banners
Kickas Main Page | Rights and Responsibilities | Donate to Kickas
Kickas Links
·HOME
·Forums Main Index
·Register!
MEDICAL CENTRE
·Medicine Contract
·AS Patient Guidebook
·Pain Map
·Disease Modification
·Ask your doctor
·AS and RA Papers
·AS Acronyms
DIET CENTRE
·London AS Diet
·Molecular Mimicry
·AS Dietary Primer
·AS Food Guide
SUPPORT CENTRE
·In Memorium
·KickAS Stories
·KickAS Banners
·Donations
Forum Stats
12,630 Registered Members
28 Forums
43,330 Topics
515,614 Posts

Most users ever online: 1,568 @ 06/29/16 03:25 PM
Newest Members
yurayurayura, Foonda, Dea, Navdeep, dwarner
12630 Registered Users
KickAs Team
Administrator/owner:
John (Dragonslayer)
Administrator:
Melinda (mig)
WebAdmin:
Timo (Timo)
Administrator:
Brad (wolverinefan)

Moderators:
- Tim (Dotyisle)
- Chelsea (Kiwi)
- Megan (Megan)
- Wendy (WendyR)
- John (Cheerful)
- Chris (fyrfytr187)

QR Code
If you want to use this QR code (Quick Response code) just save the image and paste it where you want. You can even print it and use it that way. Coffee cups, T-Shirts etc would all be good for the QR code.
Page 2 of 2 < 1 2
Topic Options
#511648 - 07/06/15 08:20 AM Re: Would love some input! [Re: Songstress06]
Sue22 Offline
Very_Addicted_to_AS_Kickin

Registered: 01/13/08
Posts: 21298
Loc: Upstate NY
Originally Posted By Songstress06


Sue, they have mentioned EDS to me, too. I have +- genetic markers. They have also thought I may have some sort of autoimmunity that attacks my ligaments, leaving me with joint pain that may be slightly different from AS. It's a journey figuring this thing out...

see my long response that i just made today (july 6th on "enthesitis vs tendonitis")
http://www.kickas.org/ubbthreads/ubbthreads.php?ubb=showflat&Number=511618#Post511618


I do find that osteopathic/ PT adjustments make me feel better. It just doesn't last. Does anyone else experience that?

yes!


Edited by Sue22 (07/06/15 08:21 AM)
_________________________


sue

Spondyloarthropathy, HLAB27 negative
Humira (still methylprednisone for flares, just not as often. Aleve if needed, rarely.)
LDN/zanaflex/flector patches over SI/ice
vits C, D. probiotics. hyaluronic acid. CoQ, Mg, Ca, K.
chiro
walk, bike
no dairy (casein sensitivity), limited eggs, limited yeast (bread)

Top
#511704 - 07/13/15 08:03 AM Re: Would love some input! [Re: Songstress06]
Inanna Offline
Very_Addicted_to_AS_Kickin

Registered: 11/15/01
Posts: 18054
Loc: Toronto, Ontario
Hi,

Your case sounds similar to mine. I responded to a restricted (wheat and cow dairy specifically) diet, but never when no starch with it. The diet does not work for everyone any more than any other treatment works for everyone (they don't). In three months, you should have seen some positive sign, no matter how small.

As for being afraid to try biologics because you're a singer and don't want to get sick, I've been on biologics for ten years now and have never yet missed a performance due to being too sick because of biologics. The biologics have, indeed, helped me stay on stage because I have more energy due to my body not constantly attacking itself. I am an actor, singer and director, just so you know. The biologics don't work for everyone and some people do get too many infections while on them, but don't use fear of being too sick to perform as an excuse not to try them. In my case, they've made it easier. You won't know until you try what it will do in your case.

Warm hugs,
_________________________
Kat



"Frost Moon" by Nene Thomas

A life lived in fear is a life half lived.
"Strictly Ballroom"


Top
Page 2 of 2 < 1 2

Who's Online
1 registered (1 invisible), 158 Guests and 4 Spiders online.
Key: Admin, Global Mod, Mod
Recent Posts
Has anyone here had C. diff?
by MikeGinnyMD
07/17/17 09:10 AM
No sugar , No starch, say what?
by Amiron
07/17/17 04:15 AM
Pain relief
by Josh300788
07/16/17 02:26 PM
Radon Therapy Czech Republic
by Luigi
07/16/17 07:04 AM
Not getting notifications...
by EricaK
07/12/17 03:46 PM
Multiple Sclerosis link to Prof Ebringer & opinion
by DragonSlayer
07/10/17 03:48 PM
Going to start Cosentyx next--6th biologic
by rumble
07/09/17 02:05 AM
(Views)Popular Topics
"FITNESS" TEAM! - All Physical Activity & Sports 33,460,365
hmmm 1,655,219
Has anyone had Pedicle subtraction Osteotomy ? 1,430,571
What to do about healthcare? Can it be fixed? 915,766
User names revisited 805,578
Medicinal Marijuana 715,146
A.S and beds, What do you find best? 706,898
OMG!!!! 659,128
No/Low Starch Diet Success Stories 490,059
THE STARCH CONTENT OF FOODS - THE LIST 410,169