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#519318 - 12/30/18 01:43 AM Hello Forum! New here, my story and questions.
Bazel Offline
New_Member

Registered: 12/28/18
Posts: 11
Dear forum,

Sadly I have been diagnosed with AS two weeks ago. I am currently in the process of getting tested for the right medication (the biologicals). I have a very typical combination of IBS and AS. I have two questions.

1. I have had IBS for 8 years prior to this condition, since I was 21. This contains diarrhea, extreme fatigue, bloating. The IBS started with glandular fever. Can this be seen as a precursor to AS? Anyone else seeing this pattern?

2. Would you guys rate my diet? Since I have IBS I am noticing a lot of gas on the no-starch diet. I am now eating less sulfur-rich vegetable. I want to start with an ultra safe diet. My diet for the coming days will be: zucchini, carrots, olives, cucumber (all the vegetables I can think of leaving out sulfur..), fish, meat, pistachios, olive oil, coconut oil, blue berries, oranges, tangerine, tamari and salt.

A bit more background:
I am currently 29 and when I was 21 I was diagnosed with Glandular Fever. Around this exact same time, I got stomach and intestine problems. I had never had these issues before in my life. The glandular fever passed, but the problems stayed. I have extreme fatigue (especially after eating), chronic diarrhea and stomach pains. I've been through all kinds of tests and hospitals, but there was never any answer so they just called it 'post-infectious functional dispepsia', or IBS.
In the last two years, I accidently found out that I react badly to potatoes and pasta. I've tried all kinds of diets before, gluten free, FODMAP, you name it. But never have I skipped potatoes/pasta. This helped me a lot. I thought the problem was carbo-hydrates. So in the last year I removed more and more from my diet. I started doing the keto-diet even. This gave me solid stool and no fatigue for the first time in 8 years. But I hate eating meat all day and it sounded very unhealthy. So I quit the diet and went back to a standard low-carb diet. Then after a month or two I develop AS (found the gene, x-rays were positive etc). Do you think this is related to my diet choices? Previous to the AS I did get really sick and had a high fever for a week, so my hypothesis is that the disease was the trigger, not the diet switching..
Anyway. I am looking into this AS-diet. I am finding out that all the foods I have been skipping for my IBS are actually foods that you skip in the AS-diet. That blows my mind. I cannot understand how this seems to work. Does it mean I have had a 'version' of AS all this time? Or is it just one big immunological mayhem?
Since a week of starting this diet my fatigue has greatly improved, at least the fatigue concerning eating. I am still tired of the prednisolon, the bad sleeping, etc. I am now trying to get the hang of it stomach-wise. No improvements on pain yet.
Reactions to my timeline and to my diet would be greatly appreciated!

-Bas

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#519319 - 12/30/18 04:46 AM Re: Hello Forum! New here, my story and questions. [Re: Bazel]
Cymro Offline
Member

Registered: 11/01/18
Posts: 44
Originally Posted By Bazel


1. I have had IBS for 8 years prior to this condition, since I was 21. This contains diarrhea, extreme fatigue, bloating. The IBS started with glandular fever. Can this be seen as a precursor to AS? Anyone else seeing this pattern?

Many people do say that some sort of troma happened to them just prior to them showing signs of A.S. But I doubt if there is any actual medical proof of that. A.S. is such a strange disease and the scientists still have a lot to learn about it.

2. Would you guys rate my diet?

I am very much a nonbeliever in any sort of special diet as a treatment for A.S.


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#519320 - 12/30/18 02:13 PM Re: Hello Forum! New here, my story and questions. [Re: Bazel]
DragonSlayer Offline
AS Czar

Registered: 09/05/01
Posts: 6083
Loc: Reno or SFLU Philippines


WELCOME, Bas:

Carol Sinclair initially had only IBS symptoms from her AS, but after evaluation by Professor Ebringer she released her updated book "The IBS Low-Starch Diet," with a foreword by Ebringer.

Certainly, the EBV is a concern and AS symptoms of fatigue can be exacerbated by the cycles of this with C. albicans. The Beck Protocol has helped several people I know, especially the two steps using colloidal silver and bioelectrification.

In general, Your diet looks very good, albeit some of us react to zucchini (it is good to test with iodine, per Carol's book). The diet should have a little more variety; please check out the NSD and Diet Forum. Tofu is safe for NSD, as well as many more nuts. Good recipes using almond and coconut flours on Andrea's "Forest and Fauna" site.

Glad to have You part of the discussion now,

HEALTH,
John
_________________________
Important AS Resources

Professor Ebringer: On Diet and AS;


RED ARROW --> Philippines

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#519323 - 12/31/18 12:55 AM Re: Hello Forum! New here, my story and questions. [Re: DragonSlayer]
Bazel Offline
New_Member

Registered: 12/28/18
Posts: 11
Hello John,

Thank you for your reply, and thank you for the effort you seem to put into this website!
I have ordered the book of Sinclair already and will read that. How do you come by C. albicans? I have had that infection a couple of times indeed, but not a lot. Like once a year.
I'll check out the other forum and see if I can add more to the diet.

-Bas

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#519326 - 12/31/18 12:26 PM Re: Hello Forum! New here, my story and questions. [Re: Bazel]
Dotyisle Offline


Registered: 03/07/02
Posts: 9405
Loc: Rosario, Argentina
Hello Bazel,

I was diagnosed in my mid 20s... fortunately my diagnosis was more simple than most (family history, HLA B27 positive, x-ray fusion)...

I started the diet for good back in March of 2002 soon after a move to Arizona. Over many years I can eat a bit more starch now... thanks to trying to improve my digestion and healing the gut.

I try to emphasize the fruits and veggies... I eat walnuts with raisins as a snack between meals. For breakfast (in States) I loved organic all natural yogurt with some sort of berries (mostly blue). I also tried to eat fish more than red meat.

Energy and very hard stools were issues for me in 1st year on diet... had many battles and many posts here regarding both. The 3 day apple fast helped with energy.. including probiotics helped the regularity. Happily both issues have been history for many years now.

Best to you moving forward.. if you have questions on diet, good to ask in the Diet Forum.

Regards,

Tim
_________________________
AS may win some battles, but I will win the war.

KONK - Keep ON Kicking

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#519327 - 12/31/18 02:56 PM Re: Hello Forum! New here, my story and questions. [Re: Bazel]
DragonSlayer Offline
AS Czar

Registered: 09/05/01
Posts: 6083
Loc: Reno or SFLU Philippines

Hello, Bas:

C. albicans is a common fungus that everyone has in some amount; the overgrowth is called "candidiasis" or "thrush," and comes about by eating too much sugar and starches. There are several methods used to reduce this fungus, which gets much worse when taking antibiotics and steroids (of any kind--women taking birth control pills can experience a flare).

The NSD should help, but note that candidiasis increases leaky gut, thereby increasing AS activity, and it takes a long time for this to heal properly. This is a good reason to also stay away from refined sugars.

HEALTH,
John
_________________________
Important AS Resources

Professor Ebringer: On Diet and AS;


RED ARROW --> Philippines

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#519329 - 01/01/19 10:21 AM Re: Hello Forum! New here, my story and questions. [Re: Bazel]
Bazel Offline
New_Member

Registered: 12/28/18
Posts: 11
Thank you guys for the replies. I am certainly noticing sugar in general gives me problems, so that could be something to look out for.
I am having very varied results with the diet, which is actually giving me hope. There is a huge impact of diet on how I feel. I had a pretty normal stool yesterday, but diarhea afterwards again. Also I have a lot of energy, like I never had before.

I am going to continue the strict diet for the coming weeks. I will read up more on the C. albicans and scour the diet forum!

Thanks,

-Bas

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#519337 - 01/07/19 01:29 AM Re: Hello Forum! New here, my story and questions. [Re: Bazel]
eleyyan Offline
New_Member

Registered: 08/28/18
Posts: 3
Loc: UAE
Hi Bazel,
I diagnosed myself with AS last year after 18 years of not knowing why I had this pain, have still not seen a doctor (not found one and not looked hard enough for a specialist), do not use any medication and am now relatively pain free, after experimenting with a number of potential solutions.
Apart from having the correct type of food for diet, try to also pay attention to the amount of food - and this will mainly depend on how active you are; how many calories do you burn in a day on average.
Excess calories over an extended period will mean more pain.
Try to reduce the amount of calories you take in and see if there is any relief.
Average calories taken in vs. burnt/spent over a month/week should balance (or have a deficit if you want to lose weight).

This is working for me. I'm curious to know if anyone else would have the same effect.
This could also have an effect on IBS.

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#519338 - 01/07/19 08:58 AM Re: Hello Forum! New here, my story and questions. [Re: eleyyan]
Cymro Offline
Member

Registered: 11/01/18
Posts: 44
Originally Posted By eleyyan


I diagnosed myself with AS last year after 18 years of not knowing why I had this pain, have still not seen a doctor (not found one and not looked hard enough for a specialist), do not use any medication and am now relatively pain free,

.


Self Diagnoses is never recommended for any illness especially one as complicated as A.S. Still if you are relatively pain free and manage. Still seeing a rheumatologist could be a good idea if only just in case of how things may turn out for you in the future.

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#519342 - 01/07/19 11:46 AM Re: Hello Forum! New here, my story and questions. [Re: eleyyan]
vazai Offline
New_Member

Registered: 11/10/18
Posts: 6
Originally Posted By eleyyan
I diagnosed myself with AS last year after 18 years of not knowing why I had this pain, have still not seen a doctor (not found one and not looked hard enough for a specialist), do not use any medication and am now relatively pain free, after experimenting with a number of potential solutions.


Can I ask what symptons you have and how you diagnosed yourself without MRI?

Originally Posted By eleyyan
Apart from having the correct type of food for diet, try to also pay attention to the amount of food - and this will mainly depend on how active you are; how many calories do you burn in a day on average.
Excess calories over an extended period will mean more pain.
Try to reduce the amount of calories you take in and see if there is any relief.
Average calories taken in vs. burnt/spent over a month/week should balance (or have a deficit if you want to lose weight).

This is working for me. I'm curious to know if anyone else would have the same effect.
This could also have an effect on IBS.


I agree on the quantity of food. I feel much better if I eat less and stay "light" in general. For sure I need to avoid to eat too much. I have a office based job and don't burn many calories during the day.

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