we did go to letchworth today and although it was only about 2.5 miles of walking, it was a good climb up (and back down) - felt it in my lower spine going up and in my knees coming down, and hubby was suggesting i not push myself, but anymore, i try to do the things that are a challenge in case i can't do them in the future - and it took about 2.5 hours, lots of stopping to look at the scenery, take photos, etc-fantastic gorge and wonderful waterfalls - will post a few photos later this week -

one crazy thing- a very high train trestle with big signs stating no trespassing- but a number of people ignoring the signs, walking out on the trellis- and while they were out there, a train came by- and watched all the people scatter off the tracks- i'm sure the trains have to watch out for people there all the time and probably slow down and blow their whistle and allow people to scurry off. i may not always follow directions, but the ones set to help me not die, pretty good ones to follow!

now i have work to do to prepare for the week, this weekend was all play and sleep - a lot of sleep- think the mobic must still be circulating- last night feel asleep on the couch around midnight, then picked myself up around 7 am and once my drugs kicked in, to the bed until noon......and i could have slept longer! been wondering if the mobic was making me extra sleepy or if it was taking care of the more minor pains and allowing my body to sleep like a normal person- oh well, off it now- it just wasn't doing enough- next drug ketoprofen!


Spondyloarthropathy, HLAB27 negative
Humira (still methylprednisone for flares, just not as often. Aleve if needed, rarely.)
LDN/zanaflex/flector patches over SI/ice
vits C, D. probiotics. hyaluronic acid. CoQ, Mg, Ca, K.
walk, bike
no dairy (casein sensitivity), limited eggs, limited yeast (bread)