banners
Kickas Main Page | Rights and Responsibilities | Donate to Kickas
Forum Statistics
Forums29
Topics43,791
Posts518,790
Members13,830
Most Online1,568
Jun 29th, 2016
Newest Members
Tanner, Marydoll, Rogeroyer, Michal, GreenCloud
13,830 Registered Users
KickAs Team
Administrator/owner:
John (Dragonslayer)
Administrator:
Melinda (mig)
WebAdmin:
Timo (Timo)
Administrator:
Brad (wolverinefan)

Moderators:
· Tim (Dotyisle)
· Chelsea (Kiwi)
· Megan (Megan)
· Wendy (WendyR)
· John (Cheerful)
· Chris (fyrfytr187)

QR Code
If you want to use this QR code (Quick Response code) just save the image and paste it where you want. You can even print it and use it that way. Coffee cups, T-Shirts etc would all be good for the QR code.

KickAS QR Code
Previous Thread
Next Thread
Print Thread
Page 1 of 3 1 2 3
Joined: Jul 2004
Posts: 1,934
Kiwi Offline OP
OP Offline
Joined: Jul 2004
Posts: 1,934
Hey all, I wasn't sure if I should post this here or in the AS Pharmacy.....

As you may know my hubby Jon has had AS since late 2003 and it was really agressive. He started the No Starch Diet in June 2004 and ended up achieving remission of his AS symptoms.

However, since last winter we have found most vegies and fruit have turned starchy here in New Zealand for some reason...don't have a clue why. Stuff that Jon could previously eat by the truckload and which always tested negative for starch now tested postive eg cabbage. And Jon went downhill as a result as it took us a while to figure it out and we have been struggling to get him back on track ever since. I think it put him back by about 2 years progress. His diet became ridiculously restrictive since mid 2008.

So I started Jon on LDN a couple of months ago. I even managed to get the capsules compounded to be starch free. He only agreed to try it as it seems so safe...he is very scared of side effects on most arthritis meds and just wont take them.

He started on 3mg and within 2 days his swollen feet & ankles which had been bothering him all winter cleared up. I didn't believe him...said it can't be...must be a placebo so he proved it by RUNNING around the lounge doing ballet leaps! hehehe smile

He started on 4.5mg about a month ago and all I can say is WOW! He is still on the NSD but no longer has to be as ridiculously strict as he had been before. Still no grains or obvious starches in his diet but he can eat a lot more fruit and vegies and can now tolerate dairy. For the first time in 5 years he had ice cream last night. I think I saw a tear in his eye, hehehe.

When he does eat something a little bit starchy he will still get sore but nowhere near the kind of reaction he used to get and it's almost like the LDN wipes the slate clean overnight as he usually wakes up the next day feeling fine again. He recovers very quickly now. He has NO side effects from the LDN either.

Just wanted to let you all know.....once again KickAS has provided the solution for Jon...first and continuing NSD and now LDN. Also a big thanks to Bridget as I've been watching her progress on LDN the last couple of years....cautiously watching to see if it was worth a crack.

KickAS YOU ARE AWESOME!! THANK YOU SO MUCH


Chelsea smile

[Linked Image]
Joined: Apr 2009
Posts: 1,576
Gold_AS_Kicker
Offline
Gold_AS_Kicker
Joined: Apr 2009
Posts: 1,576
So glad to hear it!!

Joined: May 2002
Posts: 481
Warrior_AS_Kicker
Offline
Warrior_AS_Kicker
Joined: May 2002
Posts: 481
Wow Chelsea,

Its good to know better results coming in with LDN for AS. After all the diet discipline that you and your hubby have followed all these years, it sounds like poetic justice.

I tried LDN (not the best way as prescribed) and did not have good results. Here none of the pharmacies are ready for prepare LDN for me.

I hope LDN gets more attention from the medical community for the treatment of AS.

Ankush


The World can only change from within...

Joined: Nov 2007
Posts: 1,763
Diamond_AS_Kicker
Offline
Diamond_AS_Kicker
Joined: Nov 2007
Posts: 1,763
WOOHOO!!! I'm so glad he is able to *gasp* DANCE!! And eat ice cream! Finally, it seems he has a little more freedom.


~ Trudi: homeschooling mom to 6: 16,14,11,9,7, 6 mos


Joined: Feb 2008
Posts: 484
Warrior_AS_Kicker
Offline
Warrior_AS_Kicker
Joined: Feb 2008
Posts: 484
That is so great to hear. Congratulations. I haven't really told anyone, but I am 2 weeks in to my own LDN treatment. I was at 1.5 mgs for a week then 2 for half a week, then 3mgs starting last night. I must say. I have had some IBD problems last week. It almost seems like the LDN did it and am somewhat scared. What else can I expect from my backward a#%. Everything I ever do or everything that happens to me turns out backwards or in the 1% category. Haha. I will do a full report in a month.

Adam


Hey, somebody stole my quote! - Me
Joined: Jan 2008
Posts: 21,346
Likes: 1
Very_Addicted_to_AS_Kickin
Offline
Very_Addicted_to_AS_Kickin
Joined: Jan 2008
Posts: 21,346
Likes: 1
glad to hear that the LDN seems to be working so well for him.

i too have been on LDN, for the last 3 months.

as far as i can tell, no obvious side effects, that's good.

i don't think it does anything in preventing the inflammation from occurring for me, however, i think it may help my body get rid of it a little faster. i think i recover a little better. but i still need something that prevents the inflammation from occurring in the first place.



sue

Spondyloarthropathy, HLAB27 negative
Humira (still methylprednisone for flares, just not as often. Aleve if needed, rarely.)
LDN/zanaflex/flector patches over SI/ice
vits C, D. probiotics. hyaluronic acid. CoQ, Mg, Ca, K.
chiro
walk, bike
no dairy (casein sensitivity), limited eggs, limited yeast (bread)
Joined: Apr 2002
Posts: 3,607
Offline
Joined: Apr 2002
Posts: 3,607
That's awesome news Kiwi! Thanks for sharing the positivity. laugh

Joined: Apr 2002
Posts: 12,465
M
mig Offline
Offline
M
Joined: Apr 2002
Posts: 12,465
Wow Chelsea! That's terrific news! I am sooo happy for you both. smile

And I think you should get major kudos, applause and extra bonus points for being the incredibly supportive ASKickin' spouse that you are!

clap clap clap


mig
Joined: Mar 2007
Posts: 1,461
Silver_AS_Kicker
Offline
Silver_AS_Kicker
Joined: Mar 2007
Posts: 1,461
Love it! clap


Kind Regards,
Jay

Almost all of us long for peace and freedom; but very few of us have much enthusiasm for the thoughts, feelings, and actions that make for peace and freedom. - Aldous Huxley

Was the government to prescribe to us our medicine and diet, our bodies would be in such keeping as our souls are now. - Thomas Jefferson
Joined: Jan 2004
Posts: 9,845
Likes: 4
Very_Addicted_to_AS_Kickin
Offline
Very_Addicted_to_AS_Kickin
Joined: Jan 2004
Posts: 9,845
Likes: 4
holly snowflake1 santa reindeer clap Yea, Chelsea. Terrific good news. Well done you and that man o'yours. Soooo very glad it is working - best news ever. You musr add the story to the LDN forum group...inspire others to try LDN. Did you read the LDN newsletter I posted a couple of day ago?

The best of evrything on the LDN - yes, I continue to bless Bridget for posting of it in the first place. YEA! clap

holly holly snowflake1 elf santa reindeer reindeer reindeer reindeer holly holly


MollyC1i - Riding OutAS
Page 1 of 3 1 2 3

Link Copied to Clipboard
Who's Online Now
0 members (), 39 guests, and 66 robots.
Key: Admin, Global Mod, Mod
Recent Posts
Uveitis
by Missalicia - 05/25/22 05:38 AM
New recipe website from Janneke
by DragonSlayer - 05/10/22 05:03 PM
Looking for help dealing with Heartburn
by Magician - 03/11/22 11:15 PM
Uveitis again and I miss you guys!
by Magician - 01/20/22 05:14 AM
Electromyography (EMG) test
by Magician - 10/01/21 04:03 AM
Where did all the AS kickers go? :)
by Didier - 05/17/19 01:06 PM
Low dose naltrexone, anyone try it?
by lulu12 - 07/10/13 09:45 PM
Popular Topics(Views)
3,172,505 hmmm
1,235,565 OMG!!!!
641,126 PARTY TIME!
Powered by UBB.threads™ PHP Forum Software 7.7.5
(Release build 20201027)
Responsive Width:

PHP: 5.5.38 Page Time: 0.022s Queries: 35 (0.007s) Memory: 3.2769 MB (Peak: 3.5376 MB) Data Comp: Zlib Server Time: 2022-05-28 05:11:01 UTC
Valid HTML 5 and Valid CSS