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#467340 - 04/14/12 08:07 PM
Hello to my peoples
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Third_Degree_AS_Kicker
Registered: 11/30/11
Posts: 256
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Hi guys! Hoping everyone is feeling well.  My shoulder is still frozen pretty solid, though pt says I am making progress though some days I don't feel it. Eyes are trying to flare with all this pollen, but I'm fighting it. I haven't been in because frankly it hurts to be online. I very much WANT to spend all day here, and if I go poking my nose about, I certainly will. But being online is very uncomfortable arms wise. So I have avoided checking in, but I miss you all very much! I am still doing fantastically on the NSD, and still a rather poor cook.  I will try to check in more often, but not with the usual thread volume that I'm generally capable of. LOVE!!!
_________________________
Iritis first diagnosed in 1991, presently recurrent and steroid resistant. Tested HLA B27 positive in 1996. AS diagnosed October of 2011.
Putting most of my eggs in the NSD and exercise basket, using only TENS, massage, heat and ice, and NSAIDS (sparingly) for pain. Drops for iritis as flare necessitates. Looking back I feel I would have been diagnosed with AS years ago, if I had found a rheumy earlier than 2011.
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#467346 - 04/14/12 08:26 PM
Re: Hello to my peoples
[Re: Kancie]
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Decorated_AS_Kicker
Registered: 10/09/08
Posts: 725
Loc: Oklahoma
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Kancie, I'm glad you checked in. I hope your shoulder starts to get better. It's also good to hear that the NSD is doing well for you. Keep up with the effort!
--Greg
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AS symptoms started 1991. Official dx in 2006 with HLA-B27+, fused SIJ, bone spurs in back, extreme rib/hip pain, and other family with SpA. Started Enbrel in 2006 with good results, but stopped in 2010 due to nerve damage (MS) from it. Now getting good results with no-starch diet.
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#467349 - 04/14/12 08:48 PM
Re: Hello to my peoples
[Re: Kancie]
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Senior_AS_Kicker
Registered: 07/05/10
Posts: 947
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Hello Kancie,
Sorry your shoulder hurts, that was my first arthritis pain/symptom and I could not lift it or move it and getting dressed was something to be seen. Glad the NSD is working well for you, its helping me too and gives me hope. We miss you too!!!
take care!
_________________________
Rheumatoid Arthritis I feel better with the NSD for my lower back pain and The Gerson Therapy has really helped my joint pain/RA. www.gerson.org
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#467355 - 04/14/12 09:11 PM
Re: Hello to my peoples
[Re: Kancie]
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Third_Degree_AS_Kicker
Registered: 11/30/11
Posts: 256
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Thanks for the well wishes! You see I've already spent well over an hour here, reading and replying a bit.  This is my second battle with adhesive capsulitis. First the right shoulder now the left. I have to say the left is far worse. I didn't have much pt with the right, and it was 3 years before I had any real range of motion back, even doing exercises for it at home. Then a few months after feeling better - BAM left shoulder. The first round, all I heard was, "We don't know what causes this. Women get it more than men. Diabetics get it." This time I have heard that, however I have very attentive physical therapy treatment this time, with both doctor and therapists HEARING me when I say that I have encountered many others here with AS who have also had recurring frozen shoulder. They are interested in a connection between arthritis and FS, and try many types of therapy and pain management. It is refreshing to be a part of my own recovery.
_________________________
Iritis first diagnosed in 1991, presently recurrent and steroid resistant. Tested HLA B27 positive in 1996. AS diagnosed October of 2011.
Putting most of my eggs in the NSD and exercise basket, using only TENS, massage, heat and ice, and NSAIDS (sparingly) for pain. Drops for iritis as flare necessitates. Looking back I feel I would have been diagnosed with AS years ago, if I had found a rheumy earlier than 2011.
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#467359 - 04/14/12 09:21 PM
Re: Hello to my peoples
[Re: Kancie]
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Very_Addicted_to_AS_Kickin
Registered: 01/13/08
Posts: 19047
Loc: Upstate NY
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hi, good to see you here!  when i'm in pain so that sitting at a desk on a computer is hard, i'm glad i have my little mac book air with wireless. i sit in my recliner with a heating pad on with the MBA on my lap, arms close to my body and down. and a very ergonomically "correct" keyboard. makes being on a computer much easier. unless of course the thumbs, fingers, or wrists are flared. otherwise, these little computers can help. of course there are sometimes when nothing really works. so if its one of those times, hope you are feeling a bit better soon 
_________________________
   sue USpA LDN/zanaflex/flector vits C, D. probiotics. fish oil. CoQ, Mg, Ca pred taper for flares occasional naproxen / Aleve chiro walk no dairy (casein sensitivity), limited eggs future: humira, soon I hope
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#467364 - 04/14/12 09:45 PM
Re: Hello to my peoples
[Re: Kancie]
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Third_Degree_AS_Kicker
Registered: 11/30/11
Posts: 256
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I have a pretty big lappy, Sue... but I do have a good lap table for it. What I don't have, that I feel would REALLY help me, is a recliner. I would LOVE to have a recliner.
Propped on the couch with the lappy just isn't the same, and still strains my neck and shoulders. My hands have been irritated as well. I do feel getting ergonomically correct would give me a lot more time online.I guess I should price chairs!
_________________________
Iritis first diagnosed in 1991, presently recurrent and steroid resistant. Tested HLA B27 positive in 1996. AS diagnosed October of 2011.
Putting most of my eggs in the NSD and exercise basket, using only TENS, massage, heat and ice, and NSAIDS (sparingly) for pain. Drops for iritis as flare necessitates. Looking back I feel I would have been diagnosed with AS years ago, if I had found a rheumy earlier than 2011.
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#467415 - 04/15/12 10:07 AM
Re: Hello to my peoples
[Re: Kancie]
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Very_Addicted_to_AS_Kickin
Registered: 01/21/04
Posts: 8611
Loc: Brittany, France (since Nov 08...
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I did respond to this - but dunno where I put it...! Sheesh gotta take some 'K' is all I can suggest...<LOL> http://onlinelibrary.wiley.com/doi/10.10...tomisedMessage=Hi Kancie - nice to see you - but not good to hear about the rotten shoulder problem. (John's 'circles' could well help - but no weights to start with, OK?) Take care gal -
_________________________
MollyC1i - Riding OutAS
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#467421 - 04/15/12 11:11 AM
Re: Hello to my peoples
[Re: Kancie]
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Gold_AS_Kicker
Registered: 02/24/11
Posts: 1541
Loc: Pacific Northwest
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 Hi Kancie, I was asking about you in the shout box. Wondered where you went to. Glad that you checked back in. So sorry you are still having problems with that arm. I know it takes awhile. Happened to my sister too. We miss you! Be well and God Bless.
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Pea Diagnosed with A.S. 26 year's ago. Diagnosed with Fibro 9 year's ago. Sulphasalazine, Folic Acid, Remicade
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