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Nov 2nd, 2025
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Joined: Sep 2001
Posts: 2,920
Presidential_AS_Kicker
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OP
Presidential_AS_Kicker
Joined: Sep 2001
Posts: 2,920 |
Hi Dave! How are things with you? How many of these anti TNF's have you been on, and have you had any luck?
Take care.
Hugs,
Sue
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Joined: Sep 2001
Posts: 2,920
Presidential_AS_Kicker
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OP
Presidential_AS_Kicker
Joined: Sep 2001
Posts: 2,920 |
Hi Steve! So good to hear from you too  How are you doing? Sorry about the TMJ - horrible isn't it? The necrotic jaw problems were so bad tho, I really couldn't bear going thru all that again  I can't believe your gorgeous girls are 6 already!! It hardly seems any time at all since we were all eagerly awaiting their arrival  I bet they keep you on your toes  Take care. Hugs, Sue
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Joined: Sep 2001
Posts: 2,920
Presidential_AS_Kicker
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OP
Presidential_AS_Kicker
Joined: Sep 2001
Posts: 2,920 |
Hi Sue, Nice to meet you Yes - it IS a good name isn't it?? LOL Bet you were happy the day you found this place? I was a "regular" for several years up until a couple of years' ago, after my 2nd spinal fusion op, and subsequent flare up of symptoms. It was my 2nd home back then, and hopefully I'll be able to get here a bit more often from now on (if my hips will let me!) Take care. Hugs, Sue
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Joined: Sep 2001
Posts: 8,397
Very_Addicted_to_AS_Kickin
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Very_Addicted_to_AS_Kickin
Joined: Sep 2001
Posts: 8,397 |
Well, well, our gal Sue is back!
I miss the dancing and thew twirling? How is your duaghter; where does she live?
I have taken a moment to consider the good thoughts and joy I have when I think of you! The smiles you brought to our faces and the personal touch you seemed to give our home here! Yesa, I missed you.
It is good that you are back, I pray for remission, for you!
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Joined: Nov 2006
Posts: 358
Fifth_Degree_AS_Kicker
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Fifth_Degree_AS_Kicker
Joined: Nov 2006
Posts: 358 |
Jaw necrosis is serious and I can understand the worry. I would make sure your rheumatologist is aware that this is a possible side effect and you have already had jaw necrosis. I don't know if it is a possible side effect of Remicade, but if not, I would ask if that would be a better option considering your risk.
"Reality is the leading cause of stress--for those in touch with it." --Jane Wagner
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Joined: Sep 2001
Posts: 3,413 Likes: 1
Imperial_AS_Kicker
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Imperial_AS_Kicker
Joined: Sep 2001
Posts: 3,413 Likes: 1 |
Hey Sue!!
good to see your post...you rock...don't ever forget...your posts have inspired me for years...
hang in there, hope the biologics help you like they have me in the last couple years!
Peace
Linc
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Joined: Sep 2001
Posts: 2,920
Presidential_AS_Kicker
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OP
Presidential_AS_Kicker
Joined: Sep 2001
Posts: 2,920 |
Hey Linc!
Thanks for the welcome! Great to hear from you too. So glad the bios are working well for you.
Hugs,
Sue
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Joined: Sep 2001
Posts: 2,920
Presidential_AS_Kicker
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OP
Presidential_AS_Kicker
Joined: Sep 2001
Posts: 2,920 |
Aaaaw shucks Lon! You're making me blush!! I miss the dancing too - still hoping to get back there one of these days. Great to hear from you - I've missed you too. My daughter is well, thanks. She lives a few miles from me. Thank you so much for your prayers. Mine are with you too. How are you keeping? Remission would be wonderful wouldn't it? Hugs, Sue
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Joined: Sep 2001
Posts: 2,920
Presidential_AS_Kicker
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OP
Presidential_AS_Kicker
Joined: Sep 2001
Posts: 2,920 |
Hi Kathy, Many thanks for your reply. I've been back to my rheumy today for a chat. Took the Humira instruction/side effects thingy etc with me and explained my fears to him. (I've been with him for 10 years or so, fortunately, so he knows about the jaw necrosis and understands my fears.) However, after reading thru all the "gumph", he still thinks I should give Humira a chance, but says I must stop taking it, or at least call him, immediately if I start having any probs with my jaw or anything else. I guess I'll have to "suck it up" and give it a try, otherwise he'll just say, "well, if you're not prepared to give the meds a chance I can't help you", which probably means I won't be given anything new at all in future.  He still insists the side effects are much the same in Humira as they are in Enbrel and all the other biologicals, and that jaw necrosis could happen anyway, with or without it......sigh......When I got it before I wasn't on anything except MTX. I must admit I feel as tho I'm playing Russian roulette sometimes, and I s'pose we're all guinea pigs, but if we want a shot at remission we really have no other choice....? Remicade next stop, perhaps?? Thanks again. Hugs, Sue
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Joined: Nov 2001
Posts: 18,187 Likes: 7
Very_Addicted_to_AS_Kickin
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Very_Addicted_to_AS_Kickin
Joined: Nov 2001
Posts: 18,187 Likes: 7 |
SUE!!! My goodness what a lovely surprise to weed through 4 days worth of posts and see your name! I'm sorry to hear that the Enbrel isn't doing it's stuff as effectively for you. I can't remember ... have they considered Remicade for you? I hope all is as well as it can be in your life and I look forward to hearing what's been going on.  Warm hugs,
Kat
A life lived in fear is a life half lived.
"Strictly Ballroom"
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