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Joined: Jan 2008
Posts: 21,346 Likes: 2
Very_Addicted_to_AS_Kickin
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Very_Addicted_to_AS_Kickin
Joined: Jan 2008
Posts: 21,346 Likes: 2 |
another:
my chiro tells me this is from facet joint pain. fortunately its short lived and only when my SI joint seems off kilter. he showed me on a skeletal model what may be happening.
when i lay down, even with knees over pillows to relieve lumbar, it feels like an anaconda is inside, squeezing my innards. its a scary feeling, but thankfully thus far settles out within a few minutes.
sue
Spondyloarthropathy, HLAB27 negative Humira (still methylprednisone for flares, just not as often. Aleve if needed, rarely.) LDN/zanaflex/flector patches over SI/ice vits C, D. probiotics. hyaluronic acid. CoQ, Mg, Ca, K. chiro walk, bike no dairy (casein sensitivity), limited eggs, limited yeast (bread)
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Joined: Dec 2003
Posts: 725
Decorated_AS_Kicker
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Decorated_AS_Kicker
Joined: Dec 2003
Posts: 725 |
Hi Erika, Great thread. What about the "am I walking on glass?" one or the "are my knickers to tight around my legs?" one lol It's a shame we can all share these and find them common amongst us! Cheers, Deb
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Joined: Jan 2008
Posts: 21,346 Likes: 2
Very_Addicted_to_AS_Kickin
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Very_Addicted_to_AS_Kickin
Joined: Jan 2008
Posts: 21,346 Likes: 2 |
i know what makes my friends and colleagues "wince". when i tell them how the spasming muscles pull the shoulder blade back and the ribs out so that the bones rub against one another with nerves pressed in between. so while not exactly an analogy of how pain feels. its a description that gets the point across to doctors and non-doctors alike. and then i tell them its even more painful than it sounds. gets the point across.
sue
Spondyloarthropathy, HLAB27 negative Humira (still methylprednisone for flares, just not as often. Aleve if needed, rarely.) LDN/zanaflex/flector patches over SI/ice vits C, D. probiotics. hyaluronic acid. CoQ, Mg, Ca, K. chiro walk, bike no dairy (casein sensitivity), limited eggs, limited yeast (bread)
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Joined: Feb 2010
Posts: 1,127
Steel_AS_Kicker
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Steel_AS_Kicker
Joined: Feb 2010
Posts: 1,127 |
oo oo I have another. trying-to-chew-concrete-pain when I'm only eating chunky soup with bread.
Or the I-need-someone-to-sucker-punch-me-in the-jaw- pain when I have eat something like steak and my jaw has locked up.
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Joined: Jan 2010
Posts: 2,105
Major_AS_Kicker
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Major_AS_Kicker
Joined: Jan 2010
Posts: 2,105 |
"are my knickers too tight around my legs?" Yes! definitely! Plus the "hot ballbearing in my elbow joint", and when my my pudendal nerve (or something around there) gets a bit pinched its like I'm sitting on a very very sharp spike. My hip bones (edge of pelvic bones) feel like I've been kicked by a coo.
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Joined: Jan 2008
Posts: 21,346 Likes: 2
Very_Addicted_to_AS_Kickin
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Very_Addicted_to_AS_Kickin
Joined: Jan 2008
Posts: 21,346 Likes: 2 |
ah yes, the "kicked by a large hoofed animal square in the middle of my butt"! 
sue
Spondyloarthropathy, HLAB27 negative Humira (still methylprednisone for flares, just not as often. Aleve if needed, rarely.) LDN/zanaflex/flector patches over SI/ice vits C, D. probiotics. hyaluronic acid. CoQ, Mg, Ca, K. chiro walk, bike no dairy (casein sensitivity), limited eggs, limited yeast (bread)
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Joined: Sep 2011
Posts: 526
Veteran_AS_Kicker
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Veteran_AS_Kicker
Joined: Sep 2011
Posts: 526 |
How about when you have been feeling like a million bucks for too long. and its in the back of your mind......when you don't expect it....expect it,... its looming...waiting...festering like a boil within you...and getting angry.
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Joined: Jun 2010
Posts: 3,865
Royal_AS_kicker
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OP
Royal_AS_kicker
Joined: Jun 2010
Posts: 3,865 |
LOL - once again y'all have managed to talk me right out of a wicked mood. We're one tough irreverent group of limpers, right? 
ANA+ RF+ Rh- HLAB27+ Dx JRA 1967, GAD 1997, AS 2009, HMs 2010, CPS 2013 pulmonary edema w/ NSAIDS 2009
Movin' it so I don't lose it!
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Joined: Dec 2003
Posts: 725
Decorated_AS_Kicker
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Decorated_AS_Kicker
Joined: Dec 2003
Posts: 725 |
Hi! Ha Ha we are a good pair! I know the hot ballbearing in my elbow joint one too! Funny I am in Australia and you in Scotland - but we are a good pair. Cheers and kind regards, Deb
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Joined: Mar 2011
Posts: 273
Third_Degree_AS_Kicker
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Third_Degree_AS_Kicker
Joined: Mar 2011
Posts: 273 |
"Carrot Leg" ok this description gets gross but it was the only way to describe this persistant ache i had for years. and occasionally it appears and has now moved to my arms.
- Carrot Leg - imagine you are grabbing carrots out of the bag that has been in the fridge for longer than you can remember and you see a carrot, looks normal appears from all angles to be fine and then you pick it up an its rotten and mush... its not really bone or muscle or tendons its the whole package, but the skin doesnt hurt.
Vice Chest - Feels like i someone put load strap (like flat bed truck drivers use to keep load secure) and have rachetted it tight so to move aches every part of my rib cage and spine -(oh how its "lovely" to be woken up by that one. ruined a vacation a few years ago and gets me now and again at home.
Diagnosed Fibromyalgia 2004 Diagnosed Ankylosing Spodylitis Sept 2011. Vertigo Since October 21 2012 Humira June 2012 Spending Each day using it to the full to help people in my community have hope, the only hope that keeps me going despite pain and fatigue every day most of the day.
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