banners
Kickas Main Page | Rights and Responsibilities | Donate to Kickas
Kickas Links
·HOME
·Forums Main Index
·Register!
MEDICAL CENTRE
·Medicine Contract
·AS Patient Guidebook
·Pain Map
·Disease Modification
·Ask your doctor
·AS and RA Papers
·AS Acronyms
DIET CENTRE
·London AS Diet
·Molecular Mimicry
·AS Dietary Primer
·AS Food Guide
SUPPORT CENTRE
·In Memorium
·KickAS Stories
·KickAS Banners
·Donations
Forum Stats
13,359 Registered Members
28 Forums
43,664 Topics
518,020 Posts

Most users ever online: 1,568 @ 06/29/16 03:25 PM
Newest Members
Nikpats, Firesparkles101, Mike427, KalittaPilotWife, AbdulRauf
13365 Registered Users
KickAs Team
Administrator/owner:
John (Dragonslayer)
Administrator:
Melinda (mig)
WebAdmin:
Timo (Timo)
Administrator:
Brad (wolverinefan)

Moderators:
- Tim (Dotyisle)
- Chelsea (Kiwi)
- Megan (Megan)
- Wendy (WendyR)
- John (Cheerful)
- Chris (fyrfytr187)

QR Code
If you want to use this QR code (Quick Response code) just save the image and paste it where you want. You can even print it and use it that way. Coffee cups, T-Shirts etc would all be good for the QR code.
Topic Options
#519846 - 08/11/19 11:22 PM NSD for non hlab27 sufferers
NZMatt Offline
New_Member

Registered: 08/11/19
Posts: 2
Loc: New Zealand
Hi All,
I am new here, and very encouraged by the site. I have had AS about ten years in now, and the thing now has me down and nearly out. This last two years it really seems to have run away, getting severely into my upper back, neck shoulders chest.
I have declined the (t cell?) immune suppressants from my rheumatologist as i suspect it will be a shortcut to major complications, but I cannot continue living with this. I have tested negative for the HLA B27, and I had a chronic and severe DDT poisoning in 1997 - 2000. (I wonder if this kicked me off on this path)
My question is does anyone have any theory or handle on the best course forward for NON HLA B27 people? I am day two on the NO STARCH, and OK so far.
Any advice appreciated.
Matt
NZ

Top
#519860 - 08/13/19 11:53 AM Re: NSD for non hlab27 sufferers [Re: NZMatt]
DragonSlayer Offline
AS Czar

Registered: 09/05/01
Posts: 6096
Loc: Reno or SFLU Philippines
WELCOME, Matt!

Whether a person with AS is B27 positive or not, the diet can work as it has in many non-B27s. The common serological test for the antigen is very flawed, and produces a very large number of false-negatives.

Good Luck on the NSD! The people in the forum are the best resource, and there is also a Facebook page You might consider joining.

HEALTH,
John
_________________________
Important AS Resources

Professor Ebringer: On Diet and AS;


RED ARROW --> Philippines

Top
#519864 - 08/14/19 07:14 PM Re: NSD for non hlab27 sufferers [Re: NZMatt]
Janclebro Online   content
Member

Registered: 09/26/16
Posts: 47
Loc: Cape Town, South Africa
Hi Matt - so glad you've found this forum. I too am HlaB27 negative, and I too have refused the medication prescribed for my AS - I gave it a shot and wish I hadn't. The diet has been life-changing for me. I have by no means perfected it, and I am a long way from completely beating this illness, but it has helped enough to make it worthwhile persevering. Good luck!
_________________________
Spondyloarthropathy with symptoms of AS, Sjögrens and fibro. Previously took Celebrex, Methotrexate, Trepiline, Prednisone which seemed to trigger a flare and my illness became much worse. Symptoms now kept mostly under control with NSD, as well as cutting sugar, dairy and yeast and food intolerances. Mostly pain free now and all symptoms massively improved.

Top
#519865 - 08/14/19 07:50 PM Re: NSD for non hlab27 sufferers [Re: NZMatt]
NZMatt Offline
New_Member

Registered: 08/11/19
Posts: 2
Loc: New Zealand
That is great to know, thanks heaps. I am day five now and definitely feeling an improvement in pain and mobility in my lower and mid back. No change to my neck yet, but i am feeling positive.....at last.

Top

Who's Online
0 registered (), 72 Guests and 4 Spiders online.
Key: Admin, Global Mod, Mod
Recent Posts
Sinuses
by fonzy
08/22/19 12:04 PM
NSD for non hlab27 sufferers
by NZMatt
08/11/19 11:22 PM
Success at last finally found my problem foods by
by L33
07/30/19 11:44 PM
Enbrel Users
by JamesF
07/21/19 01:20 PM
LRA - Lymphocyte Response Assay
by Hollingsworth
07/13/19 12:51 PM
Biologic complications
by Luvnlife
07/05/19 09:20 AM
CBD OIL
by Deborah
06/27/19 10:32 PM
(Views)Popular Topics
"FITNESS" TEAM! - All Physical Activity & Sports 47,225,858
hmmm 2,324,135
Has anyone had Pedicle subtraction Osteotomy ? 1,956,465
What to do about healthcare? Can it be fixed? 1,322,354
User names revisited 1,059,274
A.S and beds, What do you find best? 1,003,783
Medicinal Marijuana 980,285
OMG!!!! 921,214
No/Low Starch Diet Success Stories 730,364
THE STARCH CONTENT OF FOODS - THE LIST 484,197