up. we both sleep more soundly now.



sue

Spondyloarthropathy, HLAB27 negative
Humira (still methylprednisone for flares, just not as often. Aleve if needed, rarely.)
LDN/zanaflex/flector patches over SI/ice
vits C, D. probiotics. hyaluronic acid. CoQ, Mg, Ca, K.
chiro
walk, bike
no dairy (casein sensitivity), limited eggs, limited yeast (bread)
Joined: Nov 2002
Posts: 6,925
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Addicted_to_AS_Kickin
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Addicted_to_AS_Kickin
Joined: Nov 2002
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Hi Greg. From one Okie to another...I have a brace; in fact two different ones. I am supposed to wear one when I am doing housework or yard work to protect my back. I am not supposed to wear it all of the time because of the weakness that can happen. The spine doctor said it was very important though to wear it during times of stress that I could really hurt my back.

I suppose it depends on the doctor. confused I do wear it though for some activities.

Beautiful weather we are having!

Blessings.
Possi hrtballon




Possi
*********************************************************

RUN WHEN YOU CAN,
WALK IF YOU HAVE TO,
CRAWL IF YOU MUST,
JUST NEVER EVER GIVE UP!



"A FRIEND HEARS THE SONG IN YOUR HEART AND SINGS IT TO YOU WHEN YOU CAN'T REMEMBER THE WORDS."

"A FRIEND LOOKS THROUGH YOUR BROKEN FENCE TO ADMIRE YOUR FLOWERS."

Joined: Oct 2008
Posts: 895
gbash Offline OP
Master_AS_Kicker
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Master_AS_Kicker
Joined: Oct 2008
Posts: 895
Possi, sounds like your doctor understands the constraints of AS. I have enjoyed the past few days. I am so ready for Spring.

--Greg


AS symptoms started 1991. Official dx in 2006 with HLA-B27+, fused SIJ, bone spurs in back, extreme rib/hip pain, and other family with SpA. Started Enbrel in 2006 with good results, but stopped in 2010 due to nerve damage (MS) from it. Getting good results with no-starch diet since 2011.
Joined: Feb 2011
Posts: 1,968
Pea Offline
Captain_AS_Kicker
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Captain_AS_Kicker
Joined: Feb 2011
Posts: 1,968
Just got back from back surgeon and he doesn't like the fact that most of the night I sleep on my stomach because my neck is turned. However, I too feel like a rotisserie. I start on my back, move to the side and then the stomach and then this goes on all night. I wake up pretty well that way. Stiff but not tore up from the floor up!
I think whatever makes you comfortable enough to get the kind of sleep we need is the dealio!
We bought a Sealy latex foam mattress a year ago and it is the soft one. Love it to pieces. It goes up and down and vibrates but it is so comfy. It is not like a tempurpedic. I tried one of those and it was too hard to turn over. This is supposed to never sag and is free of dust mites as well as our pillow's. It is the best bed I have ever had but the most expensive. Would buy it all over again though!


Pea
Diagnosed with A.S. 29 year's ago.
Diagnosed with Fibro 10 year's ago.
Remicade, Intrathecal Pain Pump 2013
Joined: Nov 2011
Posts: 256
Third_Degree_AS_Kicker
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Third_Degree_AS_Kicker
Joined: Nov 2011
Posts: 256
Totally agree on the mattress buying, I have a lovely bed that hurts me so badly.


Iritis first diagnosed in 1991, presently recurrent and steroid resistant.
Tested HLA B27 positive in 1996.
AS diagnosed October of 2011.

Putting most of my eggs in the NSD and exercise basket, using only TENS, massage, heat and ice, and NSAIDS (sparingly) for pain. Drops for iritis as flare necessitates. Looking back I feel I would have been diagnosed with AS years ago, if I had found a rheumy earlier than 2011.
Joined: Mar 2011
Posts: 273
Third_Degree_AS_Kicker
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Third_Degree_AS_Kicker
Joined: Mar 2011
Posts: 273
Originally Posted By: Brandon
I can't sleep on my sides anymore. It hurts to bad. Of course I can't sleep in any position sometimes...lol.


I used to sleep on my left side to help with IBS... it is best position if you have stomach upset. and if I am napping because of nausea then i lay on right side. Right now i wish i had 2 beds. a firm one to sleep on my back in and a soft cushie one that would cradle me when my stomach bad. currently when i lay on side i have pillow between knees (since teen years) one to Hug (big fluffy) small pillow to support neck, and now a thin one to hold my right arm at the correct position. I do not travel well let me tell ya! lol...
but this is the only way i can get to sleep sometimes. i sleep better if on my back on firm mattress. soft matres i wake up in agony because of ribs cant hardly breath.
oh and the Chiro.. they are not all created equal. Dont go to one who helps with "back pain" or deals in symptom releif only, rather find one who believes in regular checks and gentle adjustment using only the drop table and who's goal is to help you get and remain as subluxation free as possible.. its like getting good circulation for your nervous system. i'd be 1000% worse without mine. but a bad one made me worse for sure


Diagnosed Fibromyalgia 2004
Diagnosed Ankylosing Spodylitis Sept 2011.
Vertigo Since October 21 2012
Humira June 2012
Spending Each day using it to the full to help people in my community have hope, the only hope that keeps me going despite pain and fatigue every day most of the day.
Joined: Mar 2011
Posts: 273
Third_Degree_AS_Kicker
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Third_Degree_AS_Kicker
Joined: Mar 2011
Posts: 273
for sleeping on stomach.. go to walmart and buy massage table. then put a few pilows under feet and thin one under the ribs and voila sleep face down without cranking neck. i try to get 30 min a day but its in basement so i keep forgetting to do that.


Diagnosed Fibromyalgia 2004
Diagnosed Ankylosing Spodylitis Sept 2011.
Vertigo Since October 21 2012
Humira June 2012
Spending Each day using it to the full to help people in my community have hope, the only hope that keeps me going despite pain and fatigue every day most of the day.
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