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#520252 - 08/13/20 06:14 PM Are AS and Ulcerative Colitis connected at all ?
MarkyT Offline
Apprentice_AS_Kicker

Registered: 04/24/14
Posts: 82
Hello all,

I have not been here in a long time. My AS is fairly under control without diet or any medication but I was recently diagnosed with UC. My pathology says "chronic colitis" but the GI diagnosed it as UC. I asked him if AS and UC are they related and he did not have an answer.

I also recently had a rheumatology appointment and the rheumatologist said that they are related but from what I have read most people get Chrohn's with AS and not UC so I am just confused how I even developed the UC in the first place.
Only logical explanation is Klebsiella. I have not been following the NSD in a very long time but I might start it again.

Hope is all well with everyone!


Edited by MarkyT (08/13/20 06:15 PM)

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#520253 - 08/13/20 10:10 PM Re: Are AS and Ulcerative Colitis connected at all ? [Re: MarkyT]
DragonSlayer Offline
AS Czar

Registered: 09/05/01
Posts: 6126
Loc: Reno or SFLU Philippines
WELCOME back, MarkyT:

Everyone with AS has a compromised intestinal tract (especially described as "Crohn's-like microlesions"). And people with UC can experience identical symptoms as those we have in AS.

Crohn's is related to AS; it is the same cause and mechanism but most people with Crohn's are HLA B27 negative, apparently.

So I am certain there is a connection between AS and UC and also that HLA B27 is absolutely not the entire genetic story; just the one we know the most about.

HEALTH,
John
_________________________
Important AS Resources

Professor Ebringer: On Diet and AS;


RED ARROW --> Philippines

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#520254 - 08/13/20 11:25 PM Re: Are AS and Ulcerative Colitis connected at all ? [Re: MarkyT]
MarkyT Offline
Apprentice_AS_Kicker

Registered: 04/24/14
Posts: 82
Thank you DragonSlayer! I ordered the GI map stool test and I am very curious what the results are going to be. If there is an abundance of Klebsiella I will start the NSD. Also I read that there are couple of other bacterias that might cause colitis so the results will tell. When I get the results from the test back I will come back and post it.

Thank you for the help once again and good health to you as well!

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#520260 - 08/17/20 02:51 PM Re: Are AS and Ulcerative Colitis connected at all ? [Re: MarkyT]
DragonSlayer Offline
AS Czar

Registered: 09/05/01
Posts: 6126
Loc: Reno or SFLU Philippines
Hello, MarkyT

Originally Posted By MarkyT
If there is an abundance of Klebsiella I will start the NSD.


Regret the Klebsiella pneumoniae tests are not very accurate because we react badly to levels of this germ that the average person does not. And the test only provides a statistical snapshot relative to the general population, in sigma or deviation from mean.

It is like peanut allergy: 200 children will not react but 3 might have some varied reactions and one child will die (just by way of example; not actual numbers). It takes very few germs to trigger AS in the roughly 3.5% percent of us who have AS.

Thank You--I am pretty stable now, knock on wood!

HEALTH,
John
_________________________
Important AS Resources

Professor Ebringer: On Diet and AS;


RED ARROW --> Philippines

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#520276 - 09/03/20 02:27 AM Re: Are AS and Ulcerative Colitis connected at all ? [Re: MarkyT]
Janclebro Offline
Active_Member

Registered: 09/26/16
Posts: 53
Loc: Cape Town, South Africa
Hi MarkyT, in Rebecca Fett's book, The Keystone Approach, she mentions the connection between the spondyloarthropathies and gut inflammation. I don't have the book with me right now to confirm this before writing my reply, but I seem to recall that she said that most people with spondyloarthropathy have gut inflammation (often sub-clinical), and that most people with gut inflammation will go on to develop some form of arthritis at some stage in their lives. So it works both ways and there seems to be a very strong correlation.

It is a book well worth reading, very well referenced with scientific documents.

Lastly, it seems that ecoli can present with similar symptoms in some people.

Hope that helps,
Jane
_________________________
Spondyloarthropathy with symptoms of AS, Sjögrens and fibro. Previously took Celebrex, Methotrexate, Trepiline, Prednisone which seemed to trigger a flare and my illness became much worse. Symptoms now kept mostly under control with NSD, as well as cutting sugar, dairy and yeast and food intolerances. Mostly pain free now and all symptoms massively improved.

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#520277 - 09/03/20 09:34 AM Re: Are AS and Ulcerative Colitis connected at all ? [Re: MarkyT]
MarkyT Offline
Apprentice_AS_Kicker

Registered: 04/24/14
Posts: 82

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#520278 - 09/03/20 09:38 AM Re: Are AS and Ulcerative Colitis connected at all ? [Re: DragonSlayer]
MarkyT Offline
Apprentice_AS_Kicker

Registered: 04/24/14
Posts: 82
Just like DragonSlayer said test did not detect any Klebsiella, but there seems to be couple of issues with different bacteria that was detected.

Janclebro hello, i actually have the Keystone Approach book but have not read it yet, but based on reviews seems like a great book. I will read it and see what approach to take from there on.

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#520279 - 09/03/20 11:52 PM Re: Are AS and Ulcerative Colitis connected at all ? [Re: MarkyT]
Janclebro Offline
Active_Member

Registered: 09/26/16
Posts: 53
Loc: Cape Town, South Africa
The first thing that strikes me is your low levels of Clostridia. This is key! You will find it mentioned in The Keystone Approach. Low levels of Clostridia have been implicated in the spondyloarthropathies as well as RA. In fact Jansen Pharmaceuticals are apparently developing a probiotic for us containing the strains of Clostridia we need. Meanwhile, the best way to build them up is by focusing on bifidobacteria which produce butyrate, which will help heal the gut and build up the levels of healthy Clostridia. You've probably had it explained that your high levels of faecal calprotectin are because of the inflammation in your gut. That book is so helpful and such an excellent read, MarkyT!

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#520280 - 09/04/20 12:43 PM Re: Are AS and Ulcerative Colitis connected at all ? [Re: Janclebro]
Spiderpidge Offline
New_Member

Registered: 06/16/17
Posts: 6
Have any of you tried eating fermented foods and lots of fibre to correct gut issues?

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#520281 - 09/05/20 04:26 AM Re: Are AS and Ulcerative Colitis connected at all ? [Re: MarkyT]
Janclebro Offline
Active_Member

Registered: 09/26/16
Posts: 53
Loc: Cape Town, South Africa
I'm a big believer in fermented foods, but am sensitive to yeast and they really don't agree with me. For the same reason I avoid the probiotic saccharomyces boulardii which is generally regarded as very helpful.

Fibre - yes. And I think the fermented food route to be an excellent one!

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