The specialist, who was following up on my infection and pneumonia said, "wow, you sure did have a RA reaction while in the hospital".
strange how no one other than him has said so.

He did not even listen to my lungs, but said my Bp was way too high..

Hang in there my friends. Those with other diagnosis, often stay here, because we seem to keep have "other diagnosis" but end up back here at KA.

hi lon,

though dx'ed with undiff spondy, and that really does seem to be it,

told my current rheumy "i don't care what we call it, so long as we can successfully treat it."

and we are, more or less. at least making major improvements in between flares.

and if no negative side effects, hitting periodic flares with short course of pred.

even if the dx were to "change", the things we are doing, things that i get the impression help lots of autoimmune / autoinflammatory things, seem to be working.

i personally think there is:

1. a lot of overlap in symptoms between the various autoimmune / autoinflammatory diseases

2. maybe even better dx's that lie between the recognized dx's,
at least several of my good doctors have indicated that that is their belief as well.

Sue,
My Dr. some years ago used the phrase every time I saw him:
"undiff spondy,"
after having so much anit-biotic, and no starch for a week while in the hospital... I realize how much better I felt for a few weeks. But finding the doctor to prescribe the antibiotics is the tough thing..

I red your posts and continue to be amazed at how much tenacity you have and what you are learning helps so many others.

Lon

Lon,

There are quite a few Antibiotic Protocol drs in the states. I'll ask my friend today if there is one in your neck of the woods. Glad to see you are doing better. I too felt better on Clindamycin IV.
you can go to roadback.org and ask too.
Take care!!

V-Mum
Thanks for a clear comment.
The low back and pelvic pain is back. So Lin needs to make a commitment with me and do this.

Thanks again.

thanks lon!

you're the best!