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#520246 - 07/31/20 12:21 AM juvenile idiopathic arthritis Enthesitis-related
Missalicia Offline

Registered: 07/10/20
Posts: 1
Hello. My son has been diagnosed with Juvenile Idiopathic Arthritis - Enthesitis-related (I have AS and have successfully been on the no starch diet for years). However, the no starch diet doesn't seem to be helping him enough. He still has swollen very sore feet (and very painful swollen knees at times, and painful upper inner thigh at times) and cannot walk. He's 12 and he is getting depressed about his inability to participate with his friends in activities he used to do and loves doing. He started taking Naproxen because the diet wasn't helping but he got extremely tired while on it and also started having heart palpitations and nausea so we have stopped that. He is taking an anti-inflammatory and mildly immune-suppressing herbal tincture, and non acidic vitamin c.
Does anybody have any ideas or experience with anything like this? Any help/advice would be so greatly appreciated. Thank you.

#520257 - 08/16/20 08:26 AM Re: juvenile idiopathic arthritis Enthesitis-related [Re: Missalicia]
Janclebro Offline

Registered: 09/26/16
Posts: 53
Loc: Cape Town, South Africa
I had undiagnosed joint pain as a child, a forerunner to my AS diagnosis. Apart from the no starch diet, I found that getting to the bottom of food intolerances was key. Possibly your son has developed certain food intolerances? Also consider whether certain sugars could be implicated. If they're not being correctly digested, they could cause problems similar to those caused by starch.
Spondyloarthropathy with symptoms of AS, Sjögrens and fibro. Previously took Celebrex, Methotrexate, Trepiline, Prednisone which seemed to trigger a flare and my illness became much worse. Symptoms now kept mostly under control with NSD, as well as cutting sugar, dairy and yeast and food intolerances. Mostly pain free now and all symptoms massively improved.


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