Have you considered LDN?

Before I could get a rheumy to dx and treat me, before I could get on the humira, I went on LDN.

I'm still on it, 4.5 mg a day. I think maybe it helps keep my immune system healthy while on the humira?

It did help my enthesitis. Once I started LDN in 2009, I stopped tearing tendons and ligaments.

But my neck and SI flared too badly too often, along with other symptoms, so I felt I needed the humira, and so far so good, though I understand why you are deciding to go without them.

My stepfather doesn't want to start remicade because he has "precancerous" cells in his intestines, probably from years of crohn's...because his is crohn's, he's been on asacol for years and plans to stay on that.

but, maybe consider LDN. It boosts instead of suppressing the immune system. Supposed to be good from everything from autoimmune diseases to cancer. smile
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sue

Spondyloarthropathy, HLAB27 negative
Humira (still methylprednisone for flares, just not as often. Aleve if needed, rarely.)
LDN/zanaflex/flector patches over SI/ice
vits C, D. probiotics. hyaluronic acid. CoQ, Mg, Ca, K.
chiro
walk, bike
no dairy (casein sensitivity), limited eggs, limited yeast (bread)