banners
Kickas Main Page | Rights and Responsibilities | Donate to Kickas
Kickas Links
·HOME
·Forums Main Index
·Register!
MEDICAL CENTRE
·Medicine Contract
·AS Patient Guidebook
·Pain Map
·Disease Modification
·Ask your doctor
·AS and RA Papers
·AS Acronyms
DIET CENTRE
·London AS Diet
·Molecular Mimicry
·AS Dietary Primer
·AS Food Guide
SUPPORT CENTRE
·In Memorium
·KickAS Stories
·KickAS Banners
·Donations
Forum Stats
13,324 Registered Members
28 Forums
43,649 Topics
517,880 Posts

Most users ever online: 1,568 @ 06/29/16 03:25 PM
Newest Members
RRK221, keller3, JaneRose, pseudoguru, Bezz
13324 Registered Users
KickAs Team
Administrator/owner:
John (Dragonslayer)
Administrator:
Melinda (mig)
WebAdmin:
Timo (Timo)
Administrator:
Brad (wolverinefan)

Moderators:
- Tim (Dotyisle)
- Chelsea (Kiwi)
- Megan (Megan)
- Wendy (WendyR)
- John (Cheerful)
- Chris (fyrfytr187)

QR Code
If you want to use this QR code (Quick Response code) just save the image and paste it where you want. You can even print it and use it that way. Coffee cups, T-Shirts etc would all be good for the QR code.
Page 1 of 2 1 2 >
Topic Options
#519296 - 12/24/18 11:05 AM India trip
DragonSlayer Offline
AS Czar

Registered: 09/05/01
Posts: 6092
Loc: Reno or SFLU Philippines


We spent about three weeks traveling through India and meeting AS patients when and where we could.

Although we got back on December 6th, I am still processing the experience--At least both logically and emotionally!

When I began fighting for the diet, I got letters from people who are Irish, claiming "I NEED my potatoes!" And Italians of course who cannot do without their pasta. And I won't get into the implications of PC related to suggesting a specific food is required due to some genetic heritage! However, INDIAN people are vegetarian--not because of anything necessarily genetic, but because of their religion: Their bodies may deteriorate because of AS, but their souls will remain pure and untainted by the karma of killing to live.

It is something I struggled with, as a vegetarian of 22 years when I began NSD; it took nearly a year for me to transition back to meats, and I am grateful to the animals who have given up their lives for mine, if unintentionally and unawares.

There is no sarcasm in this; I am both humble for the health opportunities, and grateful for their support.

I am also grateful for this medium of communication, for this website specifically, and for the work and contributions of Professor Ebringer, help from George McCaffery, dedication and very active work of Pete Younghusband and Timo Markkanen both now gone, Tony Browneller, and so many others who have materially helped KA, which I inherited and the responsibility is felt often, especially on this trip.

When I visited Gautam Dandekar in Mumbai, we had such a great visit and he did something that was kind of stunning to me, in a ritual touching my feet to show respect. He said that this site is helping more people in more ways than I can ever know, and he appreciates the great work we are doing here! He had been bedridden for two years before discovering KickAS perhaps six or seven years ago. Now he can walk again, has recovered his life, and is able to help others who find themselves in the same situation. He has only slight kyphosis and this process has perhaps totally halted.

So, I know the purpose of this site is patients helping patients, and I am very humbled by the experience of being KickAS personified--because of the people I have mentioned, this site exists and I only 'stand upon the shoulders of giants.'

I know what the fellow patients in India are going through and made real connections with each, and hope I can encourage them enough to avoid the mistakes I made and avoid the permanent damage I am stuck with. It is difficult to express just how much I love these guys and gals--AS WARRIORS each, and the members here--we have done battle with this damn disease and even at times with each other, but it is all for a good purpose: So we can encourage one another to have more life in our limited time and more quality time to spend with those we love.

Merry Christmas

John
_________________________
Important AS Resources

Professor Ebringer: On Diet and AS;


RED ARROW --> Philippines

Top
#519298 - 12/24/18 09:33 PM Re: India trip [Re: DragonSlayer]
jay_bharat Offline
Decorated_AS_Kicker

Registered: 12/08/08
Posts: 717
Loc: INDIA, Tamil Nadu
Hi John,

Thanks for your efforts. I came to know about your India visit through AS India FB.

Quote:
Their bodies may deteriorate because of AS, but their souls will remain pure and untainted by the karma of killing to live.


Thanks for your compliments.

Regards.

Jay

Top
#519299 - 12/26/18 07:39 AM Re: India trip [Re: DragonSlayer]
Dotyisle Offline


Registered: 03/07/02
Posts: 9431
Loc: Rosario, Argentina
Cheers Dragonslayer - thanks for the post on the trip.

Tim
_________________________
AS may win some battles, but I will win the war.

KONK - Keep ON Kicking

Top
#519301 - 12/26/18 02:40 PM Re: India trip [Re: jay_bharat]
DragonSlayer Offline
AS Czar

Registered: 09/05/01
Posts: 6092
Loc: Reno or SFLU Philippines
Thanks, Jay:

I am always impressed, in so many ways, by the people in India, and if in some small way this site can help a few of the willing, I am very thankful.

This is an awesome tool,

HEALTH,
John
_________________________
Important AS Resources

Professor Ebringer: On Diet and AS;


RED ARROW --> Philippines

Top
#519302 - 12/26/18 02:42 PM Re: India trip [Re: Dotyisle]
DragonSlayer Offline
AS Czar

Registered: 09/05/01
Posts: 6092
Loc: Reno or SFLU Philippines

Hey, Tim!

You are a big part of the solution that is KA today; Thank You!

Credit is due all around, to the members, supporters, and founders--all deserve much praise.

HEALTH,
John
_________________________
Important AS Resources

Professor Ebringer: On Diet and AS;


RED ARROW --> Philippines

Top
#519307 - 12/28/18 11:21 PM Re: India trip [Re: DragonSlayer]
mulehound Offline
Commanding_AS_Kicker

Registered: 04/27/09
Posts: 693
Loc: USA state of Utah
High five my friend
ETTE
Darrel

Top
#519309 - 12/29/18 10:56 AM Re: India trip [Re: DragonSlayer]
Lon Offline
Very_Addicted_to_AS_Kickin

Registered: 09/11/01
Posts: 8397
Loc: Gillette, Wyoming
My Dear Brother John,
Through the years many of us have stopped posting because it seems redundant or we have said it before. Like Pete said years go "I just run out of words / I don't have anything else to say!"
You keep telling us, prodding us to never give us and to use self control with good information.


I also enjoyed your pictures!
agape'

Lon

Top
#519312 - 12/29/18 03:06 PM Re: India trip [Re: mulehound]
DragonSlayer Offline
AS Czar

Registered: 09/05/01
Posts: 6092
Loc: Reno or SFLU Philippines


Darrel!

Wonderful to hear from You! We were just reminiscing about our trip to Moab and meeting You guys. Hope to see You again soon!

HEALTH
John
_________________________
Important AS Resources

Professor Ebringer: On Diet and AS;


RED ARROW --> Philippines

Top
#519313 - 12/29/18 03:16 PM Re: India trip [Re: Lon]
DragonSlayer Offline
AS Czar

Registered: 09/05/01
Posts: 6092
Loc: Reno or SFLU Philippines
Ah, Br'er Lon--

It was a distinct honor to spend time with You in Wyoming--Clearmont (?). Even old friends never really get old. But, oh yeah--I think I've said more than enough about this damn disease! Constant battle...

We had a very interesting time. Hope to see You also in the new year--have a HEALTHY, Happy one!

John
_________________________
Important AS Resources

Professor Ebringer: On Diet and AS;


RED ARROW --> Philippines

Top
#519316 - 12/29/18 08:24 PM Re: India trip [Re: DragonSlayer]
Lon Offline
Very_Addicted_to_AS_Kickin

Registered: 09/11/01
Posts: 8397
Loc: Gillette, Wyoming
Thanks John!
agape'
Br'er Lon

Top
Page 1 of 2 1 2 >

Who's Online
0 registered (), 99 Guests and 0 Spiders online.
Key: Admin, Global Mod, Mod
Recent Posts
Short question about hunger and NSD
by Bazel
06/26/19 08:22 AM
New to the group, have a few questions
by pseudoguru
06/19/19 02:04 PM
IL-23–producing IL-10Rα–deficient gut macrophages
by daredevil
06/16/19 09:10 AM
MS and neurological symptoms
by Wilhelm
06/12/19 07:54 PM
How long did it take you for full recovery?
by beyondas
06/09/19 05:18 AM
Pain Conundrum
by mutagen
06/08/19 08:15 PM
I made a picture food guide which is healing my AS
by Arashi
06/08/19 11:43 AM
(Views)Popular Topics
"FITNESS" TEAM! - All Physical Activity & Sports 45,998,254
hmmm 2,286,951
Has anyone had Pedicle subtraction Osteotomy ? 1,919,085
What to do about healthcare? Can it be fixed? 1,295,294
User names revisited 1,040,945
A.S and beds, What do you find best? 985,372
Medicinal Marijuana 963,880
OMG!!!! 907,072
No/Low Starch Diet Success Stories 712,863
THE STARCH CONTENT OF FOODS - THE LIST 479,856