Originally Posted By: LATH
Sue, I'm curious about your SI joint pain. Do feel the pain in your bun either left or right? And does it pain the most going down a slope? Now it isn't too bad but I've had bad pains like this. I hate them the most because it makes walking so painful.

I never thought to look for topical nsaids. I used to take oral nsaids all of the time until my GI cut me off of them for the ulcertive colitis. I would think a topical would be ok. I get an upper back ache when I stop working and sit on the weekends. Then when I get back up and work it gets better. Is there a particular name brand you use?

But, I can't image sleeping on ice packs.


working backwards:

sleeping on ice. gotta do what ya gotta do. one ice pack isn't too bad, but now with one on the upper back and the other on the lower back/butt, woke after about an hour and a half and was awake for a full half hour before going back to sleep SO COLD! then remembered last year how i'd also fill up a hot water bottle and take that to bed. the hot and cold balance out and then i can sleep. i do the same sort of thing in the recliner, ice and a heating pad on different areas, it works.

topical nsaids.

the patch is called a flector patch. think its the only brand out there. don't think there is a generic.

the gel / creme is called KIP gel, for short. its a triple antibiotic creme made up by my local compounding pharmacist. it contains: 10% Ketoprofen, 10% Ibuprofen, 2% Piroxicam.

https://www.kickas.org/ubbthreads/ubbthreads.php?ubb=showflat&Number=396050#Post396050

before my compounding pharmacist recommended this, i used voltaren gel, but that was way too mild, didn't do a thing for me, but the KIP gel is pretty powerful stuff.

as for the SI, yeh, when the docs talk about lower back pain, i tell them its really more of a pain in the butt. the lower back kicks in when its acutely bad, but the butt pain is pretty much a chronic thing. even when its pretty good, too much sitting will cause the butt to kick in. more right then left, but it does shift around. before i got the cortisone injections and then 6 months later switched to the flector patches, before that going up or down stairs wasn't so great, so i avoided them. now honestly with the flector patch over the SI, this is the first real issue i've had with the SI since i started wearing them in april, but my fear is that the 1/2 patch just isn't enough medicine, but i need the other 1/2 patch on my rhomboids for now.


sue

Spondyloarthropathy, HLAB27 negative
Humira (still methylprednisone for flares, just not as often. Aleve if needed, rarely.)
LDN/zanaflex/flector patches over SI/ice
vits C, D. probiotics. hyaluronic acid. CoQ, Mg, Ca, K.
chiro
walk, bike
no dairy (casein sensitivity), limited eggs, limited yeast (bread)