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#519595 - 04/30/19 10:13 AM Re: Total remission of my AS on the Carnivore Diet. [Re: Mark55]
Dotyisle Offline


Registered: 03/07/02
Posts: 9472
Loc: Rosario, Argentina
Happy you found a solution.

With eating only meat, how is your regularity? I emphasize veggies, nuts and fruit with my no/very low starch and I have issues if I do not emphasize the them.

Also I have incorporated sauerkraut and kefir for many years that really helped regularity as well.

How are other medical tests (blood pressure, cholesterol etc..). Everything is good?

Best wishes on staying pain free.

Tim
_________________________
AS may win some battles, but I will win the war.

KONK - Keep ON Kicking

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#519869 - 08/27/19 11:10 AM Re: Total remission of my AS on the Carnivore Diet. [Re: Mark55]
JohnIreland Offline
Member

Registered: 02/09/10
Posts: 41
Loc: Ireland
Thats an amazing story. Thanks for sharing.

It seems like the carnivore diet is the reset button for your gut bacteria.
Id say you would need to take it very slow when reintroducing vegetables.
_________________________
Back on Salazopyrin after taking a break for 2 years. Might try going dairy free. Sugar & bread are the main killers for me!

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#519926 - 10/17/19 11:05 PM Re: Total remission of my AS on the Carnivore Diet. [Re: Mark55]
Mark55 Offline
Active_Member

Registered: 05/20/09
Posts: 51
Hi everyone, just thought I'd post an update here.

Tim: Regularity / stools were much reduced (I've read that almost everything in meat / protein / fat is absorbed in the upper GI tract), but seemed fine and normal when it did happen once I settled into the diet. I think it was just a case of almost nothing reaching the bowels.

My rheumatologist sent me for some blood tests when I saw her, I think mostly basic stuff like checking levels of vitamins (not sure about cholesterol) - nothing out of the ordinary showed up.

However I had to stop the diet in June. I had increased my cheating on the diet from having a meal / snack of normal food from once every 1-2 weeks to once or twice a week - I got an SI joint flare up and everything fell apart. In total I had about 3-4 months of complete remission and being able to do things that I had never imagined being able to do again. Also for the first 3 months of the diet I was very hesitant to exercise heavily (my trigger for flare ups) so have no idea if it was working during that stage, it may well have been.

It's hard to explain but it as if the disease was totally gone during that period, and I was able to exercise in a way that previously 100% of the time would've given me a terrible flare up for weeks and often left me bed-ridden. It literally felt like a miracle cure, and this is coming from someone that has never really experienced any relief or improvement from all the various things I tried over the last decade.

Unfortunately even being ultra strict on the diet again after the flare up I wasn't able to get it to work again within 3-5 weeks it seemed. My guess now is that once I had a flare up, it's like going back to square one, and it would take 2-3 months of doing the diet strictly to get back to a state of remission / no flare ups.

Another note: After being on the diet for a few months I started to get occasional dull pain in what felt like my kidneys. This was disconcerting but I kept going with it because the diet gave me such unbelievable results. I resolved to drink more water which seemed to help a bit, but I would still experience it occasionally.

I stopped the diet altogether for 3 months because I was going to travel for a month in the summer and it would have been extremely hard / impossible to maintain it while traveling. Now I'm back and I have restarted the diet - however I am experiencing what feels like kidney pain again, I'm not sure I will be able to keep it up. I will ask my rheumatologist if they can do some sort of kidney tests when I see them in December.

The fact the diet was seemingly able to completely shut off the disease is emboldening, it means it's clearly the result of some mechanism / disease activity that can be controlled or affected in some manner and is not simply a function of something completely unchangeable about my body. However the extreme measures I had to go to with it and the fact it broke down from me having only the very occasional normal bit of food makes me wonder if there are other ways to replicate it without being super strict for months on end.

Any suggestions or leads would be appreciated, thanks for the support as always!

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#519973 - 01/01/20 03:29 PM Re: Total remission of my AS on the Carnivore Diet. [Re: Mark55]
pspondylitis Offline
Journeyman_AS_Kicker

Registered: 03/18/12
Posts: 122
This is very very interesting. Thank you for sharing. Please keep us updated. This kind of result may give us clues to what is going on. I need to read your post again, but on the face of it, it could be various factors. Is it the high meat load, is it the absence of vegetables, or is it by chance, that you have /went to spontaneous remission for a period. Bit of a shame that the return to diet did not give benefits in the first month, but as you say, maybe once a flare is occurring, one may need to wait for that flare to die naturally. Perhaps,as soon as your flares go, repeat the diet ? Of course, there are risks, mainly of not having fiber and vitamines etc.
_________________________
Age 52. Psoriatic spondylitis. HLA B27 negative. MRI negative.

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#519982 - 01/07/20 09:05 AM Re: Total remission of my AS on the Carnivore Diet. [Re: pspondylitis]
Mark55 Offline
Active_Member

Registered: 05/20/09
Posts: 51
Hi Pspondylitis,

I think the reason the diet worked is the absence of something that is part of the mechanism / root of the inflammation, rather than being an abundance of meat / protein helping out. I used to eat a fairly high protein diet normally anyway, especially when I used to work out a lot in my early twenties, and this didn't seem to help at all.

If I had to make a guess, I would guess that the inflammation is part of an immune response to a bacteria that eats sugar / starch / glucose, and eating none of those for 3 months is enough to kill off the population of the bacteria. People seem to have some success with the no-starch diet here, the carnivore diet is just a very extreme version of that.

I am now 3 months into the diet again and will start working out / exercising in the next few weeks to see if it causes me flareups. I'll report back here.

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#520028 - 02/08/20 01:01 PM Re: Total remission of my AS on the Carnivore Diet. [Re: Mark55]
pspondylitis Offline
Journeyman_AS_Kicker

Registered: 03/18/12
Posts: 122
Hi Mark , grateful if you will tell us how your diet is going ? and of course, how it is making you feel. Thank you.
_________________________
Age 52. Psoriatic spondylitis. HLA B27 negative. MRI negative.

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