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#520205 - 07/14/20 12:54 PM So disheartened and at my wits end Why...
Alida1 Offline
First_Degree_AS_Kicker

Registered: 09/07/11
Posts: 166
I came to this forum about 11 years ago ( after a terrible fall), when I could not sit, stand or lay down for more than 15 minutes at a time due to extreme pain. I am HLA-B27 positive. Had extreme pain in my SI and neck. I followed Dr. Ebringer's plan and started a fasting protocol. It helped, and helps immensely as I still continue this way of eating.

I also ended up losing my sigmoid colon 2016, luckily I was able to be reconnected. I've had gut issues my entire life. Starting with dysentary at about 2.

I've been in another terrible flare since I took a tumble down a flight of stairs last September. I've seen the Rheumatologist and imagining shows zero inflammation or areas of concern. Why am I hurting...I'm so tired of this. I stretch, eat NS/LS and every day I unfurl myself from bed, if I sit at my desk, in the car, any where for to long, I'm hunched like a 90+ year old.

So, this is all in my head...thanks for letting me vent
_________________________
Where your mind goes your life follows

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#520206 - 07/14/20 09:56 PM Re: So disheartened and at my wits end Why... [Re: Alida1]
Dotyisle Offline


Registered: 03/07/02
Posts: 9506
Loc: Rosario, Argentina
Hello Alida,

Sorry to hear that you are hurting some much. Sometimes venting will help a bit in the short term.

From the fall they found no fractures that could be causing the pain?

Hopefully you can find some answers and start feeling better soon.

Take it one day at a time, that was my dad´s advice for me... he also had AS.

Best,

Tim
_________________________
AS may win some battles, but I will win the war.

KONK - Keep ON Kicking

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#520208 - 07/15/20 01:17 AM Re: So disheartened and at my wits end Why... [Re: Alida1]
Inanna Offline
Very_Addicted_to_AS_Kickin

Registered: 11/15/01
Posts: 18068
Loc: UK
Hi Alida1,

I am sorry you are in such pain. How awful. My question is the same as Tim's? Are they sure nothing broke in the fall?

As for work/sitting, don't forget to stand up and move around a bit. Work standing, if you can, for a while, then sit down again.

You just vent. That's what this place is for.

Warm hugs,
_________________________
Kat

A life lived in fear is a life half lived.
"Strictly Ballroom"


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#520215 - 07/16/20 09:34 PM Re: So disheartened and at my wits end Why... [Re: Alida1]
Alida1 Offline
First_Degree_AS_Kicker

Registered: 09/07/11
Posts: 166
Thanks Tim and Inanna.

All imaging has come back with zero inflammation (at the moment..yippy!) Nothing broken, xrays, MRI.

I’m lucky enough to have a desk that can be sitting or standing ..so, yes I change it up as much as I can.

It’s just been exhausting and frustrating.

I appreciate your reaching out.
_________________________
Where your mind goes your life follows

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#520225 - 07/18/20 09:21 AM Re: So disheartened and at my wits end Why... [Re: Alida1]
Dotyisle Offline


Registered: 03/07/02
Posts: 9506
Loc: Rosario, Argentina
Hello Alida,

I now work in localization (presently WFH) at a desk so involves sitting... but I drink a lot of water so going to refill often and also resulting bathroom stops. So that helps ensure I am not seated for long periods of time.

Stretching really helps me as well, try and do every day.

Best,

Tim
_________________________
AS may win some battles, but I will win the war.

KONK - Keep ON Kicking

Top

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