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Joined: Aug 2008
Posts: 47
Member
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Member
Joined: Aug 2008
Posts: 47 |
Hooray!!! That is fantastic. Since my symptoms are so similar to yours, I look forward to hearing your progress. Thanks for letting us know.
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Joined: Jan 2009
Posts: 4,501 Likes: 1
Supreme_AS_Kicker
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Supreme_AS_Kicker
Joined: Jan 2009
Posts: 4,501 Likes: 1 |
DX: Psoriatic Arthritis, Osteoporosis, Psoriasis
Meds: MTX since Oct 2009, 15mg/week. Cimzia-restarted after 2 yrs away.
Epidural Steroid Injections x8; Lumbar Radiofreq Ablation x2
SIJ Steroid Injection x3; Bilateral Radiofreq Ablation SIJ x9
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Joined: Jan 2008
Posts: 21,346 Likes: 1
Very_Addicted_to_AS_Kickin
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OP
Very_Addicted_to_AS_Kickin
Joined: Jan 2008
Posts: 21,346 Likes: 1 |
hello all and thanks! your well wishes mean a lot to me as you've all seen me through this journey for so long now! i want to describe everything and i will soon but second day i've woken with this killer migraine. yesterday it hung around most of the day, even my old standby tricks didn't shake it til i finally went outside for a bikeride......i had forgotten how a very emotional (even good) day can trigger one of these. i thought last night i had finally calmed myself down, but guess my brain is still too excited  later tonight i'll give the details. now off to help my husband pack up from his art show have a good day all! and thanks again!
sue
Spondyloarthropathy, HLAB27 negative
Humira (still methylprednisone for flares, just not as often. Aleve if needed, rarely.)
LDN/zanaflex/flector patches over SI/ice
vits C, D. probiotics. hyaluronic acid. CoQ, Mg, Ca, K.
chiro
walk, bike
no dairy (casein sensitivity), limited eggs, limited yeast (bread)
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Joined: Jan 2009
Posts: 4,501 Likes: 1
Supreme_AS_Kicker
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Supreme_AS_Kicker
Joined: Jan 2009
Posts: 4,501 Likes: 1 |
Migraines suck. Glad a bike ride helped you relax and get rid of it. Yes, those emotional swings can be good and bad for us. Looking forward to the recap of the visit.
DX: Psoriatic Arthritis, Osteoporosis, Psoriasis
Meds: MTX since Oct 2009, 15mg/week. Cimzia-restarted after 2 yrs away.
Epidural Steroid Injections x8; Lumbar Radiofreq Ablation x2
SIJ Steroid Injection x3; Bilateral Radiofreq Ablation SIJ x9
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Joined: Feb 2010
Posts: 2,190
Major_AS_Kicker
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Major_AS_Kicker
Joined: Feb 2010
Posts: 2,190 |
That is such good news. I was saying prayers for you. They are answered. I can hardly wait till we hear all the news.
Donna
Donna
Cherish your yesterdays,
Dream your tomorrows,
But live your todays.
Do the very best you can
leave the rest to God.
God Bless,
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Joined: Jul 2009
Posts: 296
Third_Degree_AS_Kicker
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Third_Degree_AS_Kicker
Joined: Jul 2009
Posts: 296 |
airfare and hotel: ~$1000
doctor's visit and taxis: ~$200
a diagnosis (spondyloarthropathy) and treatment plan: priceless
Excellent post! I'm so happy for you Sue. Doesn't it just feel so good and take such a weight off your shoulders when a doc believes you and can finally Dx you? Hugs Jewelz
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Joined: Mar 2008
Posts: 215
Second_Degree_AS_Kicker
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Second_Degree_AS_Kicker
Joined: Mar 2008
Posts: 215 |
That's amazing Sue, well done for sticking it out this long. Now you can focus on feeling better.
Onwards and upwards for you!
Felicity
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Joined: Nov 2003
Posts: 8,190
Very_Addicted_to_AS_Kickin
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Very_Addicted_to_AS_Kickin
Joined: Nov 2003
Posts: 8,190 |
sue,
Im so glad you found an answer...would like to hear more on the treatment plan, how you feel about it ect..
Hugs,
Lisa
Speak kindly, Live simply, Care deeply, Love generously, and BLAH, HA, HA, LOUDLY! every chance you get.
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Joined: Jan 2008
Posts: 21,346 Likes: 1
Very_Addicted_to_AS_Kickin
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OP
Very_Addicted_to_AS_Kickin
Joined: Jan 2008
Posts: 21,346 Likes: 1 |
well, between waking up with a migraine two days in a row, helping hubby with his art show of which he won best in show! and having to get a letter of recommendation out tonight, well, i need to go to bed, so i guess all the details will have to wait one more day. but i was just so excited i had to share the quick news!  more tomorrow...........
sue
Spondyloarthropathy, HLAB27 negative
Humira (still methylprednisone for flares, just not as often. Aleve if needed, rarely.)
LDN/zanaflex/flector patches over SI/ice
vits C, D. probiotics. hyaluronic acid. CoQ, Mg, Ca, K.
chiro
walk, bike
no dairy (casein sensitivity), limited eggs, limited yeast (bread)
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Joined: Jan 2009
Posts: 4,501 Likes: 1
Supreme_AS_Kicker
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Supreme_AS_Kicker
Joined: Jan 2009
Posts: 4,501 Likes: 1 |
Congrats to your hubby. Have you ever posted pictures of his work? I'd be interested to see what got the best in show. We are waiting for the specifics of your trip.....<tapping foot impatiently> It's noon already.  Hope the headache is gone finally.
DX: Psoriatic Arthritis, Osteoporosis, Psoriasis
Meds: MTX since Oct 2009, 15mg/week. Cimzia-restarted after 2 yrs away.
Epidural Steroid Injections x8; Lumbar Radiofreq Ablation x2
SIJ Steroid Injection x3; Bilateral Radiofreq Ablation SIJ x9
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