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#518293 - 02/24/18 10:53 PM tips for extreme fatigue?
Didier Offline
First_Degree_AS_Kicker

Registered: 01/12/12
Posts: 192
For the last year I've had little-to-no pain or stiffness, but lots of fatigue. The fatigue gets much better when I take NSAIDs like celebrex, but I only take a half-dose every couple of days because it hurts my stomach and I'm just wary of it (i'm also on blood thinners and have UC, which amplify the risk of stomach bleeding).

I find it quite hard to get through the day. No matter how many hours i sleep I have deep bags under my eyes. After a strong coffee in the morning I'm usually ok for a few hours but by the time I reach the office I'm ready for a nap. Eating is difficult, as I feel very tired for several hours after eating, so I try to eat light. I'm considering caffeine pills to stay more awake throughout the day but I find they don't wake me up, just make me feel jittery.

I'm 37M and my testosterone tested low in the past which might be a contributing factor, but then again I've had years of being very energetic despite low T levels.

I'm considering reducing my job responsibilities to see if perhaps reducing stress and workload would help. Stress seems to be linked.

Anyone have tips for how to manage fatigue and get more energy? I would really appreciate all advice and lessons learned!


Edited by Didier (02/24/18 11:04 PM)

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#518294 - 02/24/18 11:01 PM Re: tips for extreme fatigue? [Re: Didier]
Didier Offline
First_Degree_AS_Kicker

Registered: 01/12/12
Posts: 192
I realized I posted on this before back in 2014! Since then I enjoyed nearly 3 years of remission before coming back full circle. Interesting to look back on how things were.

http://www.kickas.org/ubbthreads/ubbthre...3603#Post503603

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#518295 - 02/25/18 04:26 AM Re: tips for extreme fatigue? [Re: Didier]
Frederick Offline
Third_Degree_AS_Kicker

Registered: 03/28/06
Posts: 258
These rheumatology things are so erratic one day all is well and then for no apparent reason you can hardly move. I did once have a period of 10 years of remission. Well not quite complete remission I still took the occasional pain killer but at least I was able to keep down a full time job. Still I don't suppose getting older is any help.

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#518320 - 03/01/18 01:05 AM Re: tips for extreme fatigue? [Re: Didier]
L33 Offline
Journeyman_AS_Kicker

Registered: 07/17/13
Posts: 142
Loc: South Africa
@Didier

Sounds like you are bleeding internally....

I suggest stopping all NSAID and see if you improve. Also you could take iron tablets,
Iron increases oxygen in the blood. You could be anemic.
_________________________
HLA B27+
Have AS since the age of 13.
Diagnosed in 2005 at the age of 22


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#518326 - 03/01/18 08:44 PM Re: tips for extreme fatigue? [Re: L33]
Didier Offline
First_Degree_AS_Kicker

Registered: 01/12/12
Posts: 192
Originally Posted By L33

Sounds like you are bleeding internally....


Not sure how you got that from my description? The fatigue has been ongoing for several months yet no sign of blood, no doctors think it's internal bleeding or anemia given my blood test results. It gets substantially better when i take celebrex

Is fatigue like this not really common with AS?

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#518328 - 03/02/18 07:54 AM Re: tips for extreme fatigue? [Re: Didier]
Frederick Offline
Third_Degree_AS_Kicker

Registered: 03/28/06
Posts: 258
Some medications for A.S. can cause anemia. Some of the NSAIDs. are are often blamed for making the patient anemic. Rather surprised they have not prescribed iron supplement for you.

Fatigue is a recognised and common symptom of A.S.

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#518330 - 03/03/18 03:26 AM Re: tips for extreme fatigue? [Re: Didier]
L33 Offline
Journeyman_AS_Kicker

Registered: 07/17/13
Posts: 142
Loc: South Africa
Hi guys

Please remember that inflammation in the joints causes bleeding in the joints followed by repair which leeds to fusion.

I am anemic according to my doctors and I think it is due to the AS.
_________________________
HLA B27+
Have AS since the age of 13.
Diagnosed in 2005 at the age of 22


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#518365 - 03/06/18 11:02 PM Re: tips for extreme fatigue? [Re: Didier]
eleanthe Offline
New_Member

Registered: 10/28/17
Posts: 4
My AS was diagnosed by figuring out that I have the anemia of chronic disease rather than regular anemia. I dont remember the mechanism but rheumatoid diseases often cause anemia, and treatment of the disease will help cure the anemia. Anemia causes fatigue but so does AS and so does chronic pain and so do several of the meds you may take. Maybe try eating more fat to fuel your body. I have been through the food/fatigue cycle a lot and have totally changed the way I eat. I am still eating some starch but focus on more of a ketogenic diet because I find it energizing. Reduce carbs and replace with whole cream, cheese, avocado, macademia nuts etc. I also have to limit nsaid use due to stomach pain and I save them for when I eat carbs.

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