I am new here, and very encouraged by the site. I have had AS about ten years in now, and the thing now has me down and nearly out. This last two years it really seems to have run away, getting severely into my upper back, neck shoulders chest.
I have declined the (t cell?) immune suppressants from my rheumatologist as i suspect it will be a shortcut to major complications, but I cannot continue living with this. I have tested negative for the HLA B27, and I had a chronic and severe DDT poisoning in 1997 - 2000. (I wonder if this kicked me off on this path)
My question is does anyone have any theory or handle on the best course forward for NON HLA B27 people? I am day two on the NO STARCH, and OK so far.
Any advice appreciated.