banners
Kickas Main Page | Rights and Responsibilities | Donate to Kickas
Forum Statistics
Forums29
Topics43,783
Posts518,706
Members13,796
Most Online1,568
Jun 29th, 2016
Newest Members
SallyH, haolin, FlaredUp314, LeaInPHX, rachelh913
13,796 Registered Users
KickAs Team
Administrator/owner:
John (Dragonslayer)
Administrator:
Melinda (mig)
WebAdmin:
Timo (Timo)
Administrator:
Brad (wolverinefan)

Moderators:
· Tim (Dotyisle)
· Chelsea (Kiwi)
· Megan (Megan)
· Wendy (WendyR)
· John (Cheerful)
· Chris (fyrfytr187)

QR Code
If you want to use this QR code (Quick Response code) just save the image and paste it where you want. You can even print it and use it that way. Coffee cups, T-Shirts etc would all be good for the QR code.

KickAS QR Code
Previous Thread
Next Thread
Print Thread
Page 1 of 2 1 2
#229247 05/21/06 11:31 PM
Joined: May 2006
Posts: 206
bobc Offline OP
Second_Degree_AS_Kicker
OP Offline
Second_Degree_AS_Kicker
Joined: May 2006
Posts: 206
Or should I call it "no reaction"? I was VERY disappointed a few days ago when I went in to see my Rheumy and mentioned to her that I'd cut my meds in half (indocin/probenecid), am having very little pain, and am considering dropping my meds altogether all because of the NSD. I explained what the NSD was and she just said "lots of bacteria have been linked to this.". That's it. Very dismissive. No congratulations, no inquiry for more information. Nothing. I don't know what I was expecting, but that cetainly wasn't it.

No matter. I shrugged it off w/a smile. It's so tiring to try to convince doctors (for the last 10 years) that I'm having pain. To finally get a diagnosis, and now finally find a wonderful way of controlling my pain...and I'm supposed to what? Convince her that it works? It's just so draining. I know it works and I'm thrilled w/all of you who are so supportive and free w/your advice.

Thanks to everyone.
Bob


Get busy living! www.sickopportunity.com
Bob Connors

Me and my girls
Joined: Jul 2004
Posts: 1,934
Offline
Joined: Jul 2004
Posts: 1,934
Yup, that's a pretty standard response I'm afraid.

Very frustrating because you'd think they'd be happy to hear you've found something that works and perhaps want to look into it as it could potentially help their other patients. Sadly this is not often the case.

I guess they must get all kinds of stories from patients claiming things have helped them (eg copper braclets etc) and most of them probably ARE rubbish and so they just don't bother looking into things like this.

Take care, glad you are doing so well
Chelsea


Chelsea smile

Joined: Mar 2006
Posts: 123
G
Journeyman_AS_Kicker
Offline
Journeyman_AS_Kicker
G
Joined: Mar 2006
Posts: 123
Yes, I saw a rheumy for the first time a couple of weeks ago, and was finally diagnosed with AS. During the appointment I talked extensively about the strong correlation between MAJOR pain reduction and following the NSD. I didn't receive any feedback about the diet. He didn't bad-mouth the NSD, thank goodness, but no reaction. Nonetheless, I guess it was gratifying enough to know that I'm being proactive enough with the NSD to be able to walk out of the rheumy appointment empty-handed (meaning with no Rx for drugs).

Joined: Apr 2002
Posts: 3,607
Offline
Joined: Apr 2002
Posts: 3,607
My rheumy didn't seem too impressed when I mentioned the NSD.
However, my GP is on board with the idea - he insisted that I should at least try a gluten free diet.

Joined: Sep 2001
Posts: 2,363
B
Colonel_AS_Kicker
Offline
Colonel_AS_Kicker
B
Joined: Sep 2001
Posts: 2,363
And without a thought she would have handed you a prescripton for one of the many poisons with a smile on her face!


'Then you should say what you mean,' the March Hare went on. 'I do,' Alice hastily replied; 'at least - at least I mean what I say - that's the same thing , you know.' 'Not the same thing a bit!' said the Hatter.
Joined: Mar 2002
Posts: 9,522
Likes: 2
Offline
Joined: Mar 2002
Posts: 9,522
Likes: 2
Hi Bob,

Good to hear feeling better. I have had similar experience with rheumy (no longer need to see since 4+ yrs without meds now). My GP was very encouraging with going on the diet... so did receive support from him.

Hope you continue to improve.

Tim


AS may win some battles, but I will win the war.

KONK - Keep ON Kicking
Joined: Apr 2002
Posts: 2,485
Z
Colonel_AS_Kicker
Offline
Colonel_AS_Kicker
Z
Joined: Apr 2002
Posts: 2,485
I am going to see a rheumy in the next few months.. I intend to report back and tell you what she says ;-). It took quite some time to convince the 2 doctors in my family that the diet really worked.. I guess in the end they had to admit that I was obviousy doing much better on the NSD. Doing even better than when I was on the NSAID's!

I had a bunch of X-Rays done and things look really good in my spine and neck -- really glad about this. Have started seeing a physiotherapist to help improve my range of movement (it aint so bad, but plenty of room for improvement). My gosh physio is pricey :O


what I can eat on the diet (click here) -- my blog -- contact me (PM is broken)
"Some men, in truth, live that they may eat, as the irrational creatures, 'whose life is their belly, and nothing else.' But the Instructor enjoins us to eat that we may live." -- Clement of Alexandria (about 200 AD)
Joined: Jul 2002
Posts: 1,198
Steel_AS_Kicker
Offline
Steel_AS_Kicker
Joined: Jul 2002
Posts: 1,198
It is a fact that Perth WA and Bath, England are the only places in the world where live-in AS physio courses are run by public health systems - maybe there are more nowadays or some in eastern europe. Perth is now live-in only for rural people and i think they are moving away from the three week full-time courses to the one i have done twice - three weeks of afternoon intensive work-shops.
Anyway, every monday we use the facilities of the Rheumatology and prosthetics depts of the health system here - great gym and a heated pool - for organised led exercises by a physio. Our $6 covers wages (two physios) if numbers are there but it is underwritten by RAFT, Rhematic and arthritis foundation if too few turn up.
Raft or equivalent in Sydney must do something for exercises for arthritics, maybe they need a strong suggestion from the hundreds of AS sufferers in Sydney to do some specialists stuff.
I have a video VHS for suitable exercises and it is a plan to move it to DVD and also grab the sound off as MP3 so when the exercises are known, the leading voice only is required...
I'll let you know which century i do it...
or which millenium i can convince the Dept to update their technology - the VHS players are all on the tip


Ted


One cannot believe all one reads on the Internet...
Abraham Lincoln
Joined: Nov 2002
Posts: 1,039
W
Iron_AS_Kicker
Offline
Iron_AS_Kicker
W
Joined: Nov 2002
Posts: 1,039
Anything short of open hostility should be considered a victory for your health and pocketbook.

Joined: Mar 2002
Posts: 74
P
Active_Member
Offline
Active_Member
P
Joined: Mar 2002
Posts: 74
Bob,
I get the very same "That's nice but I'm not-interested-in-hearing-it" reaction from every doctor I see.

Ignoramuses.

Puck them: I'm pain and drug free.

Paul

Page 1 of 2 1 2

Moderated by  Dotyisle, Kiwi, Moderator 

Link Copied to Clipboard
Who's Online Now
1 members (1 invisible), 7 guests, and 64 robots.
Key: Admin, Global Mod, Mod
Recent Posts
A video on the reduction of suffering
by Prost007 - 01/27/22 06:59 PM
Uveitis again and I miss you guys!
by Magician - 01/20/22 05:14 AM
My Experience via a short video
by Ako - 01/09/22 12:03 PM
Very long time no see
by wolverinefan - 12/14/21 12:14 PM
Will Vaccines Flare me?
by tux - 07/24/20 01:46 PM
Stewed Apples daily for gut health
by Bunyip - 10/14/19 04:44 AM
"FITNESS" TEAM! - All Physical Activity & Sports
by EricaK - 07/03/10 05:00 PM
Popular Topics(Views)
3,093,992 hmmm
1,218,547 OMG!!!!
630,441 PARTY TIME!
Powered by UBB.threads™ PHP Forum Software 7.7.5
(Release build 20201027)
Responsive Width:

PHP: 5.5.38 Page Time: 0.029s Queries: 35 (0.010s) Memory: 3.2713 MB (Peak: 3.5199 MB) Data Comp: Zlib Server Time: 2022-01-28 21:45:26 UTC
Valid HTML 5 and Valid CSS