banners
Kickas Main Page | Rights and Responsibilities | Donate to Kickas
Kickas Links
·HOME
·Forums Main Index
·Register!
MEDICAL CENTRE
·Medicine Contract
·AS Patient Guidebook
·Pain Map
·Disease Modification
·Ask your doctor
·AS and RA Papers
·AS Acronyms
DIET CENTRE
·London AS Diet
·Molecular Mimicry
·AS Dietary Primer
·AS Food Guide
SUPPORT CENTRE
·In Memorium
·KickAS Stories
·KickAS Banners
·Donations
Forum Stats
12,990 Registered Members
28 Forums
43,500 Topics
516,908 Posts

Most users ever online: 1,568 @ 06/29/16 03:25 PM
Newest Members
Cyndimg, DannyM, DaveL458, Oceangal, Medicjerry71
12990 Registered Users
KickAs Team
Administrator/owner:
John (Dragonslayer)
Administrator:
Melinda (mig)
WebAdmin:
Timo (Timo)
Administrator:
Brad (wolverinefan)

Moderators:
- Tim (Dotyisle)
- Chelsea (Kiwi)
- Megan (Megan)
- Wendy (WendyR)
- John (Cheerful)
- Chris (fyrfytr187)

QR Code
If you want to use this QR code (Quick Response code) just save the image and paste it where you want. You can even print it and use it that way. Coffee cups, T-Shirts etc would all be good for the QR code.
Page 2 of 2 < 1 2
Topic Options
#518315 - 02/28/18 03:49 AM Re: recent surgery problems [Re: AnitaC]
MollyC1i Offline
Very_Addicted_to_AS_Kickin

Registered: 01/21/04
Posts: 9749
Loc: Brittany, France (since Nov 08...
You are handling matters very well indeed - gave the lie back to that surgeon...he won't be so judgemental nxt time round with other patients!
Take care - go well
_________________________
MollyC1i - Riding OutAS

Top
#518316 - 02/28/18 05:24 AM Re: recent surgery problems [Re: AnitaC]
Robin_H Offline
Second_Degree_AS_Kicker

Registered: 09/13/15
Posts: 246
Loc: Hubei, China
Originally Posted By AnitaC
Here’s my problem: my neurosurgeon says that my inability to lay flat or have pressure on my back has nothing to do with my surgery and or the incision site???


That comes across as dismissive but it may really just be over confidence. One must have a lot of confidence to do that type of surgery.

Originally Posted By AnitaC

I’ve been to the ER because I was worried something significant was going on and my doctor was leaving on vacation and he told me if I as that worried....”go to the ER”.
All of my labs were good, my blood pressure was fine etc. so they called his colleague ho also said that my symptoms were not related to my surgery and to see my regular doctor


That sounds like an "old-boys" club! But at least they didn't conspire to bury the mistake.

They will do a good job second time in. You're going to feel much better some time after the surgery. Medicine certainly does well in some cases. Now I just wish they knew how to avoid all this abnormal deterioration in the first place.

Anita, are the disks a location of an old injury? Infection and even our own immune system like to target those weak spots.
_________________________
HLA-B27 neg; Mis-diagnosed with fibromyalgia in mid-20s.
Vague AS symptoms in 20s and early 30s (no diagnosis).
During age 47 (2015) from NSAID use developed complete axial inflammation (started from from skull and progressed down to sacrum). Included psoriasis. Trigger in scull was reverse blockage in a SCUBA mishap in 2013. Straw that broke the camels back was over use of NSAIDs. NSD works well but not perfect. Strong involvement between symptoms and gut integrity.

Top
#518319 - 02/28/18 02:47 PM Re: recent surgery problems [Re: Robin_H]
AnitaC Offline
Member

Registered: 09/30/17
Posts: 25
Loc: Oregon
I had a dicectomy as well as laminectomy. Lots of arthritis so my incision was large. The dicectomy was due to a fall in August. Honestly, I don’t think my insurance would have been as quick to approve me without the injury from the fall. My arthritis was slowly taking away my mobility but the fall kinda sealed the deal. My current hematoma is slowly expanding so sitting, standing are done only for a few minutes at a time. I lay from side to side until the sciatic pain overwhelms me. Sorry to complain.....this has been excruciating. I’m looking forward to the relief I hope surgery will bring. I’m a mom and it’s been very difficult. Anyway....I have my faith so I rely on that most definitely!!

Top
#518321 - 03/01/18 04:24 AM Re: recent surgery problems [Re: AnitaC]
Robin_H Offline
Second_Degree_AS_Kicker

Registered: 09/13/15
Posts: 246
Loc: Hubei, China
I'm on the road way behind you but I too can not lie on my back. In my case I'm confident an infection is creating inflammation that is eating up my spine. The worst places are were there has been injury and strain, which opens the door to chronic infection. I anticipate surgery one day too.

Stay strong!
_________________________
HLA-B27 neg; Mis-diagnosed with fibromyalgia in mid-20s.
Vague AS symptoms in 20s and early 30s (no diagnosis).
During age 47 (2015) from NSAID use developed complete axial inflammation (started from from skull and progressed down to sacrum). Included psoriasis. Trigger in scull was reverse blockage in a SCUBA mishap in 2013. Straw that broke the camels back was over use of NSAIDs. NSD works well but not perfect. Strong involvement between symptoms and gut integrity.

Top
Page 2 of 2 < 1 2

Moderator:  fyrfytr187, WendyR 
Who's Online
0 registered (), 67 Guests and 3 Spiders online.
Key: Admin, Global Mod, Mod
Recent Posts
phage therapy for AS?
by worldofme
Yesterday at 06:42 PM
THE ULTIMATE REBUILD
by AJ_FUSED
05/26/18 11:47 PM
Microbial exposure for some infants stops leukemia
by Robin_H
05/24/18 09:33 AM
Big flare while on a biologic? Please help.
by Wilhelm
05/13/18 09:42 AM
Medical Marijuana
by zheron
05/12/18 03:58 PM
Recipe requests
by Robin_H
05/10/18 04:31 AM
NSD partial success: continue or not
by AlexR
05/09/18 06:27 AM
(Views)Popular Topics
"FITNESS" TEAM! - All Physical Activity & Sports 37,871,361
hmmm 2,004,946
Has anyone had Pedicle subtraction Osteotomy ? 1,669,559
What to do about healthcare? Can it be fixed? 1,116,729
User names revisited 924,781
Medicinal Marijuana 852,677
A.S and beds, What do you find best? 831,898
OMG!!!! 788,384
No/Low Starch Diet Success Stories 594,325
THE STARCH CONTENT OF FOODS - THE LIST 449,953