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#519418 - 02/08/19 02:10 PM Pain is back
ranger7 Offline

Registered: 02/13/17
Posts: 37
Hi All, I have been on NSD for 2 years and was doing really well. Over the holidays I did not watch my diet as close and could have ate some starches (processed meats, BBQ with sauce, also found out that bacon I was eating for 3 weeks every day while I was away had maltodextrin in). I got first bout of iritis in December and now about a week ago, I woke up with lower back pain and also pains in my butt and hips (originally that's where the pain started). I have been back on strict NSD but the pain isn't going away. It is not as intense as it was at the beginning, but it is there and my stomach is also bloated and very constipated. ANy suggestions what's going on and how I can get back to previous low levels of pain? I know the diet work because it's been working for 2 years. Thank you.

#519419 - 02/08/19 02:56 PM Re: Pain is back [Re: ranger7]
iamhealth123 Offline

Registered: 01/22/19
Posts: 37
Maybe fast for 2-5 days, until the pain goes and restart an elimination diet?
Diagnosed with AS 2018, MRI Sacroiliac joint: HLB27 +: uveitis
Peripheral (hands, jaw, knees)
LSD - 2018, NSD - 2019, AIP June 2018

Some nuts (not me, what I eat)
No dairy
Some egg
Some low carb fruit

"a laptop scientist and everyday researcher committed to health"

#519421 - 02/09/19 11:41 AM Re: Pain is back [Re: ranger7]
DragonSlayer Offline
AS Czar

Registered: 09/05/01
Posts: 6096
Loc: Reno or SFLU Philippines
Hello, ranger7:

Have You been doing the EVOOil and borage seed oil? These will help eliminate the current flare also fresh wheatgrass juice 4-6oz on empty stomach until flare goes away, unless You can fast as iamhealth suggested.

Please keep us posted about Your situation. It was iritis that kept me strict straight-and-narrow on the diet--I HATE iritis!!!

Important AS Resources

Professor Ebringer: On Diet and AS;

RED ARROW --> Philippines

#519423 - 02/09/19 10:26 PM Re: Pain is back [Re: ranger7]
Kellybells Offline

Registered: 01/21/17
Posts: 177
Loc: Canada
So sorry to hear it ranger. I was in the same boat after the holidays after eating pretty carelessly. By early January my fingers were stiff and swollen and my knees were screaming. The final straw (as it always is) was when the usual tendon in my groin/hip flared, followed by my left SI joint.

To pull myself out I got super strict with my diet again and took 500mg berberine 2x day for 12 days. And when that was done, went back to 2x daily probiotic (garden of life primal ultra has worked wonders for me). My pain is gone again though my starch tolerance hasn't fully returned.

For 1.5 years I had been doing a 'weed and seed' protocol - 2 weeks of berberine followed by 6-8 weeks of probiotic. My starch tolerance improved enormously from doing it. I was still taking a probiotic every day but hadn't bothered with berberine for about 6-8 months. The protocol has been life changing. It has allowed me to freely eat foods that used to trip me up, like apples and dates. And the occasional big cheat is surprisingly minor and passes fairly quickly.

I was in quite a bit of pain after the holidays but my indulgence was truly obscene - bread, noodles, pizza, pastry, sushi, etc. for weeks. I'm better now but my starch tolerance hasnt fully returned. I'm going to repeat the protocol a few more times and see...I'm hoping to go back to just the probiotic after that.

Hope you find some relief soon.
Suspected USpA. HLA B27, xray, u/sound, blood tests all -ve. Ancient history of plantar fasciitis, SI joint pain, knee arthritis. Recent history of tendinitis, neck pain, debilitating finger pain and stiffness (especially mornings). No diagnosis, no meds.

2010 - stopped eating dairy
2012 - stopped eating wheat
2014 - stopped eating all grains
Jan 2017 - discovered NSD - 98% improvement in symptoms, continually amazed by my results, wish I'd found kickAS sooner

#519432 - 02/11/19 11:21 AM Re: Pain is back [Re: ranger7]
ranger7 Offline

Registered: 02/13/17
Posts: 37
Thank you John and Kellybells - I went back to strict diet and things are slowly improving. I do lots of EVOO, have to try Borage seed oil. I will also look up Berberine.

Thank you again.


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