1. occipital injections - hurt like a son of a gun:
headache is a bit better I think
2. neck injection has had no effect in neck stiffness
3. trapezoid injections have had no affect on muscle tension.
4. Every doctor seems to work on one thing, one area of pain; and makes no regard to the..systemic problems.. the night of the second sleep study....I had the diarrhea..s so that was not at all manly.... lol until about 11: pm..
the hospital does not use water with C-pap, so I was totally dehydrated in the morning
1. sorry for the pain, but glad they seemed to help a bit
2. sorry that didn't help, mine did quite a bit, not perfect, but i'll take it.
i can't remember, was your neck facet joint cortisone injections or something else?
3. are you positive they injected into the belly of a triggerpoint? that's very important. if they miss, its useless. to tell, there should be very little if any pain from the needle piercing and going into the skin, but when they hit the triggerpoint, there should be exquisite pain, mimicking the triggerpoint pain itself. then they should inject the lidocaine. also, if the triggerpoint is a fair size, the muscle should "jump" when that "knot" is injected, thus releasing the muscle. that jump response is a good indication that the triggerpoint injection did something. even if all of this is true, if you have multiple triggerpoints in the trap, then it could require multiple injections. or if the muscles don't have triggerpoints, then not sure what the injections would do, if anything.
can't remember, are you on, have you tried a muscle relaxant. flexeril has terrible side affects for me, i'm a zombie on it. but zanaflex has been very good to me, since 2001. taking it at night has been helpful. and then i take it when i need to other times. it does lower my BP and zonk me out, but only for about an hour, then my BP comes back up and i'm ok. flexeril zonks me out for days on end, the entire time its working. zanaflex lasts in the blood stream 6 hours, works pretty well for about 5 of those, but only zonks me out for an hour or so, about 45 minutes after taking the drug as it starts to take affect. others seem to like skelaxan as well.
my rheumy has also put me on magnesium (~200-400 mg daily) and coQ (~100 mg daily) to help with the muscles. i do get less cramps when i started the magnesium. not sure how much these two help with the spasms, but i am doing better in between my flares. probably wouldn't hurt to try these as well, but ask a doctor first to make sure they won't hurt you in any way. the coQ is supposed to help the heart as well, why some people take it. anyway, just make sure if you're considering.
4. i hear you about each doctor looking at just one part. but not all doctors are like that. i am currently fortunate to have a rheumy, gastroenterologist, naturpath that looks at the whole picture, understands its all connected. my old endocrinologist was like that too, but he retired and the new doctor will only focus on my thyroid, and won't talk about anything else. i miss the old endocrinologist. but at least i have the rheumy and gastroenterologist. they've been instrumental at putting it all together.
good luck with the sleep study. remind me again what they are trying to determine with that? hope it gives answers (and solutions).
vits C, D. probiotics. fish oil. CoQ, Mg, Ca
pred taper for flares
occasional naproxen / Aleve
no dairy (casein sensitivity), limited eggs
future: humira, soon I hope