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ilbcrzn #413119 09/19/10 05:29 PM
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Hooray!!! That is fantastic. Since my symptoms are so similar to yours, I look forward to hearing your progress. Thanks for letting us know.

Sue22 #413120 09/19/10 05:30 PM
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Awesome, Sue. Indeed, "priceless". hugss yes hugss


DX: Psoriatic Arthritis, Osteoporosis, Psoriasis
Meds: MTX since Oct 2009, 15mg/week. Cimzia-restarted after 2 yrs away.
Epidural Steroid Injections x8; Lumbar Radiofreq Ablation x2
SIJ Steroid Injection x3; Bilateral Radiofreq Ablation SIJ x9
Sue22 #413126 09/19/10 06:11 PM
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hello all and thanks! your well wishes mean a lot to me as you've all seen me through this journey for so long now!

i want to describe everything and i will soon but second day i've woken with this killer migraine. yesterday it hung around most of the day, even my old standby tricks didn't shake it til i finally went outside for a bikeride......i had forgotten how a very emotional (even good) day can trigger one of these. i thought last night i had finally calmed myself down, but guess my brain is still too excited smile

later tonight i'll give the details. now off to help my husband pack up from his art show smile

have a good day all! and thanks again!



sue

Spondyloarthropathy, HLAB27 negative
Humira (still methylprednisone for flares, just not as often. Aleve if needed, rarely.)
LDN/zanaflex/flector patches over SI/ice
vits C, D. probiotics. hyaluronic acid. CoQ, Mg, Ca, K.
chiro
walk, bike
no dairy (casein sensitivity), limited eggs, limited yeast (bread)
Sue22 #413132 09/19/10 07:07 PM
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Migraines suck. Glad a bike ride helped you relax and get rid of it. Yes, those emotional swings can be good and bad for us. Looking forward to the recap of the visit.


DX: Psoriatic Arthritis, Osteoporosis, Psoriasis
Meds: MTX since Oct 2009, 15mg/week. Cimzia-restarted after 2 yrs away.
Epidural Steroid Injections x8; Lumbar Radiofreq Ablation x2
SIJ Steroid Injection x3; Bilateral Radiofreq Ablation SIJ x9
rumble #413147 09/19/10 08:41 PM
Joined: Feb 2010
Posts: 2,190
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That is such good news. I was saying prayers for you. They are answered. I can hardly wait till we hear all the news.
Donna


Donna
Cherish your yesterdays,
Dream your tomorrows,
But live your todays.
Do the very best you can
leave the rest to God.
God Bless,
Sue22 #413178 09/20/10 04:12 AM
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Originally Posted By: Sue22
airfare and hotel: ~$1000

doctor's visit and taxis: ~$200

a diagnosis (spondyloarthropathy) and treatment plan: priceless




Excellent post! I'm so happy for you Sue. Doesn't it just feel so good and take such a weight off your shoulders when a doc believes you and can finally Dx you?

Hugs
Jewelz

Sue22 #413179 09/20/10 04:28 AM
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Posts: 215
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That's amazing Sue, well done for sticking it out this long. Now you can focus on feeling better.
Onwards and upwards for you!
Felicity

Sue22 #413188 09/20/10 08:28 AM
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Posts: 8,190
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sue,

Im so glad you found an answer...would like to hear more on the treatment plan, how you feel about it ect..

Hugs,

Lisa


Speak kindly, Live simply, Care deeply, Love generously, and BLAH, HA, HA, LOUDLY! every chance you get.

Sue22 #413194 09/20/10 08:55 AM
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well, between waking up with a migraine two days in a row, helping hubby with his art show of which he won best in show! and having to get a letter of recommendation out tonight, well, i need to go to bed, so i guess all the details will have to wait one more day. but i was just so excited i had to share the quick news! roll

more tomorrow...........



sue

Spondyloarthropathy, HLAB27 negative
Humira (still methylprednisone for flares, just not as often. Aleve if needed, rarely.)
LDN/zanaflex/flector patches over SI/ice
vits C, D. probiotics. hyaluronic acid. CoQ, Mg, Ca, K.
chiro
walk, bike
no dairy (casein sensitivity), limited eggs, limited yeast (bread)
Sue22 #413210 09/20/10 04:48 PM
Joined: Jan 2009
Posts: 4,501
Likes: 1
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Congrats to your hubby. Have you ever posted pictures of his work? I'd be interested to see what got the best in show.

We are waiting for the specifics of your trip.....<tapping foot impatiently>

It's noon already. roll tongue2

Hope the headache is gone finally.


DX: Psoriatic Arthritis, Osteoporosis, Psoriasis
Meds: MTX since Oct 2009, 15mg/week. Cimzia-restarted after 2 yrs away.
Epidural Steroid Injections x8; Lumbar Radiofreq Ablation x2
SIJ Steroid Injection x3; Bilateral Radiofreq Ablation SIJ x9
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