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#520386 - 01/26/21 05:40 AM Re: Kicking AS with my Microbiome and Anti-TNF [Re: Mark55]
Spiderpidge Offline

Registered: 06/16/17
Posts: 11
I would be careful with such diets. Honestly, give fermentation a go, I put a recipe in here for Kraut. Most supermarkets now sell Kefir milk too so you could also try that. To regain good gut health you should eat a varied diet, I try to get in at least 30 different plant based foods per week. I also eat way too much cheese, which I believe is not plant based haha.

Originally Posted By Mark55
Hi Alex, thanks for sharing. I've tried fermented foods (made sauerkraut & kefir) before but not at the level you're describing.

I was able to get total remission of my AS with the carnivore diet (100% meat) last year, but it fell apart if I cheated even a tiny bit, and was too monotonous and antisocial to sustain. It remains an emergency option for me if my AS ever gets too bad / untreatable later in life. It took 3 months of being strict with it for it to really give me any relief though, and I definitely didn't cram fermented foods every day for 3 months when I dabbled with them.

I am not on Anti-TNF, however I might be able to get on them next year, and also the symptoms you describe in 2018 sound worse than mine - I still have periods with no pain / flare ups, however I can't exercise barely at all without triggering a flare up.

You've inspired me to start a load of krauts & veg, kefir and sourdough going, to give them a massive try in a month or two. Please let us know how it goes if you stop the anti-tnf smile


#520400 - 02/05/21 04:38 AM Re: Kicking AS with my Microbiome and Anti-TNF [Re: Spiderpidge]
Spiderpidge Offline

Registered: 06/16/17
Posts: 11
Well, it turns out things are now going to get very interesting...

I've had scan results back from an MRI and I have inflammation of the spinal cord, most likely brought on by the Simponi Anti-TNF injections. But if it's not that then I may be faced with an MS type disease. Still waiting for diagnosis from the doctors.

The doctor has ordered me to stop taking anti-TNF. So my diet is now going to be put through the real test. Fingers crossed I've done enough healing in my gut, through varied diet and fermented foods, to stop AS from re-occurring.

Only time will tell, I will report back on my findings.

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