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#520330 - 12/03/20 11:26 PM Newly diagnosed with Uveitis
Magician Offline
Copper_AS_Kicker

Registered: 09/21/09
Posts: 1254
Loc: Manitoba Canada
Hi everyone! Yes I know it is a lot quieter here but I sure hope there are a few members still dropping in.

I have been on eyedrops for a week. Tomorrow my optometrist will be reducing them further. Never did I think the redness would be seen as Uveitis. My eye was painful, completely red and hurt in bright light. A good friend was convinced I either had Covid or Pink Eye.

When my eye was examined and subsequently my patient file the very first question I was asked was 'how bad does my back hurt'? And then I was diagnosed with both Ankylosing Spondylitis and Uveitis. Still can't believe how quickly the diagnosis came.

I was told even with steroid eyedrops the Uveitis could come back at any time. I am happy I found a great Optometrist who immediately recognized what I truly had.

Stay safe and remain healthy!
- Angie Kalinovich -
_________________________
- Carpal Tunnel in BOTH hands
- Depression (MDD) Major Depressive Disorder
- Pituitary Adenoma
- Scoliosis
- Spinal Arthritis with bone spurs on spine
- Multiple Scoliosis diagnosed
- Herniating spinal disc
- HLAB27+
- Final diagnosis: Kyphoscoliosis

Previously told Mechanical Back 'Issues'. Hate this term!
Read my story here: http://www.ebrandon.ca/profile_blog.aspx?person_id=1051#1688

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#520331 - 12/04/20 11:31 PM Re: Newly diagnosed with Uveitis [Re: Magician]
DragonSlayer Offline
AS Czar

Registered: 09/05/01
Posts: 6132
Loc: Reno or SFLU Philippines


Hello, Angie:

Regret that You are experiencing iritis--I really HATE IRITIS!!! It is the single aspect of AS that kept me on the dietary straight-and-narrow when I needed to keep to that plan.

I did a write up on iritis in my dropbox files (part of my signature) many years ago. I have not experienced this for about 17 years -- knock wood!

HEALTH,
John
_________________________
Important AS Resources

Professor Ebringer: On Diet and AS;


RED ARROW --> Philippines

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#520335 - 12/05/20 05:46 PM Re: Newly diagnosed with Uveitis [Re: Magician]
sBrian Offline
Second_Degree_AS_Kicker

Registered: 12/05/05
Posts: 221
I have been dealing with uveitis flares for 16 years now. My Eye doc retired and the new one that took over informed me that he was not nearly aggressive enough with the pred drops. She has me 1 per hour (16 per day) for first 4 days, than the taper is long and slow. My flare started in September and I just switched from 2 drops a day to 1 a day.

She claims the way the old Doc was doing it was causing slow long term damage. He would have me do 16 first day, then 4 a day for a week, the 3 for a week 2 for a week, 1 for a week.

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#520338 - 12/06/20 11:27 PM Re: Newly diagnosed with Uveitis [Re: DragonSlayer]
Magician Offline
Copper_AS_Kicker

Registered: 09/21/09
Posts: 1254
Loc: Manitoba Canada
Hi John:

Such a wealth of information on this eye condition!

Interesting to read re: underlying condition associated with the Uveitis. I have dry eyes (Surgeon's and prescribed eye drops.

Each time I see the Optometrist he checks my eye pressure. It has been going down with the steroid use. I am in the process of slowing down my use of the drops.

Could you share a few links on colonics?
Thank you for help.
- Angie -
_________________________
- Carpal Tunnel in BOTH hands
- Depression (MDD) Major Depressive Disorder
- Pituitary Adenoma
- Scoliosis
- Spinal Arthritis with bone spurs on spine
- Multiple Scoliosis diagnosed
- Herniating spinal disc
- HLAB27+
- Final diagnosis: Kyphoscoliosis

Previously told Mechanical Back 'Issues'. Hate this term!
Read my story here: http://www.ebrandon.ca/profile_blog.aspx?person_id=1051#1688

Top
#520340 - 12/11/20 04:52 AM Re: Newly diagnosed with Uveitis [Re: Magician]
Inanna Offline
Very_Addicted_to_AS_Kickin

Registered: 11/15/01
Posts: 18084
Loc: UK
Magic! It's good to see you!

Uveitis so sucks and I am really sorry you have it.

Yes, it can recur. I've lived with it on and off for 40 years. Haven't had it since I started Remicade in 2005. It is helpful for uveitis. It didn't come back during my Enbrel years, (Enbrel doesn't cover uveitis) but am very relieved that adalimumab (Humira) also covers uveitis, as I've been switched to it with my new Crohn's dx.

Listen to your doctors and hang in there.

White light and love.

Warm Hugs,
_________________________
Kat

A life lived in fear is a life half lived.
"Strictly Ballroom"


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#520349 - 12/18/20 10:53 PM Steroid woes [Re: Inanna]
Magician Offline
Copper_AS_Kicker

Registered: 09/21/09
Posts: 1254
Loc: Manitoba Canada

Hello Kat:

So very good to hear from you. In addition to the Uveitis I am now dealing with the Steroid drops affecting my liver. I have got blood labs coming up. My regular physician called me this afternoon expressing concern because my liver's AST and other enzymes are way beyond normal. All are elevated. He feels I could have gallbladder stones and wants additional blood tests.

Could this simply be a side effect from the steroid drop? I am basically almost finished using them. This is making my head hurt cause I am overthinking. Does anyone here have any words of advice? First time taking steroid anything.

I have been drinking coffee like crazy because I read somewhere coffee is the thing to drink when dealing with this type of mess.

We are so close to a very different sort of Christmas. I am not heading home as my Province has been deemed RED. My Province has begun vaccinations for the virus. Everybody take care and sleep well.
_________________________
- Carpal Tunnel in BOTH hands
- Depression (MDD) Major Depressive Disorder
- Pituitary Adenoma
- Scoliosis
- Spinal Arthritis with bone spurs on spine
- Multiple Scoliosis diagnosed
- Herniating spinal disc
- HLAB27+
- Final diagnosis: Kyphoscoliosis

Previously told Mechanical Back 'Issues'. Hate this term!
Read my story here: http://www.ebrandon.ca/profile_blog.aspx?person_id=1051#1688

Top
#520352 - 12/19/20 03:03 PM Re: Newly diagnosed with Uveitis [Re: Magician]
hawkman Offline
Commanding_AS_Kicker

Registered: 09/05/01
Posts: 697
Loc: New Union , Alabama
I have had iritis but not in a long time smile ! Sorry you are having to put up with it . I would credit the No Starch Diet with keeping the iritis at bay for me .
_________________________
Bruce

Still kicking AS with the No Starch Diet !

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#520371 - 01/09/21 01:33 AM Re: Steroid woes [Re: Magician]
Inanna Offline
Very_Addicted_to_AS_Kickin

Registered: 11/15/01
Posts: 18084
Loc: UK
Magic, sorry to have disappeared. Christmas was ... weird, but lovely.

How are your eyes feeling? I wouldn't have thought the drops for your eyes would do that much damage to your liver, but what do I know. Thing is that there is no direct route for the drops to hit yor liver. I was on those drops repeatedly for years, until Remicade knocked the uveitis out of me. Touch wood, I haven't had it since Spring 2005. Never had liver problems. But I'm not you. What did your bloodwork find? What did your doctor say?

We're essentially in lockdown again, thank goodness. The PM here eventually listens to reason, but man, he's slow on the uptake.

Vaccinations have begun and our GP surgery is finally on the list that will have it issued to them. My sweetheart is shielded by the NHS and over the age of 70, so he's in the fourth group to get it. If it works the way our flu jab did (a special clinic for shielded people), I'll be called in at the same time, as I'm our contact with the outside world.

My aunt is in a care home in Ontario. She's had her first shot. What a relief! It's been a prison and torturous emotionally for so many seniors isolated in those homes. They aren't allowed to go out in the garden at my aunt's. No visits allowed from family, not even distanced ones thorugh a window at Christmas. Only allowed to leave their rooms for meals. So cruel.

Anyway, I hope you are well. Please let me know how your eye is?

Warm hugs,
_________________________
Kat

A life lived in fear is a life half lived.
"Strictly Ballroom"


Top

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